Company lists · Data refreshed September 2026
Top 25 Genetic disorder organizations based in the United States
RevenueBase identified 153 company matches for genetic disorder organizations associated with the United States as of September 2026 and tracks 1,621 professional contacts across them, including 633 with verified work emails. New York is the largest hub.
This list covers company matches for genetic disorder organizations associated with the United States, found by RevenueBase SmartSearch using the meaning of business descriptions in its company graph at Exact. Ranked by professionals tracked, largest first. Rows show recorded descriptions where available, Exact search membership and the snapshot date. Data refreshed September 19, 2026.
Published by RevenueBase, a B2B data infrastructure company. This list was built with RevenueBase SmartSearch, the natural-language company search RevenueBase customers use to build their own targeted lists and unlock verified emails and direct dials at the companies on them. How these lists are built and judged.
The 25 largest genetic disorder organizations based in the United States
Ranked by team size| # | Company | Contacts | |||
|---|---|---|---|---|---|
| 1 | 372 contacts → | ||||
Exact match “TGen, a part of City of Hope, is a non-profit 501(c)(3) organization focused on developing earlier diagnostics and smarter treatments.” Recorded in the RevenueBase company graph · Sep 19, 2026 · View company records in RevenueBase | |||||
| 2 | 177 contacts → | ||||
Exact match “For 50 years, the Greenwood Genetic Center has provided clinical genetic services, diagnostic laboratory testing, educational programs and resources, and medical genetics research…” Recorded in the RevenueBase company graph · Sep 19, 2026 · View company records in RevenueBase | |||||
| 3 | 107 contacts → | ||||
Exact match “The Clinic for Special Children was established in 1989 as a non-profit medical home for Amish and Mennonite children and adults with rare genetic disorders.” Recorded in the RevenueBase company graph · Sep 19, 2026 · View company records in RevenueBase | |||||
| 4 | 84 contacts → | ||||
Exact match “Our mission is to bridge critical gaps in access, ensuring that individuals and families affected by rare conditions receive the expert guidance they need.” Recorded in the RevenueBase company graph · Sep 19, 2026 · View company records in RevenueBase | |||||
| 5 | 52 contacts → | ||||
Exact match “Founded in 1991, the American College of Medical Genetics and Genomics (ACMG) is the only nationally recognized medical society dedicated to improving health through the clinical…” Recorded in the RevenueBase company graph · Sep 19, 2026 · View company records in RevenueBase | |||||
| 6 | 51 contacts → | ||||
Exact match “The mission of the Genetics Society of America (GSA) is to deepen our understanding of the living world by advancing the field of genetics.” Recorded in the RevenueBase company graph · Sep 19, 2026 · View company records in RevenueBase | |||||
| 7 | 50 contacts → | ||||
Exact match “FORCE Facing Our Risk of Cancer Empowered is a national nonprofit organization dedicated to improving the lives of the millions of individuals and families facing hereditary…” Recorded in the RevenueBase company graph · Sep 19, 2026 · View company records in RevenueBase | |||||
| 8 | 45 contacts → | ||||
Exact match “The American Society of Human Genetics (ASHG), founded in 1948, is the primary professional membership organization for human genetics specialists worldwide.” Recorded in the RevenueBase company graph · Sep 19, 2026 · View company records in RevenueBase | |||||
| 9 | 31 contacts → | ||||
Exact match “Rare Genomics Institute (RG) was founded in 2011 to fill the health care gap for undiagnosed rare disease patients and supporting research in rare diseases.” Recorded in the RevenueBase company graph · Sep 19, 2026 · View company records in RevenueBase | |||||
| 10 | 30 contacts → | ||||
Exact match “Genetic Alliance is the world’s leading nonprofit health advocacy organization committed to transforming health through genetics and promoting an environment of openness centered…” Recorded in the RevenueBase company graph · Sep 19, 2026 · View company records in RevenueBase | |||||
| 11 | 28 contacts → | ||||
Exact match “A Community-Based Public Health Initiative Dedicated to Preventing Genetic Diseases and Promoting Healthy Families.” Recorded in the RevenueBase company graph · Sep 19, 2026 · View company records in RevenueBase | |||||
| 12 | 21 contacts → | ||||
Exact match “OUR MISSION To improve the quality of healthcare by providing up-to-date, objective genetic information to patients, providers, and healthcare organizations, supporting those in…” Recorded in the RevenueBase company graph · Sep 19, 2026 · View company records in RevenueBase | |||||
| 13 | 15 contacts → | ||||
Exact match “The Histiocytosis Association is a global nonprofit organization dedicated to addressing the unique needs of patients and families dealing with the effects of histiocytic…” Recorded in the RevenueBase company graph · Sep 19, 2026 · View company records in RevenueBase | |||||
| 14 | 12 contacts → | ||||
Exact match “With 400 million affected with a rare disease, we represent a critical chromosome disorder that has a serious neurological effect that can help give us insight into common…” Recorded in the RevenueBase company graph · Sep 19, 2026 · View company records in RevenueBase | |||||
| 15 | 11 contacts → | ||||
Exact match “Dup15q Alliance provides family support and promoted awareness, research and targeted treatments for chromosome 15q11.2-13.1 duplication syndrome.” Recorded in the RevenueBase company graph · Sep 19, 2026 · View company records in RevenueBase | |||||
| 16 | 11 contacts → | ||||
Exact match “CureGRIN Foundation is a global, parent-led organization dedicated to improving the lives of individuals and families affected by GRI Disorders (GRIA, GRID, GRIK, and GRIN).” Recorded in the RevenueBase company graph · Sep 19, 2026 · View company records in RevenueBase | |||||
| 17 | 11 contacts → | ||||
Exact match “For more than 30 years, Vision of Children has been at the forefront of unlocking the secrets to cures for genetic eye disorders.” Recorded in the RevenueBase company graph · Sep 19, 2026 · View company records in RevenueBase | |||||
| 18 | 10 contacts → | ||||
Exact match “EveryONE Medicines is committed to developing individualized precision medicines targeting genetic variants causing fatal, neurodegenerative diseases unique to just a few or even…” Recorded in the RevenueBase company graph · Sep 19, 2026 · View company records in RevenueBase | |||||
| 19 | 9 contacts → | ||||
Exact match “Lillestol Research invites you to participate in genetic-based research aimed at understanding, preventing, and curing the diseases that affect your family.” Recorded in the RevenueBase company graph · Sep 19, 2026 · View company records in RevenueBase | |||||
| 20 | 9 contacts → | ||||
Exact match “Accelerating Genetic Disease Diagnosis via Education and Testing.” Recorded in the RevenueBase company graph · Sep 19, 2026 · View company records in RevenueBase | |||||
| 21 | 9 contacts → | ||||
Exact match “The non-profit Center for Human Genetics, Inc.” Recorded in the RevenueBase company graph · Sep 19, 2026 · View company records in RevenueBase | |||||
| 22 | 9 contacts → | ||||
Exact match “National Tay-Sachs & Allied Diseases Association (NTSAD) leads the worldwide fight to treat and cure Tay-Sachs, Canavan, GM1, and Sandhoff diseases by driving research, forging…” Recorded in the RevenueBase company graph · Sep 19, 2026 · View company records in RevenueBase | |||||
| 23 | 9 contacts → | ||||
Exact match “We love to help individuals and couples who have genetic questions while considering fertility treatment.” Recorded in the RevenueBase company graph · Sep 19, 2026 · View company records in RevenueBase | |||||
| 24 | 8 contacts → | ||||
Exact match “The CURE GM1 FOUNDATION’s mission is to fund research for the benefit of all those who suffer from GM1 gangliosidosis.” Recorded in the RevenueBase company graph · Sep 19, 2026 · View company records in RevenueBase | |||||
| 25 | 8 contacts → | ||||
Exact match “The Genesis Foundation for Children provides funding for the diagnosis and compassionate, coordinated care of children born with genetic disorders, rare diseases, and disabilities.” Recorded in the RevenueBase company graph · Sep 19, 2026 · View company records in RevenueBase | |||||
RevenueBase SmartSearch
Describe a niche business in your own words. RevenueBase SmartSearch compares the meaning of your description with company business descriptions compiled in the RevenueBase company graph. Exact, Similar, Related and Broad control how closely companies must fit.
This list uses Exact for “genetic disorder organizations”. Each Exact match badge shows membership in that saved search; it is not an individual similarity score or a service-quality rating. Recorded descriptions are shown where available.
Showing 25 of 153 genetic disorder organizations based in the United States
See the full list, filter by size, metro and specialty, and access 633 tracked professional contacts with verified work emails. Direct dials are available where recorded.
Free signup · no credit card
Genetic disorder organizations based in the United States at a glance
As of Sep 19, 2026Companies by employee count
Email recency for this list is measured worldwide rather than for United States, so it is reported there. Company counts and contact totals on this page are exact for United States, over 153 companies.
How this list was built
The recorded descriptions help you assess these company matches. Check a company’s website for its current services and locations.
- Source
- The RevenueBase company graph: 60 million companies and 398.9 million professional contacts resolved from primary sources, queried with RevenueBase SmartSearch, the natural-language company search available to every RevenueBase user.
- What qualifies
- Company records associated with the United States whose business descriptions match “genetic disorder organizations” by meaning at the Exact setting. Descriptions are compiled in the RevenueBase company graph from public websites, profiles and company information where available; they are not guaranteed quotations from the company's website.
- RevenueBase SmartSearch
- Describe a niche company in your own words to find businesses by meaning. Exact, Similar, Related and Broad control the breadth of RevenueBase SmartSearch. This saved list uses Exact. Each row's Exact match badge shows inclusion in that search, not an individual score or a service-quality judgment.
- Public preview
- The public preview omits records without a verified work email. Where headquarters information is recorded, preview rows are also filtered to this page’s location. Dataset totals and geographic summaries describe the full matched records before these preview filters.
- Match quality
- RevenueBase's August 25, 2026 study assessed 4,198 description/company pairs across matching settings. The publisher reports 86% good or better at Exact. This evaluates the method across queries; it does not audit this individual list. Recorded company descriptions, where available, help you judge each match yourself. Read the full methodology: how the lists are built and what the study measures.
- Ranking
- Team size, largest first: companies are ordered by the number of professionals RevenueBase tracks at each one. Employee ranges shown are reported bands, for context.
- Verification
- Every displayed company carries at least one verified work email. RevenueBase tracks 633 professional contacts with verified work emails across the full matched dataset. Contacts re-verify on a rolling cadence, and each contact's own verification date is shown inside RevenueBase.
- Refresh
- This page's figures were pulled from the company graph on September 19, 2026. Lists refresh periodically as the graph is re-checked.
- Record context
- Company records and descriptions can change. Check the company's website for its current services and locations.
Frequently asked
What is RevenueBase SmartSearch?
RevenueBase SmartSearch finds niche companies by the meaning of their business descriptions in the RevenueBase company graph. Exact, Similar, Related and Broad control how closely companies must fit your description. This list uses Exact for “genetic disorder organizations”; each Exact match badge shows search membership, not an individual similarity or quality score.
How many genetic disorder organizations are there based in the United States?
RevenueBase identified 153 company matches for genetic disorder organizations associated with the United States as of September 2026, using the meaning of business descriptions at Exact. This is the recorded matched set in the RevenueBase company graph.
What is the largest company on this list?
TGEN tops the displayed preview by professional contacts tracked in RevenueBase. Recorded headquarters appear in the company rows.
Which city has the most genetic disorder organizations?
New York leads with 8 company records, followed by Atlanta (6) and Boston (5).
How do I get contact information for these companies?
A free RevenueBase account lets you run this exact search and work limited free results with 500 credits to start. Upgrading provides access to the 633 professional contacts with verified work emails tracked across these 153 companies; direct dials are available where recorded.
How current is this list?
The list refreshes periodically as the company graph is re-checked. This page's figures were pulled on September 19, 2026.
Ready to reach these companies? Verified emails and direct dials for all 153 genetic disorder organizations based in the United States. Start with a free account, no credit card.
Download this list →Related lists
Genetic disorder organizations by geography
About this data
RevenueBase is a B2B data infrastructure company. Its company graph covers 60 million companies and 398.9 million professional contacts, with emails verified on a rolling cadence rather than scraped once and left to decay. These company lists are generated directly from that graph with RevenueBase SmartSearch, the same natural-language company search every RevenueBase user has: describe a market in plain words, get the companies that match, and add verified emails and direct dials for the people at them. It is the same data that powers RevenueBase's B2B data products, and a free account includes 500 credits to start. How these lists are built and judged.
More company lists
- All company lists
- Lists by location
- Lists A-Z
- New lists
- Genetic disorder organizations based in the United Kingdom
- AI companies based in the United States
- Cybersecurity companies based in the United States
- Manufacturing companies based in the United States
- Media companies based in the United States
- Oil and gas companies based in the United States
Company intelligence · public preview
Top 25 genetic disorder organizations based in the United States
Find companies in any niche.
Describe the businesses you want in your own words. RevenueBase SmartSearch matches company descriptions by meaning.
RevenueBase records 153 matching company records for genetic disorder organizations based in the United States, with 1,621 tracked contacts and 633 verified work emails.
This public preview shows 25 selected records ordered by tracked contacts. RevenueBase SmartSearch finds company descriptions that match by meaning at Exact. Snapshot: September 19, 2026.
RevenueBase compiles business descriptions for niche-company discovery; each row shows a recorded excerpt where available. Adapt this search to find the companies and contacts you want.
Top 25 genetic disorder organizations based in the United States
The public list shows selected company records with contact and verified-email coverage. Reported employee bands provide separate company-size context.
| # | Company | Headquarters on record | Reported employees | RevenueBase SmartSearch | Tracked contacts |
|---|---|---|---|---|---|
| 1 | TGENtgen.org HQ: Phoenix, AZ, United StatesReported employees: 201-500 | Phoenix, AZ, United States | 201-500 | Exact match | 372 contacts → |
“TGen, a part of City of Hope, is a non-profit 501(c)(3) organization focused on developing earlier diagnostics and smarter treatments.” Recorded description excerpt · September 19, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 2 |  Greenwood Genetic Centerggc.orgHQ: Greenwood, SC, United StatesReported employees: 51-200 | Greenwood, SC, United States | 51-200 | Exact match | 177 contacts → |
“For 50 years, the Greenwood Genetic Center has provided clinical genetic services, diagnostic laboratory testing, educational programs and resources, and medical genetics research…” Recorded description excerpt · September 19, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 3 | Clinic For Special Childrenclinicforspecialchildren.org HQ: Gordonville, PA, United StatesReported employees: 11-50 | Gordonville, PA, United States | 11-50 | Exact match | 107 contacts → |
“The Clinic for Special Children was established in 1989 as a non-profit medical home for Amish and Mennonite children and adults with rare genetic disorders.” Recorded description excerpt · September 19, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 4 | Genome Medicalgenomemedical.com HQ: South San Francisco, CA, United StatesReported employees: 51-200 | South San Francisco, CA, United States | 51-200 | Exact match | 84 contacts → |
“Our mission is to bridge critical gaps in access, ensuring that individuals and families affected by rare conditions receive the expert guidance they need.” Recorded description excerpt · September 19, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 5 |  ACMGacmg.netHQ: Bethesda, MD, United StatesReported employees: 51-200 | Bethesda, MD, United States | 51-200 | Exact match | 52 contacts → |
“Founded in 1991, the American College of Medical Genetics and Genomics (ACMG) is the only nationally recognized medical society dedicated to improving health through the clinical…” Recorded description excerpt · September 19, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 6 | Genetics Society Of Americagenetics-gsa.org HQ: Bethesda, MD, United StatesReported employees: 11-50 | Bethesda, MD, United States | 11-50 | Exact match | 51 contacts → |
“The mission of the Genetics Society of America (GSA) is to deepen our understanding of the living world by advancing the field of genetics.” Recorded description excerpt · September 19, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 7 | Force Facing OUR Risk Of Cancer Empoweredfacingourrisk.org HQ: Tampa, FL, United StatesReported employees: 11-50 | Tampa, FL, United States | 11-50 | Exact match | 50 contacts → |
“FORCE Facing Our Risk of Cancer Empowered is a national nonprofit organization dedicated to improving the lives of the millions of individuals and families facing hereditary…” Recorded description excerpt · September 19, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 8 | HQ: Bethesda, MD, United StatesReported employees: 11-50 | Bethesda, MD, United States | 11-50 | Exact match | 45 contacts → |
“The American Society of Human Genetics (ASHG), founded in 1948, is the primary professional membership organization for human genetics specialists worldwide.” Recorded description excerpt · September 19, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 9 | Rare Genomics Instituteraregenomics.org HQ: Downey, CA, United StatesReported employees: 51-200 | Downey, CA, United States | 51-200 | Exact match | 31 contacts → |
“Rare Genomics Institute (RG) was founded in 2011 to fill the health care gap for undiagnosed rare disease patients and supporting research in rare diseases.” Recorded description excerpt · September 19, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 10 | Genetic Alliancegeneticalliance.org HQ: Washington, DC, United StatesReported employees: 11-50 | Washington, DC, United States | 11-50 | Exact match | 30 contacts → |
“Genetic Alliance is the world’s leading nonprofit health advocacy organization committed to transforming health through genetics and promoting an environment of openness centered…” Recorded description excerpt · September 19, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 11 | Jscreenjscreen.org HQ: Atlanta, GA, United StatesReported employees: 11-50 | Atlanta, GA, United States | 11-50 | Exact match | 28 contacts → |
“A Community-Based Public Health Initiative Dedicated to Preventing Genetic Diseases and Promoting Healthy Families.” Recorded description excerpt · September 19, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 12 | Genetic Support Foundationgeneticsupportfoundation.org HQ: Olympia, WA, United StatesReported employees: 11-50 | Olympia, WA, United States | 11-50 | Exact match | 21 contacts → |
“OUR MISSION To improve the quality of healthcare by providing up-to-date, objective genetic information to patients, providers, and healthcare organizations, supporting those in…” Recorded description excerpt · September 19, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 13 | Histiocytosis Associationhistio.org HQ: Pitman, NJ, United StatesReported employees: 1-10 | Pitman, NJ, United States | 1-10 | Exact match | 15 contacts → |
“The Histiocytosis Association is a global nonprofit organization dedicated to addressing the unique needs of patients and families dealing with the effects of histiocytic…” Recorded description excerpt · September 19, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 14 | Project 8p Foundationproject8p.org HQ: New York, NY, United StatesReported employees: 1-10 | New York, NY, United States | 1-10 | Exact match | 12 contacts → |
“With 400 million affected with a rare disease, we represent a critical chromosome disorder that has a serious neurological effect that can help give us insight into common…” Recorded description excerpt · September 19, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 15 | Dup15q Alliancedup15q.org HQ: Matthews, NC, United StatesReported employees: 1-10 | Matthews, NC, United States | 1-10 | Exact match | 11 contacts → |
“Dup15q Alliance provides family support and promoted awareness, research and targeted treatments for chromosome 15q11.2-13.1 duplication syndrome.” Recorded description excerpt · September 19, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 16 | Curegrin Foundationcuregrin.org HQ: Boulder, CO, United StatesReported employees: 1-10 | Boulder, CO, United States | 1-10 | Exact match | 11 contacts → |
“CureGRIN Foundation is a global, parent-led organization dedicated to improving the lives of individuals and families affected by GRI Disorders (GRIA, GRID, GRIK, and GRIN).” Recorded description excerpt · September 19, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 17 | The Vision Of Children Foundationvisionofchildren.org HQ: San Diego, CA, United StatesReported employees: 1-10 | San Diego, CA, United States | 1-10 | Exact match | 11 contacts → |
“For more than 30 years, Vision of Children has been at the forefront of unlocking the secrets to cures for genetic eye disorders.” Recorded description excerpt · September 19, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 18 | Everyone Medicineseveryonemedicines.com HQ: Boston, MA, United StatesReported employees: 1-10 | Boston, MA, United States | 1-10 | Exact match | 10 contacts → |
“EveryONE Medicines is committed to developing individualized precision medicines targeting genetic variants causing fatal, neurodegenerative diseases unique to just a few or even…” Recorded description excerpt · September 19, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 19 | Lillestol Research LLClillestolresearch.com HQ: Fargo, ND, United StatesReported employees: 11-50 | Fargo, ND, United States | 11-50 | Exact match | 9 contacts → |
“Lillestol Research invites you to participate in genetic-based research aimed at understanding, preventing, and curing the diseases that affect your family.” Recorded description excerpt · September 19, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 20 |  3xgenetics3xgenetics.comHQ: Worcester, MA, United StatesReported employees: 1-10 | Worcester, MA, United States | 1-10 | Exact match | 9 contacts → |
“Accelerating Genetic Disease Diagnosis via Education and Testing.” Recorded description excerpt · September 19, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 21 |  Center For Human Genetics, INCchginc.orgHQ: Cambridge, MA, United StatesReported employees: 11-50 | Cambridge, MA, United States | 11-50 | Exact match | 9 contacts → |
“The non-profit Center for Human Genetics, Inc.” Recorded description excerpt · September 19, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 22 | HQ: Boston, MA, United StatesReported employees: 1-10 | Boston, MA, United States | 1-10 | Exact match | 9 contacts → |
“National Tay-Sachs & Allied Diseases Association (NTSAD) leads the worldwide fight to treat and cure Tay-Sachs, Canavan, GM1, and Sandhoff diseases by driving research, forging…” Recorded description excerpt · September 19, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 23 |  Advocate Geneticsadvocategenetics.comHQ: Elk Grove, CA, United StatesReported employees: 1-10 | Elk Grove, CA, United States | 1-10 | Exact match | 9 contacts → |
“We love to help individuals and couples who have genetic questions while considering fertility treatment.” Recorded description excerpt · September 19, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 24 | Cure Gm1 Foundationcuregm1.org HQ: Albany, CA, United StatesReported employees: 1-10 | Albany, CA, United States | 1-10 | Exact match | 8 contacts → |
“The CURE GM1 FOUNDATION’s mission is to fund research for the benefit of all those who suffer from GM1 gangliosidosis.” Recorded description excerpt · September 19, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 25 | The Genesis Foundation For Childrenthegenesisfoundation.org HQ: Boston, MA, United StatesReported employees: 1-10 | Boston, MA, United States | 1-10 | Exact match | 8 contacts → |
“The Genesis Foundation for Children provides funding for the diagnosis and compassionate, coordinated care of children born with genetic disorders, rare diseases, and disabilities.” Recorded description excerpt · September 19, 2026Open company data in RevenueBase ↗Free signup required. | |||||
Showing 25 of 153 company matches
Build a targeted audience, find relevant contacts and export available records to your workflow.
Free signup · 500 credits · limited free results
Genetic disorder organizations: dataset insights
September 19, 2026These summaries describe recorded coverage in this saved dataset. This page is derived from saved source records; per-contact mobile coverage and email-recency results are not established by this snapshot.
Reported company sizes
153 records in the displayed employee bands.
0 matching records are outside the displayed bands or do not have a displayed size. Bars show shares of the displayed bands.
Email recency for this list is measured worldwide rather than for United States, so it is reported there. Company counts and contact totals on this page are exact for United States, over 153 companies.
How this company list was built
Describe a niche in your own words: companies installing commercial solar, or manufacturers of sustainable packaging. RevenueBase SmartSearch finds companies whose compiled business descriptions match by meaning. This list is one saved example to adapt.
Where the company descriptions come from
RevenueBase compiles company information from public sources, including company websites and public professional profiles such as LinkedIn, alongside information supplied by companies. The short recorded excerpt shown here is separate from the complete business description used for matching; individual source URLs and collection dates are not provided in this public snapshot.
RevenueBase SmartSearch matching settings
- Exact
- Closest fits to the business described.
- Similar
- Similar businesses with a wider range of fits.
- Related
- Related businesses in and around the category.
- Broad
- A broader set of businesses connected to the description.
RevenueBase SmartSearch · Exact match identifies inclusion in this search's closest semantic matching setting. It is not a per-company confidence score, a literal keyword match, or a quality endorsement.
Selection, ordering and scope
The public list shows selected company records with contact and verified-email coverage. Reported employee bands provide separate company-size context.
This page is derived from saved source records; per-contact mobile coverage and email-recency results are not established by this snapshot.
Recorded company descriptions support research; check company websites for current services. The selected preview is ordered by tracked contacts and is not a list of the best service providers.
Snapshot: September 19, 2026.
RevenueBase is a B2B data infrastructure company. Its September 3, 2026 published methodology describes a graph of 60 million companies and 398.9 million professional contacts; these platform figures differ from this page's totals. Published methodology ↗
Questions about this company list
What does Exact match mean for genetic disorder organizations?
The separate RevenueBase SmartSearch column identifies inclusion at the closest semantic matching preset. It is not a literal keyword match, a per-company confidence score or a quality endorsement. Changing the search form opens a new search in RevenueBase; it does not reclassify these saved rows.
How many genetic disorder organizations did RevenueBase find based in the United States?
The saved snapshot records 153 matching company records, 1,621 tracked contacts and 633 verified emails. The public preview displays 25 selected records.
Where do the company descriptions come from?
RevenueBase compiles company information from public sources, including company websites and public professional profiles such as LinkedIn, alongside information supplied by companies. The short recorded excerpt shown here is separate from the complete business description used for matching; individual source URLs and collection dates are not provided in this public snapshot.
How are the public companies ordered?
The selected public records are ordered by contacts tracked in RevenueBase, highest first. Contact coverage is a prospecting measure, not an assessment of the company's services or quality.
How can I get contact information?
Select a company's contact count to open its filtered contacts in RevenueBase. Free signup is required and includes 500 credits and limited free results. Verified emails, direct dials and mobile numbers depend on available coverage.
How current is this list?
Snapshot: September 19, 2026. Review each company's website for current services and locations. A recorded business description does not establish that every company offers every service named in the search.
What do headquarters and employee bands mean?
These are recorded company-level fields, rather than a map of every branch or a count of specialists. Missing headquarters or employee bands are labeled; older records may show a location separately from recorded headquarters.
Build your next target company list
Adapt this niche search and work with available contacts in RevenueBase.
Related lists
Genetic disorder organizations by geography
Cite this list
RevenueBase Data Team. Top 25 genetic disorder organizations based in the United States. Snapshot: September 19, 2026. https://revenuebase.ai/companies/genetic-disorder-organizations/united-states.
This is a selected public preview of saved company records, rather than an independently verified census. Open the source page ↗
More company lists
- All company lists
- Lists by location
- Lists A-Z
- New lists
- Genetic disorder organizations based in the United Kingdom
- AI companies based in the United States
- Cybersecurity companies based in the United States
- Manufacturing companies based in the United States
- Media companies based in the United States
- Oil and gas companies based in the United States
Company intelligence · public preview
Top 25 genetic disorder organizations based in the United States
RevenueBase records 153 matching company records for genetic disorder organizations based in the United States, with 1,621 tracked contacts and 633 verified work emails.
This public preview shows 25 selected records ordered by tracked contacts. RevenueBase SmartSearch finds company descriptions that match by meaning at Exact. Snapshot: September 19, 2026.
RevenueBase compiles business descriptions for niche-company discovery; each row shows a recorded excerpt where available. Adapt this search to find the companies and contacts you want.
Top 25 genetic disorder organizations based in the United States
The public list shows selected company records with contact and verified-email coverage. Reported employee bands provide separate company-size context.
| # | Company | Headquarters on record | Reported employees | RevenueBase SmartSearch | Tracked contacts |
|---|---|---|---|---|---|
| 1 | TGENtgen.org HQ: Phoenix, AZ, United StatesReported employees: 201-500 | Phoenix, AZ, United States | 201-500 | Exact match | 372 contacts → |
“TGen, a part of City of Hope, is a non-profit 501(c)(3) organization focused on developing earlier diagnostics and smarter treatments.” Recorded description excerpt · September 19, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 2 | Greenwood Genetic Centerggc.org HQ: Greenwood, SC, United StatesReported employees: 51-200 | Greenwood, SC, United States | 51-200 | Exact match | 177 contacts → |
“For 50 years, the Greenwood Genetic Center has provided clinical genetic services, diagnostic laboratory testing, educational programs and resources, and medical genetics research…” Recorded description excerpt · September 19, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 3 | Clinic For Special Childrenclinicforspecialchildren.org HQ: Gordonville, PA, United StatesReported employees: 11-50 | Gordonville, PA, United States | 11-50 | Exact match | 107 contacts → |
“The Clinic for Special Children was established in 1989 as a non-profit medical home for Amish and Mennonite children and adults with rare genetic disorders.” Recorded description excerpt · September 19, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 4 | Genome Medicalgenomemedical.com HQ: South San Francisco, CA, United StatesReported employees: 51-200 | South San Francisco, CA, United States | 51-200 | Exact match | 84 contacts → |
“Our mission is to bridge critical gaps in access, ensuring that individuals and families affected by rare conditions receive the expert guidance they need.” Recorded description excerpt · September 19, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 5 | ACMGacmg.net HQ: Bethesda, MD, United StatesReported employees: 51-200 | Bethesda, MD, United States | 51-200 | Exact match | 52 contacts → |
“Founded in 1991, the American College of Medical Genetics and Genomics (ACMG) is the only nationally recognized medical society dedicated to improving health through the clinical…” Recorded description excerpt · September 19, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 6 | Genetics Society Of Americagenetics-gsa.org HQ: Bethesda, MD, United StatesReported employees: 11-50 | Bethesda, MD, United States | 11-50 | Exact match | 51 contacts → |
“The mission of the Genetics Society of America (GSA) is to deepen our understanding of the living world by advancing the field of genetics.” Recorded description excerpt · September 19, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 7 | Force Facing OUR Risk Of Cancer Empoweredfacingourrisk.org HQ: Tampa, FL, United StatesReported employees: 11-50 | Tampa, FL, United States | 11-50 | Exact match | 50 contacts → |
“FORCE Facing Our Risk of Cancer Empowered is a national nonprofit organization dedicated to improving the lives of the millions of individuals and families facing hereditary…” Recorded description excerpt · September 19, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 8 | HQ: Bethesda, MD, United StatesReported employees: 11-50 | Bethesda, MD, United States | 11-50 | Exact match | 45 contacts → |
“The American Society of Human Genetics (ASHG), founded in 1948, is the primary professional membership organization for human genetics specialists worldwide.” Recorded description excerpt · September 19, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 9 | Rare Genomics Instituteraregenomics.org HQ: Downey, CA, United StatesReported employees: 51-200 | Downey, CA, United States | 51-200 | Exact match | 31 contacts → |
“Rare Genomics Institute (RG) was founded in 2011 to fill the health care gap for undiagnosed rare disease patients and supporting research in rare diseases.” Recorded description excerpt · September 19, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 10 | Genetic Alliancegeneticalliance.org HQ: Washington, DC, United StatesReported employees: 11-50 | Washington, DC, United States | 11-50 | Exact match | 30 contacts → |
“Genetic Alliance is the world’s leading nonprofit health advocacy organization committed to transforming health through genetics and promoting an environment of openness centered…” Recorded description excerpt · September 19, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 11 | Jscreenjscreen.org HQ: Atlanta, GA, United StatesReported employees: 11-50 | Atlanta, GA, United States | 11-50 | Exact match | 28 contacts → |
“A Community-Based Public Health Initiative Dedicated to Preventing Genetic Diseases and Promoting Healthy Families.” Recorded description excerpt · September 19, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 12 | Genetic Support Foundationgeneticsupportfoundation.org HQ: Olympia, WA, United StatesReported employees: 11-50 | Olympia, WA, United States | 11-50 | Exact match | 21 contacts → |
“OUR MISSION To improve the quality of healthcare by providing up-to-date, objective genetic information to patients, providers, and healthcare organizations, supporting those in…” Recorded description excerpt · September 19, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 13 | Histiocytosis Associationhistio.org HQ: Pitman, NJ, United StatesReported employees: 1-10 | Pitman, NJ, United States | 1-10 | Exact match | 15 contacts → |
“The Histiocytosis Association is a global nonprofit organization dedicated to addressing the unique needs of patients and families dealing with the effects of histiocytic…” Recorded description excerpt · September 19, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 14 | Project 8p Foundationproject8p.org HQ: New York, NY, United StatesReported employees: 1-10 | New York, NY, United States | 1-10 | Exact match | 12 contacts → |
“With 400 million affected with a rare disease, we represent a critical chromosome disorder that has a serious neurological effect that can help give us insight into common…” Recorded description excerpt · September 19, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 15 | Dup15q Alliancedup15q.org HQ: Matthews, NC, United StatesReported employees: 1-10 | Matthews, NC, United States | 1-10 | Exact match | 11 contacts → |
“Dup15q Alliance provides family support and promoted awareness, research and targeted treatments for chromosome 15q11.2-13.1 duplication syndrome.” Recorded description excerpt · September 19, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 16 | Curegrin Foundationcuregrin.org HQ: Boulder, CO, United StatesReported employees: 1-10 | Boulder, CO, United States | 1-10 | Exact match | 11 contacts → |
“CureGRIN Foundation is a global, parent-led organization dedicated to improving the lives of individuals and families affected by GRI Disorders (GRIA, GRID, GRIK, and GRIN).” Recorded description excerpt · September 19, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 17 | The Vision Of Children Foundationvisionofchildren.org HQ: San Diego, CA, United StatesReported employees: 1-10 | San Diego, CA, United States | 1-10 | Exact match | 11 contacts → |
“For more than 30 years, Vision of Children has been at the forefront of unlocking the secrets to cures for genetic eye disorders.” Recorded description excerpt · September 19, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 18 | Everyone Medicineseveryonemedicines.com HQ: Boston, MA, United StatesReported employees: 1-10 | Boston, MA, United States | 1-10 | Exact match | 10 contacts → |
“EveryONE Medicines is committed to developing individualized precision medicines targeting genetic variants causing fatal, neurodegenerative diseases unique to just a few or even…” Recorded description excerpt · September 19, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 19 | Lillestol Research LLClillestolresearch.com HQ: Fargo, ND, United StatesReported employees: 11-50 | Fargo, ND, United States | 11-50 | Exact match | 9 contacts → |
“Lillestol Research invites you to participate in genetic-based research aimed at understanding, preventing, and curing the diseases that affect your family.” Recorded description excerpt · September 19, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 20 | 3xgenetics3xgenetics.com HQ: Worcester, MA, United StatesReported employees: 1-10 | Worcester, MA, United States | 1-10 | Exact match | 9 contacts → |
“Accelerating Genetic Disease Diagnosis via Education and Testing.” Recorded description excerpt · September 19, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 21 | Center For Human Genetics, INCchginc.org HQ: Cambridge, MA, United StatesReported employees: 11-50 | Cambridge, MA, United States | 11-50 | Exact match | 9 contacts → |
“The non-profit Center for Human Genetics, Inc.” Recorded description excerpt · September 19, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 22 | HQ: Boston, MA, United StatesReported employees: 1-10 | Boston, MA, United States | 1-10 | Exact match | 9 contacts → |
“National Tay-Sachs & Allied Diseases Association (NTSAD) leads the worldwide fight to treat and cure Tay-Sachs, Canavan, GM1, and Sandhoff diseases by driving research, forging…” Recorded description excerpt · September 19, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 23 | Advocate Geneticsadvocategenetics.com HQ: Elk Grove, CA, United StatesReported employees: 1-10 | Elk Grove, CA, United States | 1-10 | Exact match | 9 contacts → |
“We love to help individuals and couples who have genetic questions while considering fertility treatment.” Recorded description excerpt · September 19, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 24 | Cure Gm1 Foundationcuregm1.org HQ: Albany, CA, United StatesReported employees: 1-10 | Albany, CA, United States | 1-10 | Exact match | 8 contacts → |
“The CURE GM1 FOUNDATION’s mission is to fund research for the benefit of all those who suffer from GM1 gangliosidosis.” Recorded description excerpt · September 19, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 25 | The Genesis Foundation For Childrenthegenesisfoundation.org HQ: Boston, MA, United StatesReported employees: 1-10 | Boston, MA, United States | 1-10 | Exact match | 8 contacts → |
“The Genesis Foundation for Children provides funding for the diagnosis and compassionate, coordinated care of children born with genetic disorders, rare diseases, and disabilities.” Recorded description excerpt · September 19, 2026Open company data in RevenueBase ↗Free signup required. | |||||
Showing 25 of 153 company matches
Build a targeted audience, find relevant contacts and export available records to your workflow.
Free signup · 500 credits · limited free results
Genetic disorder organizations: dataset insights
September 19, 2026These summaries describe recorded coverage in this saved dataset. This page is derived from saved source records; per-contact mobile coverage and email-recency results are not established by this snapshot.
Reported company sizes
153 records in the displayed employee bands.
0 matching records are outside the displayed bands or do not have a displayed size. Bars show shares of the displayed bands.
Email recency for this list is measured worldwide rather than for United States, so it is reported there. Company counts and contact totals on this page are exact for United States, over 153 companies.
How this company list was built
Describe a niche in your own words: companies installing commercial solar, or manufacturers of sustainable packaging. RevenueBase SmartSearch finds companies whose compiled business descriptions match by meaning. This list is one saved example to adapt.
Where the company descriptions come from
RevenueBase compiles company information from public sources, including company websites and public professional profiles such as LinkedIn, alongside information supplied by companies. The short recorded excerpt shown here is separate from the complete business description used for matching; individual source URLs and collection dates are not provided in this public snapshot.
RevenueBase SmartSearch matching settings
- Exact
- Closest fits to the business described.
- Similar
- Similar businesses with a wider range of fits.
- Related
- Related businesses in and around the category.
- Broad
- A broader set of businesses connected to the description.
RevenueBase SmartSearch · Exact match identifies inclusion in this search's closest semantic matching setting. It is not a per-company confidence score, a literal keyword match, or a quality endorsement.
Selection, ordering and scope
The public list shows selected company records with contact and verified-email coverage. Reported employee bands provide separate company-size context.
This page is derived from saved source records; per-contact mobile coverage and email-recency results are not established by this snapshot.
Recorded company descriptions support research; check company websites for current services. The selected preview is ordered by tracked contacts and is not a list of the best service providers.
Snapshot: September 19, 2026.
RevenueBase is a B2B data infrastructure company. Its September 3, 2026 published methodology describes a graph of 60 million companies and 398.9 million professional contacts; these platform figures differ from this page's totals. Published methodology ↗
Questions about this company list
What does Exact match mean for genetic disorder organizations?
The separate RevenueBase SmartSearch column identifies inclusion at the closest semantic matching preset. It is not a literal keyword match, a per-company confidence score or a quality endorsement. Changing the search form opens a new search in RevenueBase; it does not reclassify these saved rows.
How many genetic disorder organizations did RevenueBase find based in the United States?
The saved snapshot records 153 matching company records, 1,621 tracked contacts and 633 verified emails. The public preview displays 25 selected records.
Where do the company descriptions come from?
RevenueBase compiles company information from public sources, including company websites and public professional profiles such as LinkedIn, alongside information supplied by companies. The short recorded excerpt shown here is separate from the complete business description used for matching; individual source URLs and collection dates are not provided in this public snapshot.
How are the public companies ordered?
The selected public records are ordered by contacts tracked in RevenueBase, highest first. Contact coverage is a prospecting measure, not an assessment of the company's services or quality.
How can I get contact information?
Select a company's contact count to open its filtered contacts in RevenueBase. Free signup is required and includes 500 credits and limited free results. Verified emails, direct dials and mobile numbers depend on available coverage.
How current is this list?
Snapshot: September 19, 2026. Review each company's website for current services and locations. A recorded business description does not establish that every company offers every service named in the search.
What do headquarters and employee bands mean?
These are recorded company-level fields, rather than a map of every branch or a count of specialists. Missing headquarters or employee bands are labeled; older records may show a location separately from recorded headquarters.
Build your next target company list
Adapt this niche search and work with available contacts in RevenueBase.
Related lists
Genetic disorder organizations by geography
Cite this list
RevenueBase Data Team. Top 25 genetic disorder organizations based in the United States. Snapshot: September 19, 2026. https://revenuebase.ai/companies/genetic-disorder-organizations/united-states.
This is a selected public preview of saved company records, rather than an independently verified census. Open the source page ↗
More company lists
- All company lists
- Lists by location
- Lists A-Z
- New lists
- Genetic disorder organizations based in the United Kingdom
- AI companies based in the United States
- Cybersecurity companies based in the United States
- Manufacturing companies based in the United States
- Media companies based in the United States
- Oil and gas companies based in the United States