Company lists · Data refreshed September 2026

Top 12 Genetic disorder organizations based in the United Kingdom

RevenueBase identified 29 company matches for genetic disorder organizations associated with the United Kingdom as of September 2026 and tracks 369 professional contacts across them, including 63 with verified work emails. London is the largest hub.

This list covers company matches for genetic disorder organizations associated with the United Kingdom, found by RevenueBase SmartSearch using the meaning of business descriptions in its company graph at Exact. Ranked by professionals tracked, largest first. Rows show recorded descriptions where available, Exact search membership and the snapshot date. Data refreshed September 19, 2026.

Published by RevenueBase, a B2B data infrastructure company. This list was built with RevenueBase SmartSearch, the natural-language company search RevenueBase customers use to build their own targeted lists and unlock verified emails and direct dials at the companies on them. How these lists are built and judged.

How to read this list RevenueBase SmartSearch · Exact Recorded Sep 19, 2026 How this list was built
29Companies
369Contacts tracked
63Verified emails
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The 12 largest genetic disorder organizations based in the United Kingdom

Ranked by team size
Top 12 of 29 company matches for genetic disorder organizations based in the United Kingdom, ordered by professional contacts tracked in RevenueBase, largest first. Recorded Sep 19, 2026. The RevenueBase SmartSearch column shows Exact match membership in this saved search. Click a contact count to view that company's people. Totals use company locations recorded by RevenueBase; the displayed preview is a smaller selection.
#CompanyRevenueBase SmartSearchHeadquartersEmployeesContacts
1Exact matchCambridge, United KingdomHQ recorded Sep 19, 20261-1024 contacts →

Exact match

“The AKU Society is a patient group that helps people with AKU, a rare genetic disease, and funds research to find a cure.”

Recorded in the RevenueBase company graph · Sep 19, 2026 · View company records in RevenueBase
2Exact matchBristol, United KingdomHQ recorded Sep 19, 202611-5019 contacts →

Exact match

“Genetic Alliance UK is the largest alliance of organisations supporting people with genetic, rare and undiagnosed conditions in the UK.”

Recorded in the RevenueBase company graph · Sep 19, 2026 · View company records in RevenueBase
3Exact matchElstree, United KingdomHQ recorded Sep 19, 20261-1019 contacts →

Exact match

“Jnetics was established to raise awareness of Jewish genetic disorders and to help anyone affected and at risk to access the best information, services and support available.”

Recorded in the RevenueBase company graph · Sep 19, 2026 · View company records in RevenueBase
4Exact matchOxted, United KingdomHQ recorded Sep 19, 20261-1015 contacts →

Exact match

“Each year across the UK hundreds of babies are born with a rare chromosome disorder, meaning they have extra, missing or rearranged genetic material.”

Recorded in the RevenueBase company graph · Sep 19, 2026 · View company records in RevenueBase
5Exact matchPinchbeck, United KingdomHQ recorded Sep 19, 20261-1011 contacts →

Exact match

“We provide support to people affected by genetic haemochromatosis (iron overload) by promoting public awareness of the condition, encouraging and supporting medical research and…”

Recorded in the RevenueBase company graph · Sep 19, 2026 · View company records in RevenueBase
6Exact matchWales, United KingdomHQ recorded Sep 19, 20261-107 contacts →

Exact match

“Metabolic Support UK is the leading patient organisation for Inherited Metabolic Disorders, supporting thousands of families worldwide.”

Recorded in the RevenueBase company graph · Sep 19, 2026 · View company records in RevenueBase
7Exact matchNewcastle Upon Tyne, United KingdomHQ recorded Sep 19, 20261-104 contacts →

Exact match

“UK charity focusing on the support, understanding and management of rare growth conditions to improve the lives of children, adults and families affected.”

Recorded in the RevenueBase company graph · Sep 19, 2026 · View company records in RevenueBase
8Exact matchLondon, United KingdomHQ recorded Sep 19, 20261-104 contacts →

Exact match

“Gene People is a charity here to support anyone with a genetic condition and their loved ones, and the patient organisations and support groups that work with them.”

Recorded in the RevenueBase company graph · Sep 19, 2026 · View company records in RevenueBase
9Exact matchLondon, United KingdomHQ recorded Sep 19, 20261-104 contacts →

Exact match

“A patient group set up to improve the lives of patients, parents and carers of all ages, in the United Kingdom and Ireland, who are affected by PTEN genetic alterations, PTEN…”

Recorded in the RevenueBase company graph · Sep 19, 2026 · View company records in RevenueBase
10Exact matchGlasgow, United KingdomHQ recorded Sep 19, 20261-103 contacts →

Exact match

“SOFT UK was founded in 1990 by Christine Rose and Jenny Robbins.”

Recorded in the RevenueBase company graph · Sep 19, 2026 · View company records in RevenueBase
11Exact matchLondon, United KingdomHQ recorded Sep 19, 20261-103 contacts →

Exact match

“Neuroacanthocytosis (NA syndromes) refers to 2 genetic disorders (chorea-acanthocytosis and McLeod syndrome) characterised by misshapen, spiny red blood cells (acanthocytosis) and…”

Recorded in the RevenueBase company graph · Sep 19, 2026 · View company records in RevenueBase
12Exact matchWimborne, United KingdomHQ recorded Sep 19, 20261-101 contacts →

Exact match

“CHAMP1 UK is a charity created for parents of children with developmental delay, hypotonia, cerebral palsy, autism, and epilepsy among many other diagnoses a result of a change in…”

Recorded in the RevenueBase company graph · Sep 19, 2026 · View company records in RevenueBase

Showing 12 of 29 genetic disorder organizations based in the United Kingdom

See the full list, filter by size, metro and specialty, and access 63 tracked professional contacts with verified work emails. Direct dials are available where recorded.

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Genetic disorder organizations based in the United Kingdom at a glance

As of Sep 19, 2026
17.1%Verified-email coverage
12.7Average contacts per company
1-10Median size (employees)
44.8%Largest-city concentration · London
Sep 19, 2026Page data refreshed

Companies by employee count

1-10
21
11-50
4
51-200
2
201-500
1
501-1,000
1

Email recency for this list is measured worldwide rather than for United Kingdom, so it is reported there. Company counts and contact totals on this page are exact for United Kingdom, over 29 companies.

How this list was built

The recorded descriptions help you assess these company matches. Check a company’s website for its current services and locations.

Source
The RevenueBase company graph: 60 million companies and 398.9 million professional contacts resolved from primary sources, queried with RevenueBase SmartSearch, the natural-language company search available to every RevenueBase user.
What qualifies
Company records associated with the United Kingdom whose business descriptions match “genetic disorder organizations” by meaning at the Exact setting. Descriptions are compiled in the RevenueBase company graph from public websites, profiles and company information where available; they are not guaranteed quotations from the company's website.
RevenueBase SmartSearch
Describe a niche company in your own words to find businesses by meaning. Exact, Similar, Related and Broad control the breadth of RevenueBase SmartSearch. This saved list uses Exact. Each row's Exact match badge shows inclusion in that search, not an individual score or a service-quality judgment.
Public preview
The public preview omits records without a verified work email. Where headquarters information is recorded, preview rows are also filtered to this page’s location. Dataset totals and geographic summaries describe the full matched records before these preview filters.
Match quality
RevenueBase's August 25, 2026 study assessed 4,198 description/company pairs across matching settings. The publisher reports 86% good or better at Exact. This evaluates the method across queries; it does not audit this individual list. Recorded company descriptions, where available, help you judge each match yourself. Read the full methodology: how the lists are built and what the study measures.
Ranking
Team size, largest first: companies are ordered by the number of professionals RevenueBase tracks at each one. Employee ranges shown are reported bands, for context.
Verification
Every displayed company carries at least one verified work email. RevenueBase tracks 63 professional contacts with verified work emails across the full matched dataset. Contacts re-verify on a rolling cadence, and each contact's own verification date is shown inside RevenueBase.
Refresh
This page's figures were pulled from the company graph on September 19, 2026. Lists refresh periodically as the graph is re-checked.
Record context
Company records and descriptions can change. Check the company's website for its current services and locations.

Frequently asked

What is RevenueBase SmartSearch?

RevenueBase SmartSearch finds niche companies by the meaning of their business descriptions in the RevenueBase company graph. Exact, Similar, Related and Broad control how closely companies must fit your description. This list uses Exact for “genetic disorder organizations”; each Exact match badge shows search membership, not an individual similarity or quality score.

How many genetic disorder organizations are there based in the United Kingdom?

RevenueBase identified 29 company matches for genetic disorder organizations associated with the United Kingdom as of September 2026, using the meaning of business descriptions at Exact. This is the recorded matched set in the RevenueBase company graph.

What is the largest company on this list?

AKU Society tops the displayed preview by professional contacts tracked in RevenueBase. Recorded headquarters appear in the company rows.

Which city has the most genetic disorder organizations?

London leads with 13 company records, followed by Oxford (2) and Birmingham (1).

How do I get contact information for these companies?

A free RevenueBase account lets you run this exact search and work limited free results with 500 credits to start. Upgrading provides access to the 63 professional contacts with verified work emails tracked across these 29 companies; direct dials are available where recorded.

How current is this list?

The list refreshes periodically as the company graph is re-checked. This page's figures were pulled on September 19, 2026.

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About this data

RevenueBase is a B2B data infrastructure company. Its company graph covers 60 million companies and 398.9 million professional contacts, with emails verified on a rolling cadence rather than scraped once and left to decay. These company lists are generated directly from that graph with RevenueBase SmartSearch, the same natural-language company search every RevenueBase user has: describe a market in plain words, get the companies that match, and add verified emails and direct dials for the people at them. It is the same data that powers RevenueBase's B2B data products, and a free account includes 500 credits to start. How these lists are built and judged.