Company lists · Data refreshed November 2026

Top 25 Genetic disorder organizations worldwide

RevenueBase identified 507 company matches for genetic disorder organizations worldwide as of November 2026 and tracks 5,864 professional contacts across them, including 1,702 with verified work emails. The United States is the largest market and London the largest hub.

This list covers company matches for genetic disorder organizations worldwide, found by RevenueBase SmartSearch using the meaning of business descriptions in its company graph at Exact. Ranked by professionals tracked, largest first. Rows show recorded descriptions where available, Exact search membership and the snapshot date. Data refreshed November 6, 2026. Country and city lists for genetic disorder organizations follow the table.

Published by RevenueBase, a B2B data infrastructure company. This list was built with RevenueBase SmartSearch, the natural-language company search RevenueBase customers use to build their own targeted lists and unlock verified emails and direct dials at the companies on them. How these lists are built and judged.

How to read this list RevenueBase SmartSearch · Exact Recorded Nov 6, 2026 How this list was built
507Companies
5,864Contacts tracked
1,702Verified emails
Explore this list → Free signup · no credit card · 500 free credits

The 25 largest genetic disorder organizations worldwide

Ranked by team size
Top 25 of 507 company matches for genetic disorder organizations worldwide, ordered by professional contacts tracked in RevenueBase, largest first. Recorded Nov 6, 2026. The RevenueBase SmartSearch column shows Exact match membership in this saved search. Click a contact count to view that company's people. Totals use company locations recorded by RevenueBase; the displayed preview is a smaller selection.
#CompanyRevenueBase SmartSearchHeadquartersEmployeesContacts
1Exact matchEvry, FranceHQ recorded Nov 6, 2026201-500622 contacts →

Exact match

“L’AFM-Téléthon est une association de parents et de malades qui mène un combat sans relâche contre des maladies génétiques, rares et lourdement invalidantes.”

Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase
2Exact matchPhoenix, AZ, United StatesHQ recorded Nov 6, 2026201-500380 contacts →

Exact match

“TGen, a part of City of Hope, is a non-profit 501(c)(3) organization focused on developing earlier diagnostics and smarter treatments.”

Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase
3Exact matchÉvry, FranceHQ recorded Nov 6, 2026201-500310 contacts →

Exact match

“Généthon est un laboratoire à but non lucratif, créé et soutenu par l’AFM-Téléthon depuis 1990.”

Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase
4Exact matchParkville, United StatesHQ recorded Nov 6, 2026201-500195 contacts →

Exact match

“Victorian Clinical Genetics Services (VCGS) is a specialist prenatal, childhood and adult genetics service.”

Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase
5Exact matchGreenville, SC, United StatesHQ recorded Nov 6, 202651-200182 contacts →

Exact match

“For 50 years, the Greenwood Genetic Center has provided clinical genetic services, diagnostic laboratory testing, educational programs and resources, and medical genetics research…”

Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase
6Exact matchGordonville, PA, United StatesHQ recorded Nov 6, 202611-50113 contacts →

Exact match

“The Clinic for Special Children was established in 1989 as a non-profit medical home for Amish and Mennonite children and adults with rare genetic disorders.”

Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase
7Exact matchMunich, GermanyHQ recorded Nov 6, 2026201-50078 contacts →

Exact match

“The MGZ – Medical Genetics Center has been a key institution in human genetic healthcare in Germany since As an owner-operated center, we combine a patient clinics and an…”

Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase
8Exact matchSouth San Francisco, CA, United StatesHQ recorded Nov 6, 202651-20075 contacts →

Exact match

“Our mission is to bridge critical gaps in access, ensuring that individuals and families affected by rare conditions receive the expert guidance they need.”

Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase
9Exact matchTübingen, GermanyHQ recorded Nov 6, 202651-20065 contacts →

Exact match

“Seit 2010 unterstützen wir Patientinnen und Patienten, sowie Ärztinnen und Ärzte dabei, genetische Fragestellungen zu klären.”

Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase
10Exact matchTampa, FL, United StatesHQ recorded Nov 6, 202611-5054 contacts →

Exact match

“FORCE Facing Our Risk of Cancer Empowered is a national nonprofit organization dedicated to improving the lives of the millions of individuals and families facing hereditary…”

Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase
11Exact matchNeu-ulm, GermanyHQ recorded Nov 6, 202651-20053 contacts →

Exact match

“Als inhabergeführtes Familienunternehmen stellt das genetikum seit über 35 Jahren den Patienten in den Mittelpunkt.”

Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase
12Exact matchParis, FranceHQ recorded Nov 6, 202651-20052 contacts →

Exact match

“Référence au niveau européen dans le champ de la trisomie 21 et des déficiences intellectuelles d'origine génétique, l'Institut Jérôme Lejeune, créé et financé par la Fondation…”

Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase
13Exact matchBethesda, MD, United StatesHQ recorded Nov 6, 202651-20050 contacts →

Exact match

“Founded in 1991, the American College of Medical Genetics and Genomics (ACMG) is the only nationally recognized medical society dedicated to improving health through the clinical…”

Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase
14Exact matchBethesda, MD, United StatesHQ recorded Nov 6, 202611-5048 contacts →

Exact match

“The American Society of Human Genetics (ASHG), founded in 1948, is the primary professional membership organization for human genetics specialists worldwide.”

Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase
15Exact matchParis, FranceHQ recorded Nov 6, 202611-5043 contacts →

Exact match

“La Fondation Jérome Lejeune a pour mission la recherche de traitements pour la trisomie 21 et les autres déficiences intellectuelles d’origine génétique, le suivi médical et la…”

Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase
16Exact matchBangalore, IndiaHQ recorded Nov 6, 202651-20043 contacts →

Exact match

“Acquity Labs Pvt.”

Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase
17Exact matchBethesda, MD, United StatesHQ recorded Nov 6, 202611-5041 contacts →

Exact match

“The mission of the Genetics Society of America (GSA) is to deepen our understanding of the living world by advancing the field of genetics.”

Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase
18Exact matchWashington, DC, United StatesHQ recorded Nov 6, 202611-5032 contacts →

Exact match

“Genetic Alliance is the world’s leading nonprofit health advocacy organization committed to transforming health through genetics and promoting an environment of openness centered…”

Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase
19Exact matchDowney, CA, United StatesHQ recorded Nov 6, 202651-20029 contacts →

Exact match

“Rare Genomics Institute (RG) was founded in 2011 to fill the health care gap for undiagnosed rare disease patients and supporting research in rare diseases.”

Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase
20Exact matchAtlanta, GA, United StatesHQ recorded Nov 6, 202611-5029 contacts →

Exact match

“A Community-Based Public Health Initiative Dedicated to Preventing Genetic Diseases and Promoting Healthy Families.”

Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase
21Exact matchAmsterdam, NetherlandsHQ recorded Nov 6, 20261-1027 contacts →

Exact match

“Het kan iedereen overkomen en het is de dodelijkste ziekte onder kinderen in Nederland.”

Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase
22Exact matchCambridge, United KingdomHQ recorded Nov 6, 20261-1025 contacts →

Exact match

“The AKU Society is a patient group that helps people with AKU, a rare genetic disease, and funds research to find a cure.”

Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase
23Exact matchHoffman Estates, IL, United StatesHQ recorded Nov 6, 202611-5024 contacts →

Exact match

“Center for Health Services believes everyone deserves better health care and education.”

Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase
24Exact matchOlympia, WA, United StatesHQ recorded Nov 6, 202611-5023 contacts →

Exact match

“OUR MISSION To improve the quality of healthcare by providing up-to-date, objective genetic information to patients, providers, and healthcare organizations, supporting those in…”

Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase
25Exact matchBristol, United KingdomHQ recorded Nov 6, 202611-5023 contacts →

Exact match

“Genetic Alliance UK is the largest alliance of organisations supporting people with genetic, rare and undiagnosed conditions in the UK.”

Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase

Showing 25 of 507 genetic disorder organizations worldwide

See the full list, filter by size, metro and specialty, and access 1,702 tracked professional contacts with verified work emails. Direct dials are available where recorded.

Free signup · no credit card

View the full list →

Genetic disorder organizations worldwide at a glance

As of Nov 6, 2026
29.0%Verified-email coverage
11.6Average contacts per company
1-10Median size (employees)
2.8%Largest-city concentration · London
Nov 6, 2026Page data refreshed

Companies by employee count

1-10
329
11-50
108
51-200
41
201-500
19
501-1,000
6
10001+
1

Email recency is reported on each country list linked below.

How this list was built

The recorded descriptions help you assess these company matches. Check a company’s website for its current services and locations.

Source
The RevenueBase company graph: 60 million companies and 398.9 million professional contacts resolved from primary sources, queried with RevenueBase SmartSearch, the natural-language company search available to every RevenueBase user.
Coverage
Every country. Country and city lists for genetic disorder organizations are linked below.
What qualifies
Company records worldwide whose business descriptions match “genetic disorder organizations” by meaning at the Exact setting. Descriptions are compiled in the RevenueBase company graph from public websites, profiles and company information where available; they are not guaranteed quotations from the company's website.
RevenueBase SmartSearch
Describe a niche company in your own words to find businesses by meaning. Exact, Similar, Related and Broad control the breadth of RevenueBase SmartSearch. This saved list uses Exact. Each row's Exact match badge shows inclusion in that search, not an individual score or a service-quality judgment.
Public preview
The public preview omits records without a verified work email. Dataset totals and geographic summaries describe the full matched records before these preview filters.
Match quality
RevenueBase's August 25, 2026 study assessed 4,198 description/company pairs across matching settings. The publisher reports 86% good or better at Exact. This evaluates the method across queries; it does not audit this individual list. Recorded company descriptions, where available, help you judge each match yourself. Read the full methodology: how the lists are built and what the study measures.
Ranking
Team size, largest first: companies are ordered by the number of professionals RevenueBase tracks at each one. Employee ranges shown are reported bands, for context.
Verification
Every displayed company carries at least one verified work email. RevenueBase tracks 1,702 professional contacts with verified work emails across the full matched dataset. Contacts re-verify on a rolling cadence, and each contact's own verification date is shown inside RevenueBase.
Refresh
This page's figures were pulled from the company graph on November 6, 2026. Lists refresh periodically as the graph is re-checked.
Record context
Company records and descriptions can change. Check the company's website for its current services and locations.

Genetic disorder organizations by location

2 lists · largest first

Every Genetic disorder organizations list RevenueBase publishes, by country and city. Counts are matching companies in each list as of its own refresh date.

Countries

Frequently asked

What is RevenueBase SmartSearch?

RevenueBase SmartSearch finds niche companies by the meaning of their business descriptions in the RevenueBase company graph. Exact, Similar, Related and Broad control how closely companies must fit your description. This list uses Exact for “genetic disorder organizations”; each Exact match badge shows search membership, not an individual similarity or quality score.

How many genetic disorder organizations are there worldwide?

RevenueBase identified 507 company matches for genetic disorder organizations worldwide as of November 2026, using the meaning of business descriptions at Exact. This is the recorded matched set in the RevenueBase company graph.

What is the largest company on this list?

Afm-Téléthon tops the displayed preview by professional contacts tracked in RevenueBase. Recorded headquarters appear in the company rows.

Which country has the most genetic disorder organizations?

The United States leads with 161 companies, followed by the United Kingdom (31). Every genetic disorder organizations list by country and city is linked on this page.

Which city has the most genetic disorder organizations?

London leads with 14 company records, followed by Paris (11) and New York (8).

How do I get contact information for these companies?

A free RevenueBase account lets you run this exact search and work limited free results with 500 credits to start. Upgrading provides access to the 1,702 professional contacts with verified work emails tracked across these 507 companies; direct dials are available where recorded.

How current is this list?

The list refreshes periodically as the company graph is re-checked. This page's figures were pulled on November 6, 2026.

Ready to reach these companies? Verified emails and direct dials for all 507 genetic disorder organizations worldwide. Start with a free account, no credit card.

Download this list →

Related lists

About this data

RevenueBase is a B2B data infrastructure company. Its company graph covers 60 million companies and 398.9 million professional contacts, with emails verified on a rolling cadence rather than scraped once and left to decay. These company lists are generated directly from that graph with RevenueBase SmartSearch, the same natural-language company search every RevenueBase user has: describe a market in plain words, get the companies that match, and add verified emails and direct dials for the people at them. It is the same data that powers RevenueBase's B2B data products, and a free account includes 500 credits to start. How these lists are built and judged.