Company lists · Data refreshed September 2026
Top 15 Rare disease research organizations based in the Netherlands
RevenueBase identified 40 company matches for rare disease research organizations associated with the Netherlands as of September 2026 and tracks 1,496 professional contacts across them, including 343 with verified work emails. Amsterdam is the largest hub.
This list covers company matches for rare disease research organizations associated with the Netherlands, found by RevenueBase SmartSearch using the meaning of business descriptions in its company graph at Exact. Ranked by professionals tracked, largest first. Rows show recorded descriptions where available, Exact search membership and the snapshot date. Data refreshed September 21, 2026.
Published by RevenueBase, a B2B data infrastructure company. This list was built with RevenueBase SmartSearch, the natural-language company search RevenueBase customers use to build their own targeted lists and unlock verified emails and direct dials at the companies on them. How these lists are built and judged.
The 15 largest rare disease research organizations based in the Netherlands
Ranked by team size| # | Company | Contacts | |||
|---|---|---|---|---|---|
| 1 | 976 contacts → | ||||
Exact match “Pharming Group is a global biopharmaceutical company dedicated to transforming the lives of patients with rare, debilitating, and life-threatening diseases.” Recorded in the RevenueBase company graph · Sep 21, 2026 · View company records in RevenueBase | |||||
| 2 | 15 contacts → | ||||
Exact match “De VSOP is belangenbehartiger voor alle mensen met een zeldzame of genetische aandoening.” Recorded in the RevenueBase company graph · Sep 21, 2026 · View company records in RevenueBase | |||||
| 3 | 15 contacts → | ||||
Exact match “Verus Pharma was established in 2014 and working in accordance with the health policies of the countries, offered solution partnerships to its stakeholders and ensured that drugs…” Recorded in the RevenueBase company graph · Sep 21, 2026 · View company records in RevenueBase | |||||
| 4 | 7 contacts → | ||||
Exact match “Orfenix is a Dutch pharmaceutical development company dedicated to transforming healthcare through socially responsible drug development.” Recorded in the RevenueBase company graph · Sep 21, 2026 · View company records in RevenueBase | |||||
| 5 | 7 contacts → | ||||
Exact match “A new way to run Family and Friends groups for rare deceases.” Recorded in the RevenueBase company graph · Sep 21, 2026 · View company records in RevenueBase | |||||
| 6 | 6 contacts → | ||||
Exact match “We’ve moved!” Recorded in the RevenueBase company graph · Sep 21, 2026 · View company records in RevenueBase | |||||
| 7 | 4 contacts → | ||||
Exact match “Samen met onderzoekers, dokters, productontwikkelaars en patiënten helpt iDx mee aan het ontwikkelen van passende diagnostiek als voorwaarde voor passende zorg.” Recorded in the RevenueBase company graph · Sep 21, 2026 · View company records in RevenueBase | |||||
| 8 | 4 contacts → | ||||
Exact match “Het St.” Recorded in the RevenueBase company graph · Sep 21, 2026 · View company records in RevenueBase | |||||
| 9 | 4 contacts → | ||||
Exact match “Het doel van het Dutch Rare Cancer Platform (DRCP), als netwerk voor zorgprofessionals gespecialiseerd in een zeldzame vorm van kanker en patiënten, is om de behandeling voor…” Recorded in the RevenueBase company graph · Sep 21, 2026 · View company records in RevenueBase | |||||
| 10 | 3 contacts → | ||||
Exact match “Care4Bones is a non-profit committed to empowering people living with rare bone disorders through education, advocacy, and peer support.” Recorded in the RevenueBase company graph · Sep 21, 2026 · View company records in RevenueBase | |||||
| 11 | 3 contacts → | ||||
Exact match “Dertig jaar ervaring met de lever, leverziekten en patiënten: een bibliotheek aan informatie, een neus voor actualiteiten op het gebied van nationale en internationale…” Recorded in the RevenueBase company graph · Sep 21, 2026 · View company records in RevenueBase | |||||
| 12 | 2 contacts → | ||||
Exact match “Share2Care is een non-profit stichting die zich in zet voor patiënt- en data gedreven onderzoek en innovatie.” Recorded in the RevenueBase company graph · Sep 21, 2026 · View company records in RevenueBase | |||||
| 13 | 2 contacts → | ||||
Exact match “ROAd4Energy organiseert evenementen om aandacht en geld te genereren in de strijd tegen energiestofwisselingsziekten.” Recorded in the RevenueBase company graph · Sep 21, 2026 · View company records in RevenueBase | |||||
| 14 | 1 contacts → | ||||
Exact match “Provide support, education and hope to patients and families affected by complex lymphatic anomalies.” Recorded in the RevenueBase company graph · Sep 21, 2026 · View company records in RevenueBase | |||||
| 15 | 1 contacts → | ||||
Exact match “Our main goal is to support patients and their families through peer-to-peer contact.” Recorded in the RevenueBase company graph · Sep 21, 2026 · View company records in RevenueBase | |||||
RevenueBase SmartSearch
Describe a niche business in your own words. RevenueBase SmartSearch compares the meaning of your description with company business descriptions compiled in the RevenueBase company graph. Exact, Similar, Related and Broad control how closely companies must fit.
This list uses Exact for “rare disease research organizations”. Each Exact match badge shows membership in that saved search; it is not an individual similarity score or a service-quality rating. Recorded descriptions are shown where available.
Showing 15 of 40 rare disease research organizations based in the Netherlands
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Rare disease research organizations based in the Netherlands at a glance
As of Sep 21, 2026Companies by employee count
Email recency for this list is measured worldwide rather than for Netherlands, so it is reported there. Company counts and contact totals on this page are exact for Netherlands, over 40 companies.
How this list was built
The recorded descriptions help you assess these company matches. Check a company’s website for its current services and locations.
- Source
- The RevenueBase company graph: 60 million companies and 398.9 million professional contacts resolved from primary sources, queried with RevenueBase SmartSearch, the natural-language company search available to every RevenueBase user.
- What qualifies
- Company records associated with the Netherlands whose business descriptions match “rare disease research organizations” by meaning at the Exact setting. Descriptions are compiled in the RevenueBase company graph from public websites, profiles and company information where available; they are not guaranteed quotations from the company's website.
- RevenueBase SmartSearch
- Describe a niche company in your own words to find businesses by meaning. Exact, Similar, Related and Broad control the breadth of RevenueBase SmartSearch. This saved list uses Exact. Each row's Exact match badge shows inclusion in that search, not an individual score or a service-quality judgment.
- Public preview
- The public preview omits records without a verified work email. Where headquarters information is recorded, preview rows are also filtered to this page’s location. Dataset totals and geographic summaries describe the full matched records before these preview filters.
- Match quality
- RevenueBase's August 25, 2026 study assessed 4,198 description/company pairs across matching settings. The publisher reports 86% good or better at Exact. This evaluates the method across queries; it does not audit this individual list. Recorded company descriptions, where available, help you judge each match yourself. Read the full methodology: how the lists are built and what the study measures.
- Ranking
- Team size, largest first: companies are ordered by the number of professionals RevenueBase tracks at each one. Employee ranges shown are reported bands, for context.
- Verification
- Every displayed company carries at least one verified work email. RevenueBase tracks 343 professional contacts with verified work emails across the full matched dataset. Contacts re-verify on a rolling cadence, and each contact's own verification date is shown inside RevenueBase.
- Refresh
- This page's figures were pulled from the company graph on September 21, 2026. Lists refresh periodically as the graph is re-checked.
- Record context
- Company records and descriptions can change. Check the company's website for its current services and locations.
Frequently asked
What is RevenueBase SmartSearch?
RevenueBase SmartSearch finds niche companies by the meaning of their business descriptions in the RevenueBase company graph. Exact, Similar, Related and Broad control how closely companies must fit your description. This list uses Exact for “rare disease research organizations”; each Exact match badge shows search membership, not an individual similarity or quality score.
How many rare disease research organizations are there based in the Netherlands?
RevenueBase identified 40 company matches for rare disease research organizations associated with the Netherlands as of September 2026, using the meaning of business descriptions at Exact. This is the recorded matched set in the RevenueBase company graph.
What is the largest company on this list?
Pharming Group tops the displayed preview by professional contacts tracked in RevenueBase. Recorded headquarters appear in the company rows.
Which city has the most rare disease research organizations?
Amsterdam leads with 4 company records, followed by Utrecht (4) and Leiden (3).
How do I get contact information for these companies?
A free RevenueBase account lets you run this exact search and work limited free results with 500 credits to start. Upgrading provides access to the 343 professional contacts with verified work emails tracked across these 40 companies; direct dials are available where recorded.
How current is this list?
The list refreshes periodically as the company graph is re-checked. This page's figures were pulled on September 21, 2026.
Ready to reach these companies? Verified emails and direct dials for all 40 rare disease research organizations based in the Netherlands. Start with a free account, no credit card.
Download this list →Related lists
Rare disease research organizations by geography
- Rare disease research organizations based in Australia
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- Rare disease research organizations based in France
- Rare disease research organizations based in Italy
- Rare disease research organizations based in Spain
- Rare disease research organizations based in the United Kingdom
- Rare disease research organizations based in the United States
About this data
RevenueBase is a B2B data infrastructure company. Its company graph covers 60 million companies and 398.9 million professional contacts, with emails verified on a rolling cadence rather than scraped once and left to decay. These company lists are generated directly from that graph with RevenueBase SmartSearch, the same natural-language company search every RevenueBase user has: describe a market in plain words, get the companies that match, and add verified emails and direct dials for the people at them. It is the same data that powers RevenueBase's B2B data products, and a free account includes 500 credits to start. How these lists are built and judged.
More company lists
- All company lists
- Lists by location
- Lists A-Z
- New lists
- Rare disease research organizations based in Australia
- Rare disease research organizations based in Canada
- Rare disease research organizations based in France
- Rare disease research organizations based in Italy
- Rare disease research organizations based in Spain
- Rare disease research organizations based in the United Kingdom
Company intelligence · public preview
Top 15 rare disease research organizations based in the Netherlands
Find companies in any niche.
Describe the businesses you want in your own words. RevenueBase SmartSearch matches company descriptions by meaning.
RevenueBase records 40 matching company records for rare disease research organizations based in the Netherlands, with 1,496 tracked contacts and 343 verified work emails.
This public preview shows 15 selected records ordered by tracked contacts. RevenueBase SmartSearch finds company descriptions that match by meaning at Exact. Snapshot: September 21, 2026.
RevenueBase compiles business descriptions for niche-company discovery; each row shows a recorded excerpt where available. Adapt this search to find the companies and contacts you want.
Top 15 rare disease research organizations based in the Netherlands
The public list shows selected company records with contact and verified-email coverage. Reported employee bands provide separate company-size context.
| # | Company | Headquarters on record | Reported employees | RevenueBase SmartSearch | Tracked contacts |
|---|---|---|---|---|---|
| 1 | Pharming Grouppharming.com HQ: Leiden, NetherlandsReported employees: 201-500 | Leiden, Netherlands | 201-500 | Exact match | 976 contacts → |
“Pharming Group is a global biopharmaceutical company dedicated to transforming the lives of patients with rare, debilitating, and life-threatening diseases.” Recorded description excerpt · September 21, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 2 | VSOPvsop.nl HQ: Utrecht, NetherlandsReported employees: 1-10 | Utrecht, Netherlands | 1-10 | Exact match | 15 contacts → |
“De VSOP is belangenbehartiger voor alle mensen met een zeldzame of genetische aandoening.” Recorded description excerpt · September 21, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 3 |  Verus Pharma B.Vverus-pharma.comHQ: Amstelveen, NetherlandsReported employees: 11-50 | Amstelveen, Netherlands | 11-50 | Exact match | 15 contacts → |
“Verus Pharma was established in 2014 and working in accordance with the health policies of the countries, offered solution partnerships to its stakeholders and ensured that drugs…” Recorded description excerpt · September 21, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 4 | Orfenixorfenix.com HQ: Leiden, NetherlandsReported employees: 1-10 | Leiden, Netherlands | 1-10 | Exact match | 7 contacts → |
“Orfenix is a Dutch pharmaceutical development company dedicated to transforming healthcare through socially responsible drug development.” Recorded description excerpt · September 21, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 5 | Federatie Waihonapediawaihonapedia.org HQ: 's-hertogenbosch, NetherlandsReported employees: 1-10 | 's-hertogenbosch, Netherlands | 1-10 | Exact match | 7 contacts → |
“A new way to run Family and Friends groups for rare deceases.” Recorded description excerpt · September 21, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 6 |  PSR Orphan Experts NOW Ergomedergomedplc.comHQ: Hoofddorp, NetherlandsReported employees: 11-50 | Hoofddorp, Netherlands | 11-50 | Exact match | 6 contacts → |
“We’ve moved!” Recorded description excerpt · September 21, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 7 | IDXidx.nl HQ: Utrecht, NetherlandsReported employees: 1-10 | Utrecht, Netherlands | 1-10 | Exact match | 4 contacts → |
“Samen met onderzoekers, dokters, productontwikkelaars en patiënten helpt iDx mee aan het ontwikkelen van passende diagnostiek als voorwaarde voor passende zorg.” Recorded description excerpt · September 21, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 8 | St. Antonius Onderzoeksfondsonderzoeksfonds.nl HQ: Nieuwegein, NetherlandsReported employees: 1-10 | Nieuwegein, Netherlands | 1-10 | Exact match | 4 contacts → |
“Het St.” Recorded description excerpt · September 21, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 9 | HQ: Utrecht, NetherlandsReported employees: 11-50 | Utrecht, Netherlands | 11-50 | Exact match | 4 contacts → |
“Het doel van het Dutch Rare Cancer Platform (DRCP), als netwerk voor zorgprofessionals gespecialiseerd in een zeldzame vorm van kanker en patiënten, is om de behandeling voor…” Recorded description excerpt · September 21, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 10 | Care4bonescare4bones.org HQ: Wassenaar, NetherlandsReported employees: 1-10 | Wassenaar, Netherlands | 1-10 | Exact match | 3 contacts → |
“Care4Bones is a non-profit committed to empowering people living with rare bone disorders through education, advocacy, and peer support.” Recorded description excerpt · September 21, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 11 | Nederlandse Leverpatiënten Vereniging Dutch Liver Patients Association NLVleverpatientenvereniging.nl HQ: Hoogland, NetherlandsReported employees: 1-10 | Hoogland, Netherlands | 1-10 | Exact match | 3 contacts → |
“Dertig jaar ervaring met de lever, leverziekten en patiënten: een bibliotheek aan informatie, een neus voor actualiteiten op het gebied van nationale en internationale…” Recorded description excerpt · September 21, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 12 | Stichting Share2careweshare2care.nl HQ: Utrecht, NetherlandsReported employees: 1-10 | Utrecht, Netherlands | 1-10 | Exact match | 2 contacts → |
“Share2Care is een non-profit stichting die zich in zet voor patiënt- en data gedreven onderzoek en innovatie.” Recorded description excerpt · September 21, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 13 | Stichting Road4energyroad4energy.nl HQ: Groesbeek, NetherlandsReported employees: 1-10 | Groesbeek, Netherlands | 1-10 | Exact match | 2 contacts → |
“ROAd4Energy organiseert evenementen om aandacht en geld te genereren in de strijd tegen energiestofwisselingsziekten.” Recorded description excerpt · September 21, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 14 | LGD Alliance Europelgda.eu HQ: Amsterdam, NetherlandsReported employees: 1-10 | Amsterdam, Netherlands | 1-10 | Exact match | 1 contacts → |
“Provide support, education and hope to patients and families affected by complex lymphatic anomalies.” Recorded description excerpt · September 21, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 15 |  Stichting Ijzersterkstichtingijzersterk.nlHQ: Wieringerwerf, NetherlandsReported employees: 1-10 | Wieringerwerf, Netherlands | 1-10 | Exact match | 1 contacts → |
“Our main goal is to support patients and their families through peer-to-peer contact.” Recorded description excerpt · September 21, 2026Open company data in RevenueBase ↗Free signup required. | |||||
Showing 15 of 40 company matches
Build a targeted audience, find relevant contacts and export available records to your workflow.
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Rare disease research organizations: dataset insights
September 21, 2026These summaries describe recorded coverage in this saved dataset. This page is derived from saved source records; per-contact mobile coverage and email-recency results are not established by this snapshot.
Reported company sizes
40 records in the displayed employee bands.
0 matching records are outside the displayed bands or do not have a displayed size. Bars show shares of the displayed bands.
Email recency for this list is measured worldwide rather than for Netherlands, so it is reported there. Company counts and contact totals on this page are exact for Netherlands, over 40 companies.
How this company list was built
Describe a niche in your own words: companies installing commercial solar, or manufacturers of sustainable packaging. RevenueBase SmartSearch finds companies whose compiled business descriptions match by meaning. This list is one saved example to adapt.
Where the company descriptions come from
RevenueBase compiles company information from public sources, including company websites and public professional profiles such as LinkedIn, alongside information supplied by companies. The short recorded excerpt shown here is separate from the complete business description used for matching; individual source URLs and collection dates are not provided in this public snapshot.
RevenueBase SmartSearch matching settings
- Exact
- Closest fits to the business described.
- Similar
- Similar businesses with a wider range of fits.
- Related
- Related businesses in and around the category.
- Broad
- A broader set of businesses connected to the description.
RevenueBase SmartSearch · Exact match identifies inclusion in this search's closest semantic matching setting. It is not a per-company confidence score, a literal keyword match, or a quality endorsement.
Selection, ordering and scope
The public list shows selected company records with contact and verified-email coverage. Reported employee bands provide separate company-size context.
This page is derived from saved source records; per-contact mobile coverage and email-recency results are not established by this snapshot.
Recorded company descriptions support research; check company websites for current services. The selected preview is ordered by tracked contacts and is not a list of the best service providers.
Snapshot: September 21, 2026.
RevenueBase is a B2B data infrastructure company. Its September 3, 2026 published methodology describes a graph of 60 million companies and 398.9 million professional contacts; these platform figures differ from this page's totals. Published methodology ↗
Questions about this company list
What does Exact match mean for rare disease research organizations?
The separate RevenueBase SmartSearch column identifies inclusion at the closest semantic matching preset. It is not a literal keyword match, a per-company confidence score or a quality endorsement. Changing the search form opens a new search in RevenueBase; it does not reclassify these saved rows.
How many rare disease research organizations did RevenueBase find based in the Netherlands?
The saved snapshot records 40 matching company records, 1,496 tracked contacts and 343 verified emails. The public preview displays 15 selected records.
Where do the company descriptions come from?
RevenueBase compiles company information from public sources, including company websites and public professional profiles such as LinkedIn, alongside information supplied by companies. The short recorded excerpt shown here is separate from the complete business description used for matching; individual source URLs and collection dates are not provided in this public snapshot.
How are the public companies ordered?
The selected public records are ordered by contacts tracked in RevenueBase, highest first. Contact coverage is a prospecting measure, not an assessment of the company's services or quality.
How can I get contact information?
Select a company's contact count to open its filtered contacts in RevenueBase. Free signup is required and includes 500 credits and limited free results. Verified emails, direct dials and mobile numbers depend on available coverage.
How current is this list?
Snapshot: September 21, 2026. Review each company's website for current services and locations. A recorded business description does not establish that every company offers every service named in the search.
What do headquarters and employee bands mean?
These are recorded company-level fields, rather than a map of every branch or a count of specialists. Missing headquarters or employee bands are labeled; older records may show a location separately from recorded headquarters.
Build your next target company list
Adapt this niche search and work with available contacts in RevenueBase.
Related lists
Rare disease research organizations by geography
- Rare disease research organizations based in Australia
- Rare disease research organizations based in Canada
- Rare disease research organizations based in France
- Rare disease research organizations based in Italy
- Rare disease research organizations based in Spain
- Rare disease research organizations based in the United Kingdom
- Rare disease research organizations based in the United States
Cite this list
RevenueBase Data Team. Top 15 rare disease research organizations based in the Netherlands. Snapshot: September 21, 2026. https://revenuebase.ai/companies/rare-disease-research-organizations/netherlands.
This is a selected public preview of saved company records, rather than an independently verified census. Open the source page ↗
More company lists
- All company lists
- Lists by location
- Lists A-Z
- New lists
- Rare disease research organizations based in Australia
- Rare disease research organizations based in Canada
- Rare disease research organizations based in France
- Rare disease research organizations based in Italy
- Rare disease research organizations based in Spain
- Rare disease research organizations based in the United Kingdom
Company intelligence · public preview
Top 15 rare disease research organizations based in the Netherlands
RevenueBase records 40 matching company records for rare disease research organizations based in the Netherlands, with 1,496 tracked contacts and 343 verified work emails.
This public preview shows 15 selected records ordered by tracked contacts. RevenueBase SmartSearch finds company descriptions that match by meaning at Exact. Snapshot: September 21, 2026.
RevenueBase compiles business descriptions for niche-company discovery; each row shows a recorded excerpt where available. Adapt this search to find the companies and contacts you want.
Top 15 rare disease research organizations based in the Netherlands
The public list shows selected company records with contact and verified-email coverage. Reported employee bands provide separate company-size context.
| # | Company | Headquarters on record | Reported employees | RevenueBase SmartSearch | Tracked contacts |
|---|---|---|---|---|---|
| 1 | Pharming Grouppharming.com HQ: Leiden, NetherlandsReported employees: 201-500 | Leiden, Netherlands | 201-500 | Exact match | 976 contacts → |
“Pharming Group is a global biopharmaceutical company dedicated to transforming the lives of patients with rare, debilitating, and life-threatening diseases.” Recorded description excerpt · September 21, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 2 | VSOPvsop.nl HQ: Utrecht, NetherlandsReported employees: 1-10 | Utrecht, Netherlands | 1-10 | Exact match | 15 contacts → |
“De VSOP is belangenbehartiger voor alle mensen met een zeldzame of genetische aandoening.” Recorded description excerpt · September 21, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 3 | Verus Pharma B.Vverus-pharma.com HQ: Amstelveen, NetherlandsReported employees: 11-50 | Amstelveen, Netherlands | 11-50 | Exact match | 15 contacts → |
“Verus Pharma was established in 2014 and working in accordance with the health policies of the countries, offered solution partnerships to its stakeholders and ensured that drugs…” Recorded description excerpt · September 21, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 4 | Orfenixorfenix.com HQ: Leiden, NetherlandsReported employees: 1-10 | Leiden, Netherlands | 1-10 | Exact match | 7 contacts → |
“Orfenix is a Dutch pharmaceutical development company dedicated to transforming healthcare through socially responsible drug development.” Recorded description excerpt · September 21, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 5 | Federatie Waihonapediawaihonapedia.org HQ: 's-hertogenbosch, NetherlandsReported employees: 1-10 | 's-hertogenbosch, Netherlands | 1-10 | Exact match | 7 contacts → |
“A new way to run Family and Friends groups for rare deceases.” Recorded description excerpt · September 21, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 6 | PSR Orphan Experts NOW Ergomedergomedplc.com HQ: Hoofddorp, NetherlandsReported employees: 11-50 | Hoofddorp, Netherlands | 11-50 | Exact match | 6 contacts → |
“We’ve moved!” Recorded description excerpt · September 21, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 7 | IDXidx.nl HQ: Utrecht, NetherlandsReported employees: 1-10 | Utrecht, Netherlands | 1-10 | Exact match | 4 contacts → |
“Samen met onderzoekers, dokters, productontwikkelaars en patiënten helpt iDx mee aan het ontwikkelen van passende diagnostiek als voorwaarde voor passende zorg.” Recorded description excerpt · September 21, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 8 | St. Antonius Onderzoeksfondsonderzoeksfonds.nl HQ: Nieuwegein, NetherlandsReported employees: 1-10 | Nieuwegein, Netherlands | 1-10 | Exact match | 4 contacts → |
“Het St.” Recorded description excerpt · September 21, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 9 | HQ: Utrecht, NetherlandsReported employees: 11-50 | Utrecht, Netherlands | 11-50 | Exact match | 4 contacts → |
“Het doel van het Dutch Rare Cancer Platform (DRCP), als netwerk voor zorgprofessionals gespecialiseerd in een zeldzame vorm van kanker en patiënten, is om de behandeling voor…” Recorded description excerpt · September 21, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 10 | Care4bonescare4bones.org HQ: Wassenaar, NetherlandsReported employees: 1-10 | Wassenaar, Netherlands | 1-10 | Exact match | 3 contacts → |
“Care4Bones is a non-profit committed to empowering people living with rare bone disorders through education, advocacy, and peer support.” Recorded description excerpt · September 21, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 11 | Nederlandse Leverpatiënten Vereniging Dutch Liver Patients Association NLVleverpatientenvereniging.nl HQ: Hoogland, NetherlandsReported employees: 1-10 | Hoogland, Netherlands | 1-10 | Exact match | 3 contacts → |
“Dertig jaar ervaring met de lever, leverziekten en patiënten: een bibliotheek aan informatie, een neus voor actualiteiten op het gebied van nationale en internationale…” Recorded description excerpt · September 21, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 12 | Stichting Share2careweshare2care.nl HQ: Utrecht, NetherlandsReported employees: 1-10 | Utrecht, Netherlands | 1-10 | Exact match | 2 contacts → |
“Share2Care is een non-profit stichting die zich in zet voor patiënt- en data gedreven onderzoek en innovatie.” Recorded description excerpt · September 21, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 13 | Stichting Road4energyroad4energy.nl HQ: Groesbeek, NetherlandsReported employees: 1-10 | Groesbeek, Netherlands | 1-10 | Exact match | 2 contacts → |
“ROAd4Energy organiseert evenementen om aandacht en geld te genereren in de strijd tegen energiestofwisselingsziekten.” Recorded description excerpt · September 21, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 14 | LGD Alliance Europelgda.eu HQ: Amsterdam, NetherlandsReported employees: 1-10 | Amsterdam, Netherlands | 1-10 | Exact match | 1 contacts → |
“Provide support, education and hope to patients and families affected by complex lymphatic anomalies.” Recorded description excerpt · September 21, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 15 | Stichting Ijzersterkstichtingijzersterk.nl HQ: Wieringerwerf, NetherlandsReported employees: 1-10 | Wieringerwerf, Netherlands | 1-10 | Exact match | 1 contacts → |
“Our main goal is to support patients and their families through peer-to-peer contact.” Recorded description excerpt · September 21, 2026Open company data in RevenueBase ↗Free signup required. | |||||
Showing 15 of 40 company matches
Build a targeted audience, find relevant contacts and export available records to your workflow.
Free signup · 500 credits · limited free results
Rare disease research organizations: dataset insights
September 21, 2026These summaries describe recorded coverage in this saved dataset. This page is derived from saved source records; per-contact mobile coverage and email-recency results are not established by this snapshot.
Reported company sizes
40 records in the displayed employee bands.
0 matching records are outside the displayed bands or do not have a displayed size. Bars show shares of the displayed bands.
Email recency for this list is measured worldwide rather than for Netherlands, so it is reported there. Company counts and contact totals on this page are exact for Netherlands, over 40 companies.
How this company list was built
Describe a niche in your own words: companies installing commercial solar, or manufacturers of sustainable packaging. RevenueBase SmartSearch finds companies whose compiled business descriptions match by meaning. This list is one saved example to adapt.
Where the company descriptions come from
RevenueBase compiles company information from public sources, including company websites and public professional profiles such as LinkedIn, alongside information supplied by companies. The short recorded excerpt shown here is separate from the complete business description used for matching; individual source URLs and collection dates are not provided in this public snapshot.
RevenueBase SmartSearch matching settings
- Exact
- Closest fits to the business described.
- Similar
- Similar businesses with a wider range of fits.
- Related
- Related businesses in and around the category.
- Broad
- A broader set of businesses connected to the description.
RevenueBase SmartSearch · Exact match identifies inclusion in this search's closest semantic matching setting. It is not a per-company confidence score, a literal keyword match, or a quality endorsement.
Selection, ordering and scope
The public list shows selected company records with contact and verified-email coverage. Reported employee bands provide separate company-size context.
This page is derived from saved source records; per-contact mobile coverage and email-recency results are not established by this snapshot.
Recorded company descriptions support research; check company websites for current services. The selected preview is ordered by tracked contacts and is not a list of the best service providers.
Snapshot: September 21, 2026.
RevenueBase is a B2B data infrastructure company. Its September 3, 2026 published methodology describes a graph of 60 million companies and 398.9 million professional contacts; these platform figures differ from this page's totals. Published methodology ↗
Questions about this company list
What does Exact match mean for rare disease research organizations?
The separate RevenueBase SmartSearch column identifies inclusion at the closest semantic matching preset. It is not a literal keyword match, a per-company confidence score or a quality endorsement. Changing the search form opens a new search in RevenueBase; it does not reclassify these saved rows.
How many rare disease research organizations did RevenueBase find based in the Netherlands?
The saved snapshot records 40 matching company records, 1,496 tracked contacts and 343 verified emails. The public preview displays 15 selected records.
Where do the company descriptions come from?
RevenueBase compiles company information from public sources, including company websites and public professional profiles such as LinkedIn, alongside information supplied by companies. The short recorded excerpt shown here is separate from the complete business description used for matching; individual source URLs and collection dates are not provided in this public snapshot.
How are the public companies ordered?
The selected public records are ordered by contacts tracked in RevenueBase, highest first. Contact coverage is a prospecting measure, not an assessment of the company's services or quality.
How can I get contact information?
Select a company's contact count to open its filtered contacts in RevenueBase. Free signup is required and includes 500 credits and limited free results. Verified emails, direct dials and mobile numbers depend on available coverage.
How current is this list?
Snapshot: September 21, 2026. Review each company's website for current services and locations. A recorded business description does not establish that every company offers every service named in the search.
What do headquarters and employee bands mean?
These are recorded company-level fields, rather than a map of every branch or a count of specialists. Missing headquarters or employee bands are labeled; older records may show a location separately from recorded headquarters.
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Adapt this niche search and work with available contacts in RevenueBase.
Related lists
Rare disease research organizations by geography
- Rare disease research organizations based in Australia
- Rare disease research organizations based in Canada
- Rare disease research organizations based in France
- Rare disease research organizations based in Italy
- Rare disease research organizations based in Spain
- Rare disease research organizations based in the United Kingdom
- Rare disease research organizations based in the United States
Cite this list
RevenueBase Data Team. Top 15 rare disease research organizations based in the Netherlands. Snapshot: September 21, 2026. https://revenuebase.ai/companies/rare-disease-research-organizations/netherlands.
This is a selected public preview of saved company records, rather than an independently verified census. Open the source page ↗
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- Rare disease research organizations based in Australia
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