Company lists · Data refreshed September 2026

Top 13 Rare disease research organizations based in Italy

RevenueBase identified 39 company matches for rare disease research organizations associated with Italy as of September 2026 and tracks 761 professional contacts across them, including 259 with verified work emails. Milan is the largest hub.

This list covers company matches for rare disease research organizations associated with Italy, found by RevenueBase SmartSearch using the meaning of business descriptions in its company graph at Exact. Ranked by professionals tracked, largest first. Rows show recorded descriptions where available, Exact search membership and the snapshot date. Data refreshed September 21, 2026.

Published by RevenueBase, a B2B data infrastructure company. This list was built with RevenueBase SmartSearch, the natural-language company search RevenueBase customers use to build their own targeted lists and unlock verified emails and direct dials at the companies on them. How these lists are built and judged.

How to read this list RevenueBase SmartSearch · Exact Recorded Sep 21, 2026 How this list was built
39Companies
761Contacts tracked
259Verified emails
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The 13 largest rare disease research organizations based in Italy

Ranked by team size
Top 13 of 39 company matches for rare disease research organizations based in Italy, ordered by professional contacts tracked in RevenueBase, largest first. Recorded Sep 21, 2026. The RevenueBase SmartSearch column shows Exact match membership in this saved search. Click a contact count to view that company's people. Totals use company locations recorded by RevenueBase; the displayed preview is a smaller selection.
#CompanyRevenueBase SmartSearchHeadquartersEmployeesContacts
1Exact matchPozzuoli, ItalyHQ recorded Sep 21, 2026201-500257 contacts →

Exact match

“TIGEM is a leading research institute dedicated to uncovering the molecular mechanisms of rare genetic diseases and translating these discoveries into innovative therapies, with a…”

Recorded in the RevenueBase company graph · Sep 21, 2026 · View company records in RevenueBase
2Exact matchMilan, ItalyHQ recorded Sep 21, 2026201-500173 contacts →

Exact match

“Founded in 1996, the San Raffaele Telethon Institute for Gene Therapy (SR-Tiget) is a joint venture between Fondazione Telethon, a major Italian charity funding research on rare…”

Recorded in the RevenueBase company graph · Sep 21, 2026 · View company records in RevenueBase
3Exact matchTrieste, ItalyHQ recorded Sep 21, 20261-1023 contacts →

Exact match

“The Italian Liver Foundation is a research institution with focus on liver disease and its related pathologies”

Recorded in the RevenueBase company graph · Sep 21, 2026 · View company records in RevenueBase
4Exact matchRozzano, ItalyHQ recorded Sep 21, 20261,001-5,00017 contacts →

Exact match

“La Fondazione Humanitas per la Ricerca è un ente no profit dedicato al sostegno della Ricerca scientifica e clinica.”

Recorded in the RevenueBase company graph · Sep 21, 2026 · View company records in RevenueBase
5Exact matchRome, ItalyHQ recorded Sep 21, 20261-1016 contacts →

Exact match

“O.MA.R - Osservatorio Malattie Rare si propone come la prima agenzia giornalistica nazionale, regolarmente registrata, interamente dedicata al mondo della malattie e dei tumori…”

Recorded in the RevenueBase company graph · Sep 21, 2026 · View company records in RevenueBase
6Exact matchImola, ItalyHQ recorded Sep 21, 202611-5010 contacts →

Exact match

“Neupharma is a young and modern company focused on innovation in the field of rare diseases, particularly cystic fibrosis, a genetic disease that affects about people in Europe.”

Recorded in the RevenueBase company graph · Sep 21, 2026 · View company records in RevenueBase
7Exact matchRome, ItalyHQ recorded Sep 21, 202611-508 contacts →

Exact match

“Un laboratorio di idee dedicato al mondo delle malattie rare e non solo.”

Recorded in the RevenueBase company graph · Sep 21, 2026 · View company records in RevenueBase
8Exact matchMilan, ItalyHQ recorded Sep 21, 20261-107 contacts →

Exact match

“Neuro-Zone is the first KRO (Know-How Research Organization) supporting drug discovery and research projects in the field of inflammation and age-related pathologies.”

Recorded in the RevenueBase company graph · Sep 21, 2026 · View company records in RevenueBase
9Exact matchLecce, ItalyHQ recorded Sep 21, 20261-107 contacts →

Exact match

“APMAR ONLUS, Associazione Nazionale Persone con Malattie Reumatologiche e Rare è nata a tutela dei pazienti reumatici.”

Recorded in the RevenueBase company graph · Sep 21, 2026 · View company records in RevenueBase
10Exact matchMilan, ItalyHQ recorded Sep 21, 202611-506 contacts →

Exact match

“La SIR promuove ricerca, formazione e sensibilizzazione sulle malattie reumatologiche.”

Recorded in the RevenueBase company graph · Sep 21, 2026 · View company records in RevenueBase
11Exact matchRome, ItalyHQ recorded Sep 21, 20261-105 contacts →

Exact match

“UNIAMO Federazione Italiana Malattie Rare è l’ente di rappresentanza della comunità delle persone con malattia rara.”

Recorded in the RevenueBase company graph · Sep 21, 2026 · View company records in RevenueBase
12Exact matchMilan, ItalyHQ recorded Sep 21, 20261-103 contacts →

Exact match

“Sede Operativa: c/o Istituto Nazionale dei Tumori, Via Vanzetti 5, 20133 Milano - Italy.”

Recorded in the RevenueBase company graph · Sep 21, 2026 · View company records in RevenueBase
13Exact matchMilan, ItalyHQ recorded Sep 21, 202651-2002 contacts →

Exact match

“Alexion is dedicated to world-class innovation, delivering therapies to patients with ultra-rare diseases.”

Recorded in the RevenueBase company graph · Sep 21, 2026 · View company records in RevenueBase

Showing 13 of 39 rare disease research organizations based in Italy

See the full list, filter by size, metro and specialty, and access 259 tracked professional contacts with verified work emails. Direct dials are available where recorded.

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Rare disease research organizations based in Italy at a glance

As of Sep 21, 2026
34.0%Verified-email coverage
19.5Average contacts per company
1-10Median size (employees)
23.1%Largest-city concentration · Milan
Sep 21, 2026Page data refreshed

Companies by employee count

1-10
24
11-50
10
51-200
1
201-500
2
1,001-5,000
1

Email recency for this list is measured worldwide rather than for Italy, so it is reported there. Company counts and contact totals on this page are exact for Italy, over 39 companies.

How this list was built

The recorded descriptions help you assess these company matches. Check a company’s website for its current services and locations.

Source
The RevenueBase company graph: 60 million companies and 398.9 million professional contacts resolved from primary sources, queried with RevenueBase SmartSearch, the natural-language company search available to every RevenueBase user.
What qualifies
Company records associated with Italy whose business descriptions match “rare disease research organizations” by meaning at the Exact setting. Descriptions are compiled in the RevenueBase company graph from public websites, profiles and company information where available; they are not guaranteed quotations from the company's website.
RevenueBase SmartSearch
Describe a niche company in your own words to find businesses by meaning. Exact, Similar, Related and Broad control the breadth of RevenueBase SmartSearch. This saved list uses Exact. Each row's Exact match badge shows inclusion in that search, not an individual score or a service-quality judgment.
Public preview
The public preview omits records without a verified work email. Where headquarters information is recorded, preview rows are also filtered to this page’s location. Dataset totals and geographic summaries describe the full matched records before these preview filters.
Match quality
RevenueBase's August 25, 2026 study assessed 4,198 description/company pairs across matching settings. The publisher reports 86% good or better at Exact. This evaluates the method across queries; it does not audit this individual list. Recorded company descriptions, where available, help you judge each match yourself. Read the full methodology: how the lists are built and what the study measures.
Ranking
Team size, largest first: companies are ordered by the number of professionals RevenueBase tracks at each one. Employee ranges shown are reported bands, for context.
Verification
Every displayed company carries at least one verified work email. RevenueBase tracks 259 professional contacts with verified work emails across the full matched dataset. Contacts re-verify on a rolling cadence, and each contact's own verification date is shown inside RevenueBase.
Refresh
This page's figures were pulled from the company graph on September 21, 2026. Lists refresh periodically as the graph is re-checked.
Record context
Company records and descriptions can change. Check the company's website for its current services and locations.

Frequently asked

What is RevenueBase SmartSearch?

RevenueBase SmartSearch finds niche companies by the meaning of their business descriptions in the RevenueBase company graph. Exact, Similar, Related and Broad control how closely companies must fit your description. This list uses Exact for “rare disease research organizations”; each Exact match badge shows search membership, not an individual similarity or quality score.

How many rare disease research organizations are there based in Italy?

RevenueBase identified 39 company matches for rare disease research organizations associated with Italy as of September 2026, using the meaning of business descriptions at Exact. This is the recorded matched set in the RevenueBase company graph.

What is the largest company on this list?

Telethon Institute Of Genetics And Medicine Tigem tops the displayed preview by professional contacts tracked in RevenueBase. Recorded headquarters appear in the company rows.

Which city has the most rare disease research organizations?

Milan leads with 9 company records, followed by Rome (6) and Alessandria (1).

How do I get contact information for these companies?

A free RevenueBase account lets you run this exact search and work limited free results with 500 credits to start. Upgrading provides access to the 259 professional contacts with verified work emails tracked across these 39 companies; direct dials are available where recorded.

How current is this list?

The list refreshes periodically as the company graph is re-checked. This page's figures were pulled on September 21, 2026.

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About this data

RevenueBase is a B2B data infrastructure company. Its company graph covers 60 million companies and 398.9 million professional contacts, with emails verified on a rolling cadence rather than scraped once and left to decay. These company lists are generated directly from that graph with RevenueBase SmartSearch, the same natural-language company search every RevenueBase user has: describe a market in plain words, get the companies that match, and add verified emails and direct dials for the people at them. It is the same data that powers RevenueBase's B2B data products, and a free account includes 500 credits to start. How these lists are built and judged.