Company lists · Data refreshed September 2026

Top 19 Muscular dystrophy organizations based in the United States

RevenueBase identified 43 company matches for muscular dystrophy organizations associated with the United States as of September 2026 and tracks 1,270 professional contacts across them, including 123 with verified work emails. New York is the largest hub.

This list covers company matches for muscular dystrophy organizations associated with the United States, found by RevenueBase SmartSearch using the meaning of business descriptions in its company graph at Exact. Ranked by professionals tracked, largest first. Rows show recorded descriptions where available, Exact search membership and the snapshot date. Data refreshed September 20, 2026.

Published by RevenueBase, a B2B data infrastructure company. This list was built with RevenueBase SmartSearch, the natural-language company search RevenueBase customers use to build their own targeted lists and unlock verified emails and direct dials at the companies on them. How these lists are built and judged.

How to read this list RevenueBase SmartSearch · Exact Recorded Sep 20, 2026 How this list was built
43Companies
1,270Contacts tracked
123Verified emails
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The 19 largest muscular dystrophy organizations based in the United States

Ranked by team size
Top 19 of 43 company matches for muscular dystrophy organizations based in the United States, ordered by professional contacts tracked in RevenueBase, largest first. Recorded Sep 20, 2026. The RevenueBase SmartSearch column shows Exact match membership in this saved search. Click a contact count to view that company's people. Totals use company locations recorded by RevenueBase; the displayed preview is a smaller selection.
#CompanyRevenueBase SmartSearchHeadquartersEmployeesContacts
1Exact matchWashington Dc, United StatesHQ recorded Sep 20, 202611-5052 contacts →

Exact match

“Parent Project Muscular Dystrophy fights to end Duchenne.”

Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase
2Exact matchMA, United StatesHQ recorded Sep 20, 202611-5047 contacts →

Exact match

“The FSHD Society is the world’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular…”

Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase
3Exact matchNewport Beach, CA, United StatesHQ recorded Sep 20, 202611-5035 contacts →

Exact match

“CureDuchenne is the global leader in Duchenne research, patient care and innovation.”

Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase
4Exact matchOakland, CA, United StatesHQ recorded Sep 20, 20261-1018 contacts →

Exact match

“We envision a world with treatments and a cure for myotonic dystrophy (DM).”

Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase
5Exact matchSeattle, WA, United StatesHQ recorded Sep 20, 20261-1018 contacts →

Exact match

“Our mission is to orchestrate a cure for muscular dystrophies caused by dysferlin protein deficiency.”

Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase
6Exact matchPlymouth, MA, United StatesHQ recorded Sep 20, 202611-5014 contacts →

Exact match

“In 2001, Christine and Stephen McSherry started Jett Foundation after learning the devastating news that their then five-year-old son, Jett, had Duchenne muscular dystrophy.”

Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase
7Exact matchLakewood, CA, United StatesHQ recorded Sep 20, 20261-106 contacts →

Exact match

“Cure CMD’s mission is to advance research toward treatments for the congenital muscular dystrophies and improve the lives of those living with CMD through engagement and support…”

Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase
8Exact matchDublin, OH, United StatesHQ recorded Sep 20, 20261-106 contacts →

Exact match

“Little Hercules Foundation works to improve the lives of those diagnosed with – and families facing – Duchenne Muscular Dystrophy through Advocacy, Awareness, Family Assistance…”

Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase
9Exact matchCarmel, IN, United StatesHQ recorded Sep 20, 20261-105 contacts →

Exact match

“The Muscular Dystrophy Family Foundation (MDFF) provides financial assistance, adaptive equipment and quality events to the MD community in Indiana.”

Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase
10Exact matchSan Antonio, TX, United StatesHQ recorded Sep 20, 20261-104 contacts →

Exact match

“The Mission of the OPMD Association is to advocate for and serve people affected with Oculopharyngeal Muscular Dystrophy (OPMD) by providing education, resources and programs and…”

Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase
11Exact matchScottsdale, AZ, United StatesHQ recorded Sep 20, 20261-104 contacts →

Exact match

“Welcome to Heal DMD, the non-profit organization dedicated to improving the lives of people affected by Duchenne Muscular Dystrophy (DMD).”

Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase
12Exact matchWestport, CT, United StatesHQ recorded Sep 20, 20261-102 contacts →

Exact match

“Coalition to Cure Calpain 3 (C3) is committed to treating and ultimately curing limb girdle muscular dystrophy, type 2A (LGMD2A)/LGMDR1-Calpain 3 related and LGMDD4 (collectively…”

Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase
13Exact matchBaltimore, MD, United StatesHQ recorded Sep 20, 20261-102 contacts →

Exact match

“Twine is working to develop targeted therapies to improve three key affected areas in people living with Duchenne muscular dystrophy (DMD) or related muscle diseases.”

Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase
14Exact matchAsbury Park, NJ, United StatesHQ recorded Sep 20, 20261-102 contacts →

Exact match

“JAR of Hope's mission is dedicated to bringing awareness and raising funds directed to ongoing research in the hope of eliminating Duchenne Muscular Dystrophy.”

Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase
15Exact matchMidlothian, VA, United StatesHQ recorded Sep 20, 20261-101 contacts →

Exact match

“The Colorado Fund for Muscular Dystrophy is organized exclusively for charitable and educational purposes within the meaning of Section 501(c)(3) of the Internal Revenue Code…”

Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase
16Exact matchTwin Lakes, WI, United StatesHQ recorded Sep 20, 20261-101 contacts →

Exact match

Recorded description not available.

Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase
17Exact matchLeesburg, TX, United StatesHQ recorded Sep 20, 20261-101 contacts →

Exact match

“Fighting Duchenne Muscular Dystrophy through advocacy and by funding research.”

Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase
18Exact matchAlexandria, VA, United StatesHQ recorded Sep 20, 20261-101 contacts →

Exact match

Recorded description not available.

Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase
19Exact matchNew York, NY, United StatesHQ recorded Sep 20, 20261-101 contacts →

Exact match

“Pietro’sfight.org is a nonprofit organization dedicated to raising awareness and funds to find a cure for Duchenne Muscular Dystrophy.”

Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase

Showing 19 of 43 muscular dystrophy organizations based in the United States

See the full list, filter by size, metro and specialty, and access 123 tracked professional contacts with verified work emails. Direct dials are available where recorded.

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Muscular dystrophy organizations based in the United States at a glance

As of Sep 20, 2026
9.7%Verified-email coverage
29.5Average contacts per company
1-10Median size (employees)
4.7%Largest-city concentration · New York
Sep 20, 2026Page data refreshed

Companies by employee count

1-10
33
11-50
7
51-200
1
201-500
1
1,001-5,000
1

Email recency for this list is measured worldwide rather than for United States, so it is reported there. Company counts and contact totals on this page are exact for United States, over 43 companies.

How this list was built

The recorded descriptions help you assess these company matches. Check a company’s website for its current services and locations.

Source
The RevenueBase company graph: 60 million companies and 398.9 million professional contacts resolved from primary sources, queried with RevenueBase SmartSearch, the natural-language company search available to every RevenueBase user.
What qualifies
Company records associated with the United States whose business descriptions match “muscular dystrophy organizations” by meaning at the Exact setting. Descriptions are compiled in the RevenueBase company graph from public websites, profiles and company information where available; they are not guaranteed quotations from the company's website.
RevenueBase SmartSearch
Describe a niche company in your own words to find businesses by meaning. Exact, Similar, Related and Broad control the breadth of RevenueBase SmartSearch. This saved list uses Exact. Each row's Exact match badge shows inclusion in that search, not an individual score or a service-quality judgment.
Public preview
The public preview omits records without a verified work email. Where headquarters information is recorded, preview rows are also filtered to this page’s location. Dataset totals and geographic summaries describe the full matched records before these preview filters.
Match quality
RevenueBase's August 25, 2026 study assessed 4,198 description/company pairs across matching settings. The publisher reports 86% good or better at Exact. This evaluates the method across queries; it does not audit this individual list. Recorded company descriptions, where available, help you judge each match yourself. Read the full methodology: how the lists are built and what the study measures.
Ranking
Team size, largest first: companies are ordered by the number of professionals RevenueBase tracks at each one. Employee ranges shown are reported bands, for context.
Verification
Every displayed company carries at least one verified work email. RevenueBase tracks 123 professional contacts with verified work emails across the full matched dataset. Contacts re-verify on a rolling cadence, and each contact's own verification date is shown inside RevenueBase.
Refresh
This page's figures were pulled from the company graph on September 20, 2026. Lists refresh periodically as the graph is re-checked.
Record context
Company records and descriptions can change. Check the company's website for its current services and locations.

Frequently asked

What is RevenueBase SmartSearch?

RevenueBase SmartSearch finds niche companies by the meaning of their business descriptions in the RevenueBase company graph. Exact, Similar, Related and Broad control how closely companies must fit your description. This list uses Exact for “muscular dystrophy organizations”; each Exact match badge shows search membership, not an individual similarity or quality score.

How many muscular dystrophy organizations are there based in the United States?

RevenueBase identified 43 company matches for muscular dystrophy organizations associated with the United States as of September 2026, using the meaning of business descriptions at Exact. This is the recorded matched set in the RevenueBase company graph.

What is the largest company on this list?

Parent Project Muscular Dystrophy tops the displayed preview by professional contacts tracked in RevenueBase. Recorded headquarters appear in the company rows.

Which city has the most muscular dystrophy organizations?

New York leads with 2 company records, followed by Newport Beach (2) and Peekskill (2).

How do I get contact information for these companies?

A free RevenueBase account lets you run this exact search and work limited free results with 500 credits to start. Upgrading provides access to the 123 professional contacts with verified work emails tracked across these 43 companies; direct dials are available where recorded.

How current is this list?

The list refreshes periodically as the company graph is re-checked. This page's figures were pulled on September 20, 2026.

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About this data

RevenueBase is a B2B data infrastructure company. Its company graph covers 60 million companies and 398.9 million professional contacts, with emails verified on a rolling cadence rather than scraped once and left to decay. These company lists are generated directly from that graph with RevenueBase SmartSearch, the same natural-language company search every RevenueBase user has: describe a market in plain words, get the companies that match, and add verified emails and direct dials for the people at them. It is the same data that powers RevenueBase's B2B data products, and a free account includes 500 credits to start. How these lists are built and judged.