Company lists · Data refreshed September 2026

Top 25 Muscular dystrophy organizations worldwide

RevenueBase identified 148 company matches for muscular dystrophy organizations worldwide as of September 2026 and tracks 2,559 professional contacts across them, including 510 with verified work emails. The United States is the largest market and London the largest hub.

This list covers company matches for muscular dystrophy organizations worldwide, found by RevenueBase SmartSearch using the meaning of business descriptions in its company graph at Exact. Ranked by professionals tracked, largest first. Rows show recorded descriptions where available, Exact search membership and the snapshot date. Data refreshed September 20, 2026. Country and city lists for muscular dystrophy organizations follow the table.

Published by RevenueBase, a B2B data infrastructure company. This list was built with RevenueBase SmartSearch, the natural-language company search RevenueBase customers use to build their own targeted lists and unlock verified emails and direct dials at the companies on them. How these lists are built and judged.

How to read this list RevenueBase SmartSearch · Exact Recorded Sep 20, 2026 How this list was built
148Companies
2,559Contacts tracked
510Verified emails
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The 25 largest muscular dystrophy organizations worldwide

Ranked by team size
Top 25 of 148 company matches for muscular dystrophy organizations worldwide, ordered by professional contacts tracked in RevenueBase, largest first. Recorded Sep 20, 2026. The RevenueBase SmartSearch column shows Exact match membership in this saved search. Click a contact count to view that company's people. Totals use company locations recorded by RevenueBase; the displayed preview is a smaller selection.
#CompanyRevenueBase SmartSearchHeadquartersEmployeesContacts
1Exact matchRoma, ItalyHQ recorded Sep 20, 202651-200291 contacts →

Exact match

“Founded in 1990, Telethon Italy is one of the biggest biomedical charity in Italy, whose mission is to advance biomedical research towards the diagnosis, cure and prevention of…”

Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase
2Exact matchAarhus, DenmarkHQ recorded Sep 20, 202611-50143 contacts →

Exact match

“Muskelsvindfonden er en forening, et fællesskab og en bevægelse.”

Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase
3Exact matchLondon, United KingdomHQ recorded Sep 20, 202651-200138 contacts →

Exact match

“We connect a community of over people living with one of 60 muscle wasting and weakening conditions, and all the people around them.”

Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase
4Exact matchToronto, ON, CanadaHQ recorded Sep 20, 202611-5064 contacts →

Exact match

“Muscular Dystrophy Canada's mission is to enhance the lives of those affected with neuromuscular disorders by continually working to provide ongoing support and resources while…”

Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase
5Exact matchBaarn, NetherlandsHQ recorded Sep 20, 202611-5053 contacts →

Exact match

“Spierziekten Nederland komt op voor mensen met een spierziekte.”

Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase
6Exact matchWashington Dc, United StatesHQ recorded Sep 20, 202611-5052 contacts →

Exact match

“Parent Project Muscular Dystrophy fights to end Duchenne.”

Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase
7Exact matchMA, United StatesHQ recorded Sep 20, 202611-5047 contacts →

Exact match

“The FSHD Society is the world’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular…”

Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase
8Exact matchThe Hague, NetherlandsHQ recorded Sep 20, 202611-5042 contacts →

Exact match

“Het Prinses Beatrix Spierfonds zet zich in voor mensen met een spierziekte in Nederland.”

Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase
9Exact matchRoma, ItalyHQ recorded Sep 20, 202611-5040 contacts →

Exact match

“La missione di Parent Project è quella di migliorare il trattamento, la qualità della vita e le prospettive a lungo termine di tutte le persone affette da distrofia muscolare di…”

Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase
10Exact matchNewport Beach, CA, United StatesHQ recorded Sep 20, 202611-5035 contacts →

Exact match

“CureDuchenne is the global leader in Duchenne research, patient care and innovation.”

Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase
11Exact matchLondon, United KingdomHQ recorded Sep 20, 202611-5028 contacts →

Exact match

“Duchenne UK is an ambitious and highly focused charity with a clear vision: to fund and accelerate effective treatments for Duchenne muscular dystrophy (DMD).”

Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase
12Exact matchUtrecht, NetherlandsHQ recorded Sep 20, 202611-5024 contacts →

Exact match

“Kinderen met een spierziekte moeten elke dag een oneerlijke wedstrijd spelen.”

Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase
13Exact matchOakland, CA, United StatesHQ recorded Sep 20, 20261-1018 contacts →

Exact match

“We envision a world with treatments and a cure for myotonic dystrophy (DM).”

Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase
14Exact matchSeattle, WA, United StatesHQ recorded Sep 20, 20261-1018 contacts →

Exact match

“Our mission is to orchestrate a cure for muscular dystrophies caused by dysferlin protein deficiency.”

Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase
15Exact matchUnderwood, AustraliaHQ recorded Sep 20, 202611-5017 contacts →

Exact match

“Muscular Dystrophy Queensland exists for people who live with muscular dystrophy and similar neuromuscular conditions in Queensland.”

Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase
16Exact matchSydney, AustraliaHQ recorded Sep 20, 20261-1017 contacts →

Exact match

“With a commitment to complete transparency and accountability the Foundation is leading the charge to fund world class medical research, awareness and education in its aim to find…”

Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase
17Exact matchCheshire, United KingdomHQ recorded Sep 20, 202611-5017 contacts →

Exact match

“The NeuroMuscular Centre is a charitable organisation based in Winsford, Cheshire that provides a range of unique services including Physiotherapy, work opportunities and…”

Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase
18Exact matchBristol, United KingdomHQ recorded Sep 20, 20261-1016 contacts →

Exact match

“Duchenne muscular dystrophy (DMD) is a rare and complex genetic muscle wasting condition, mainly affecting males.”

Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase
19Exact matchPlymouth, MA, United StatesHQ recorded Sep 20, 202611-5014 contacts →

Exact match

“In 2001, Christine and Stephen McSherry started Jett Foundation after learning the devastating news that their then five-year-old son, Jett, had Duchenne muscular dystrophy.”

Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase
20Exact matchVeenendaal, NetherlandsHQ recorded Sep 20, 20261-1014 contacts →

Exact match

“Duchenne Parent Project wil meer, beter en sneller onderzoek naar Duchenne Spierdystrofie.”

Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase
21Exact matchLondon, ON, CanadaHQ recorded Sep 20, 20261-1014 contacts →

Exact match

“One in every boys is born with Duchenne muscular dystrophy, the most common fatal form of muscular dystrophy.”

Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase
22Exact matchSingaporeHQ recorded Sep 20, 202611-5010 contacts →

Exact match

“MDAS (Muscular Dystrophy Association (Singapore)) was founded in to provide care and support to people with Muscular Dystrophy (MD) in Singapore.”

Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase
23Exact matchHurlstone Park, AustraliaHQ recorded Sep 20, 20261-109 contacts →

Exact match

“Save Our Sons Duchenne Foundation was founded in 2008 and is now the peak body for those living with Duchenne and Becker muscular dystrophy across Australia.”

Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase
24Exact matchAmsterdam, United StatesHQ recorded Sep 20, 202611-509 contacts →

Exact match

“Stichting MD is a charity dedicated to the cause of Myotonic Dystrophy, the most prevalent inherited neuromuscular-related disorder.”

Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase
25Exact matchMadrid, SpainHQ recorded Sep 20, 202611-509 contacts →

Exact match

“Duchenne Parent Project España (DPPE) es una asociación sin ánimo de lucro creada y dirigida por padres y madres de niños con Distrofia Muscular de Duchenne (DMD) y Becker (DMB).”

Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase

Showing 25 of 148 muscular dystrophy organizations worldwide

See the full list, filter by size, metro and specialty, and access 510 tracked professional contacts with verified work emails. Direct dials are available where recorded.

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Muscular dystrophy organizations worldwide at a glance

As of Sep 20, 2026
19.9%Verified-email coverage
17.3Average contacts per company
1-10Median size (employees)
2.7%Largest-city concentration · London
Sep 20, 2026Page data refreshed

Companies by employee count

1-10
103
11-50
36
51-200
6
201-500
1
1,001-5,000
1

Email recency is reported on each country list linked below.

How this list was built

The recorded descriptions help you assess these company matches. Check a company’s website for its current services and locations.

Source
The RevenueBase company graph: 60 million companies and 398.9 million professional contacts resolved from primary sources, queried with RevenueBase SmartSearch, the natural-language company search available to every RevenueBase user.
Coverage
Every country. Country and city lists for muscular dystrophy organizations are linked below.
What qualifies
Company records worldwide whose business descriptions match “muscular dystrophy organizations” by meaning at the Exact setting. Descriptions are compiled in the RevenueBase company graph from public websites, profiles and company information where available; they are not guaranteed quotations from the company's website.
RevenueBase SmartSearch
Describe a niche company in your own words to find businesses by meaning. Exact, Similar, Related and Broad control the breadth of RevenueBase SmartSearch. This saved list uses Exact. Each row's Exact match badge shows inclusion in that search, not an individual score or a service-quality judgment.
Public preview
The public preview omits records without a verified work email. Dataset totals and geographic summaries describe the full matched records before these preview filters.
Match quality
RevenueBase's August 25, 2026 study assessed 4,198 description/company pairs across matching settings. The publisher reports 86% good or better at Exact. This evaluates the method across queries; it does not audit this individual list. Recorded company descriptions, where available, help you judge each match yourself. Read the full methodology: how the lists are built and what the study measures.
Ranking
Team size, largest first: companies are ordered by the number of professionals RevenueBase tracks at each one. Employee ranges shown are reported bands, for context.
Verification
Every displayed company carries at least one verified work email. RevenueBase tracks 510 professional contacts with verified work emails across the full matched dataset. Contacts re-verify on a rolling cadence, and each contact's own verification date is shown inside RevenueBase.
Refresh
This page's figures were pulled from the company graph on September 20, 2026. Lists refresh periodically as the graph is re-checked.
Record context
Company records and descriptions can change. Check the company's website for its current services and locations.

Muscular dystrophy organizations by location

1 lists · largest first

Every Muscular dystrophy organizations list RevenueBase publishes, by country and city. Counts are matching companies in each list as of its own refresh date.

Countries

Frequently asked

What is RevenueBase SmartSearch?

RevenueBase SmartSearch finds niche companies by the meaning of their business descriptions in the RevenueBase company graph. Exact, Similar, Related and Broad control how closely companies must fit your description. This list uses Exact for “muscular dystrophy organizations”; each Exact match badge shows search membership, not an individual similarity or quality score.

How many muscular dystrophy organizations are there worldwide?

RevenueBase identified 148 company matches for muscular dystrophy organizations worldwide as of September 2026, using the meaning of business descriptions at Exact. This is the recorded matched set in the RevenueBase company graph.

What is the largest company on this list?

Fondazione Telethon tops the displayed preview by professional contacts tracked in RevenueBase. Recorded headquarters appear in the company rows.

Which country has the most muscular dystrophy organizations?

The United States leads with 43 companies. Every muscular dystrophy organizations list by country and city is linked on this page.

Which city has the most muscular dystrophy organizations?

London leads with 4 company records, followed by Roma (4) and Barcelona (2).

How do I get contact information for these companies?

A free RevenueBase account lets you run this exact search and work limited free results with 500 credits to start. Upgrading provides access to the 510 professional contacts with verified work emails tracked across these 148 companies; direct dials are available where recorded.

How current is this list?

The list refreshes periodically as the company graph is re-checked. This page's figures were pulled on September 20, 2026.

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About this data

RevenueBase is a B2B data infrastructure company. Its company graph covers 60 million companies and 398.9 million professional contacts, with emails verified on a rolling cadence rather than scraped once and left to decay. These company lists are generated directly from that graph with RevenueBase SmartSearch, the same natural-language company search every RevenueBase user has: describe a market in plain words, get the companies that match, and add verified emails and direct dials for the people at them. It is the same data that powers RevenueBase's B2B data products, and a free account includes 500 credits to start. How these lists are built and judged.