Company lists · Data refreshed September 2026
Top 25 Muscular dystrophy organizations worldwide
RevenueBase identified 148 muscular dystrophy organizations worldwide as of September 2026 and tracks 2,559 professional contacts across them, including 510 with verified work emails. The United States is the largest market and London the largest hub.
This list covers muscular dystrophy organizations worldwide, matched on what each company actually does as described in its own words. Ranked by team size, largest first. Every row shows the company's own description, its RevenueBase Smart Search rating, and when it was last checked. Data refreshed September 20, 2026. Country and city lists for muscular dystrophy organizations follow the table.
Published by RevenueBase, a B2B data infrastructure company. This list was built with RevenueBase Smart Search, the natural-language company search RevenueBase customers use to build their own targeted lists and unlock verified emails and direct dials at the companies on them. How these lists are built and judged.
The 25 largest muscular dystrophy organizations worldwide
Ranked by team size| # | Company | Contacts | |||
|---|---|---|---|---|---|
| 1 | 291 contacts → | ||||
Indirect evidence “Founded in 1990, Telethon Italy is one of the biggest biomedical charity in Italy, whose mission is to advance biomedical research towards the diagnosis, cure and prevention of…” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 2 | 143 contacts → | ||||
Indirect evidence “Muskelsvindfonden er en forening, et fællesskab og en bevægelse.” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 3 | 138 contacts → | ||||
Indirect evidence “We connect a community of over people living with one of 60 muscle wasting and weakening conditions, and all the people around them.” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 4 | 64 contacts → | ||||
Strong evidence “Muscular Dystrophy Canada's mission is to enhance the lives of those affected with neuromuscular disorders by continually working to provide ongoing support and resources while…” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 5 | 53 contacts → | ||||
Indirect evidence “Spierziekten Nederland komt op voor mensen met een spierziekte.” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 6 | 52 contacts → | ||||
Strong evidence “Parent Project Muscular Dystrophy fights to end Duchenne.” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 7 | 47 contacts → | ||||
Strong evidence “The FSHD Society is the world’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular…” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 8 | 42 contacts → | ||||
Indirect evidence “Het Prinses Beatrix Spierfonds zet zich in voor mensen met een spierziekte in Nederland.” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 9 | 40 contacts → | ||||
Indirect evidence “La missione di Parent Project è quella di migliorare il trattamento, la qualità della vita e le prospettive a lungo termine di tutte le persone affette da distrofia muscolare di…” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 10 | 35 contacts → | ||||
Indirect evidence “CureDuchenne is the global leader in Duchenne research, patient care and innovation.” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 11 | 28 contacts → | ||||
Strong evidence “Duchenne UK is an ambitious and highly focused charity with a clear vision: to fund and accelerate effective treatments for Duchenne muscular dystrophy (DMD).” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 12 | 24 contacts → | ||||
Indirect evidence “Kinderen met een spierziekte moeten elke dag een oneerlijke wedstrijd spelen.” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 13 | 18 contacts → | ||||
Partial evidence “We envision a world with treatments and a cure for myotonic dystrophy (DM).” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 14 | 18 contacts → | ||||
Strong evidence “Our mission is to orchestrate a cure for muscular dystrophies caused by dysferlin protein deficiency.” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 15 | 17 contacts → | ||||
Strong evidence “Muscular Dystrophy Queensland exists for people who live with muscular dystrophy and similar neuromuscular conditions in Queensland.” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 16 | 17 contacts → | ||||
Indirect evidence “With a commitment to complete transparency and accountability the Foundation is leading the charge to fund world class medical research, awareness and education in its aim to find…” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 17 | 17 contacts → | ||||
Indirect evidence “The NeuroMuscular Centre is a charitable organisation based in Winsford, Cheshire that provides a range of unique services including Physiotherapy, work opportunities and…” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 18 | 16 contacts → | ||||
Strong evidence “Duchenne muscular dystrophy (DMD) is a rare and complex genetic muscle wasting condition, mainly affecting males.” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 19 | 14 contacts → | ||||
Strong evidence “In 2001, Christine and Stephen McSherry started Jett Foundation after learning the devastating news that their then five-year-old son, Jett, had Duchenne muscular dystrophy.” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 20 | 14 contacts → | ||||
Indirect evidence “Duchenne Parent Project wil meer, beter en sneller onderzoek naar Duchenne Spierdystrofie.” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 21 | 14 contacts → | ||||
Strong evidence “One in every boys is born with Duchenne muscular dystrophy, the most common fatal form of muscular dystrophy.” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 22 | 10 contacts → | ||||
Strong evidence “MDAS (Muscular Dystrophy Association (Singapore)) was founded in to provide care and support to people with Muscular Dystrophy (MD) in Singapore.” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 23 | 9 contacts → | ||||
Strong evidence “Save Our Sons Duchenne Foundation was founded in 2008 and is now the peak body for those living with Duchenne and Becker muscular dystrophy across Australia.” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 24 | 9 contacts → | ||||
Partial evidence “Stichting MD is a charity dedicated to the cause of Myotonic Dystrophy, the most prevalent inherited neuromuscular-related disorder.” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 25 | 9 contacts → | ||||
Partial evidence “Duchenne Parent Project España (DPPE) es una asociación sin ánimo de lucro creada y dirigida por padres y madres de niños con Distrofia Muscular de Duchenne (DMD) y Becker (DMB).” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
RevenueBase Smart Search
RevenueBase Smart Search assesses information from a company’s LinkedIn profile, information supplied directly by the company, its website, and other publicly available sources. It uses that information to rate how closely the company relates to this list’s category: muscular dystrophy organizations. Every row carries its rating and the description the rating was read from, so each one can be checked rather than taken on trust.
- Strong evidence
- The company's own public description of its business names muscular dystrophy organizations.
- Partial evidence
- Its own public description names part of muscular dystrophy organizations, so it works in or next to the category without describing itself that way.
- Indirect evidence
- The description shown does not name muscular dystrophy organizations. The match rests on the rest of the company's public profile rather than the one sentence quoted here, so this is the rating to check first.
RevenueBase Smart Search is how these lists are built: RevenueBase's data engine and AI assemble the companies that match a category defined in a user's own words, so a list can be about what companies actually do rather than about whichever industry code they were filed under.
Showing 25 of 148 muscular dystrophy organizations worldwide
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Muscular dystrophy organizations worldwide at a glance
As of Sep 20, 2026Companies by employee count
Email recency is reported on each country list linked below.
How this list was built
Company categories are rarely black and white. RevenueBase reads each company's own description of its business to decide whether it belongs among muscular dystrophy organizations, so some rows will be adjacent to the category rather than pure plays. The description and RevenueBase Smart Search rating on every row are there so you can check each match yourself.
- Source
- The RevenueBase company graph: 60 million companies and 398.9 million professional contacts resolved from primary sources, queried with RevenueBase Smart Search, the natural-language company search available to every RevenueBase user.
- Coverage
- Every country. Country and city lists for muscular dystrophy organizations are linked below.
- What qualifies
- Companies worldwide whose own description of what they do matches “muscular dystrophy organizations”. Matching reads each company's description, not its industry code or its name.
- RevenueBase Smart Search
- RevenueBase Smart Search is how this list is assembled and how each row is rated. RevenueBase's data engine and AI assess a company's LinkedIn profile, information supplied directly by the company, its website and other publicly available information, then relate it to a category defined in a user's own words. Each row is rated strong evidence (its own description names muscular dystrophy organizations), partial evidence (it names part of the category) or indirect evidence (the description shown names none of it and the match rests on the rest of the company's profile). The description supporting each rating is quoted on the row.
- What we exclude
- Companies whose own description does not clearly place them among muscular dystrophy organizations, and records with no verified work email.
- Match quality
- In blind human judging of this matching method, 86% of matched companies were on target. Expect roughly 1 in 7 rows to be adjacent to the category rather than a pure play. Every row shows the company's own description and its RevenueBase Smart Search rating so you can judge each match yourself. Read the full methodology: how the lists are built, how the judging worked, and what the figure means.
- Ranking
- Team size, largest first: companies are ordered by the number of professionals RevenueBase tracks at each one. Employee ranges shown are reported bands, for context.
- Verification
- Every listed company carries at least one verified work email, 510 across the full list. Contacts re-verify on a rolling cadence, and each contact's own verification date is shown inside RevenueBase.
- Refresh
- This page's figures were pulled from the company graph on September 20, 2026. Lists refresh periodically as the graph is re-checked.
- Corrections
- Wrong category, wrong headquarters, or a company that has closed? Use “Report an issue” on any row. Reports go to the RevenueBase Data Team and feed back into the company graph.
Muscular dystrophy organizations by location
1 lists · largest firstEvery Muscular dystrophy organizations list RevenueBase publishes, by country and city. Counts are matching companies in each list as of its own refresh date.
Countries
Frequently asked
What is RevenueBase Smart Search?
RevenueBase Smart Search is how RevenueBase decides which companies belong on this list and how strongly each one fits. Its data engine and AI assess a company's LinkedIn profile, information supplied directly by the company, its website and other publicly available information, then relate it to the category the list is about. Each row is rated strong evidence when the company's own description names muscular dystrophy organizations, partial evidence when it names part of the category, and indirect evidence when the description shown names none of it and the match rests on the rest of the company's profile.
How many muscular dystrophy organizations are there worldwide?
RevenueBase identified 148 muscular dystrophy organizations worldwide as of September 2026, matched on each company's own description of what it does rather than its industry code.
What is the largest company on this list?
Fondazione Telethon, headquartered in Roma, tops this list with the largest team on record.
Which country has the most muscular dystrophy organizations?
The United States leads with 43 companies. Every muscular dystrophy organizations list by country and city is linked on this page.
Which city has the most muscular dystrophy organizations?
London leads with 4 headquartered companies, followed by Roma (4) and Barcelona (2).
How do I get contact information for these companies?
A free RevenueBase account lets you run this exact search and work the top results, verified emails and direct dials included. Upgrading unlocks all 510 verified decision-maker contacts tracked across these 148 companies.
How current is this list?
The list refreshes periodically as the company graph is re-checked. This page's figures were pulled on September 20, 2026.
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About this data
RevenueBase is a B2B data infrastructure company. Its company graph covers 60 million companies and 398.9 million professional contacts, with emails verified on a rolling cadence rather than scraped once and left to decay. These company lists are generated directly from that graph with RevenueBase Smart Search, the same natural-language company search every RevenueBase user has: describe a market in plain words, get the companies that match, and add verified emails and direct dials for the people at them. It is the same data that powers RevenueBase's B2B data products, and a free account includes 500 credits to start. How these lists are built and judged.