Company lists · Data refreshed November 2026

Top 25 Disease-specific foundations based in the United States

RevenueBase identified 196 company matches for disease-specific foundations associated with the United States as of November 2026 and tracks 1,090 professional contacts across them, including 350 with verified work emails. New York is the largest hub.

This list covers company matches for disease-specific foundations associated with the United States, found by RevenueBase SmartSearch using the meaning of business descriptions in its company graph at Exact. Ranked by professionals tracked, largest first. Rows show recorded descriptions where available, Exact search membership and the snapshot date. Data refreshed November 6, 2026.

Published by RevenueBase, a B2B data infrastructure company. This list was built with RevenueBase SmartSearch, the natural-language company search RevenueBase customers use to build their own targeted lists and unlock verified emails and direct dials at the companies on them. How these lists are built and judged.

How to read this list RevenueBase SmartSearch · Exact Recorded Nov 6, 2026 How this list was built
196Companies
1,090Contacts tracked
350Verified emails
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The 25 largest disease-specific foundations based in the United States

Ranked by team size
Top 25 of 196 company matches for disease-specific foundations based in the United States, ordered by professional contacts tracked in RevenueBase, largest first. Recorded Nov 6, 2026. The RevenueBase SmartSearch column shows Exact match membership in this saved search. Click a contact count to view that company's people. Totals use company locations recorded by RevenueBase; the displayed preview is a smaller selection.
#CompanyRevenueBase SmartSearchHeadquartersEmployeesContacts
1Exact matchHampton, VA, United StatesHQ recorded Nov 6, 202651-200143 contacts →

Exact match

“Established in 1996, Patient Advocate Foundation has been breaking down healthcare barriers for patients diagnosed with chronic, life threatening and/or debilitating illnesses by…”

Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase
2Exact matchAtlanta, GA, United StatesHQ recorded Nov 6, 202611-5031 contacts →

Exact match

“Since 1971, the Sickle Cell Foundation of Georgia, Inc.”

Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase
3Exact matchCleveland, OH, United StatesHQ recorded Nov 6, 20261-1028 contacts →

Exact match

Recorded description not available.

Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase
4Exact matchMerion Station, PA, United StatesHQ recorded Nov 6, 20261-1021 contacts →

Exact match

“Emily's Entourage (EE) is an innovative 501(c)3 foundation that accelerates research for new treatments and a cure for individuals in the final 10% of the cystic fibrosis (CF)…”

Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase
5Exact matchSan Diego, CA, United StatesHQ recorded Nov 6, 202611-5021 contacts →

Exact match

“CureScience Institute is a US-based 501(c)(3) nonprofit organization, accelerates the advancement of personalized medicine through translational research and the development of…”

Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase
6Exact matchHerndon, VA, United StatesHQ recorded Nov 6, 202611-5020 contacts →

Exact match

“Indo US Organization for rare diseases (IndoUSrare) is an independent non-profit organization focused on helping patients with rare diseases of Indian origin in the USA, India, &…”

Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase
7Exact matchSt. Louis, MO, United StatesHQ recorded Nov 6, 202611-5018 contacts →

Exact match

“MISSION: The International Foundation for Autoimmune & Autoinflammatory Arthritis (AiArthritis) is a leader in education, advocacy/policy, and research for those affected by…”

Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase
8Exact matchFranklin, TN, United StatesHQ recorded Nov 6, 20261-1017 contacts →

Exact match

“The Scott Hamilton CARES Foundation, established as a national identity in 2014, is dedicated to changing the future of cancer by funding advanced, innovative research that treats…”

Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase
9Exact matchPitman, NJ, United StatesHQ recorded Nov 6, 20261-1016 contacts →

Exact match

“The Histiocytosis Association is a global nonprofit organization dedicated to addressing the unique needs of patients and families dealing with the effects of histiocytic…”

Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase
10Exact matchCosta Mesa, CA, United StatesHQ recorded Nov 6, 20261-1016 contacts →

Exact match

“Founded in 1985, the John Wayne Cancer Foundation was created to honor John Wayne's wish to use his name to fight cancer.”

Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase
11Exact matchPalo Alto, CA, United StatesHQ recorded Nov 6, 20261-1015 contacts →

Exact match

“Additional Ventures is a foundation working toward a cure for single ventricle heart disease, a rare and complex form of congenital heart disease.”

Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase
12Exact matchHouston, TX, United StatesHQ recorded Nov 6, 202611-5015 contacts →

Exact match

“The Kelsey Research Foundation (KRF) was established on December 15, 1956, by several physicians of the Kelsey-Seybold Clinic, including John R.”

Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase
13Exact matchCincinnati, OH, United StatesHQ recorded Nov 6, 20261-1015 contacts →

Exact match

“MISSION To catalyze new treatments-and ultimately a cure-for LAM by advancing research, supporting compassionate care, and amplifying the voice of women with rare diseases.”

Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase
14Exact matchPonte Vedra Beach, FL, United StatesHQ recorded Nov 6, 20261-1013 contacts →

Exact match

“The Sontag Foundation, established in 2002, is a private family foundation strategically focused on advancing brain cancer research.”

Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase
15Exact matchPhiladelphia, United StatesHQ recorded Nov 6, 20261-1013 contacts →

Exact match

“The Desmoid Tumor Research Foundation (DTRF) is a nonprofit organization responsible for sparking the desmoid tumor research movement that has now grown into a thriving global…”

Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase
16Exact matchPortland, OR, United StatesHQ recorded Nov 6, 20261-1013 contacts →

Exact match

“The Brian Grant Foundation empowers people impacted by Parkinson's disease to lead active and fulfilling lives.”

Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase
17Exact matchRockville, MD, United StatesHQ recorded Nov 6, 202611-5012 contacts →

Exact match

“The Aplastic Anemia and MDS International Foundation is an American nonprofit health and patient advocacy organization that supports, connects and educates patients, caregivers…”

Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase
18Exact matchStanton, KY, United StatesHQ recorded Nov 6, 20261-1011 contacts →

Exact match

“The website PFIC.org was founded in 2002 by a mom who wanted to know all she could about her daughter’s disease.”

Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase
19Exact matchAgoura Hills, CA, United StatesHQ recorded Nov 6, 20261-1011 contacts →

Exact match

“Open Medicine Foundation (OMF) is leading research of chronic, complex diseases and delivering hope.”

Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase
20Exact matchSacramento, CA, United StatesHQ recorded Nov 6, 20261-1010 contacts →

Exact match

“Founded in 2004, AIM at Melanoma is a global foundation dedicated to finding more effective treatments and, ultimately, the cure for melanoma.”

Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase
21Exact matchNew York, NY, United StatesHQ recorded Nov 6, 202611-5010 contacts →

Exact match

“At Know Rare, we aim to connect people living with rare diseases to information about their conditions as well as to specialists, clinical studies, advocacy organizations, and…”

Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase
22Exact matchConcord, NH, United StatesHQ recorded Nov 6, 20261-1010 contacts →

Exact match

“The Endowment for Health is a statewide, private, nonprofit foundation dedicated to improving the health of New Hampshire's people, especially those who are vulnerable and…”

Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase
23Exact matchRaleigh, NC, United StatesHQ recorded Nov 6, 20261-109 contacts →

Exact match

“Since 1995, the AKC Canine Health Foundation has leveraged the power of science to address the health needs of all dogs.”

Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase
24Exact matchWashington, DC, United StatesHQ recorded Nov 6, 20261-109 contacts →

Exact match

“ASH Research Collaborative is a company based out of Washington, DC, United States.”

Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase
25Exact matchPhiladelphia, PA, United StatesHQ recorded Nov 6, 20261-108 contacts →

Exact match

“The Siegel Rare Neuroimmune Association (SRNA) is a not-for-profit international foundation dedicated to the support of children, adolescents, and adults with a spectrum of rare…”

Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase

Showing 25 of 196 disease-specific foundations based in the United States

See the full list, filter by size, metro and specialty, and access 350 tracked professional contacts with verified work emails. Direct dials are available where recorded.

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Disease-specific foundations based in the United States at a glance

As of Nov 6, 2026
32.1%Verified-email coverage
5.6Average contacts per company
1-10Median size (employees)
2.6%Largest-city concentration · New York
Nov 6, 2026Page data refreshed

Companies by employee count

1-10
155
11-50
34
51-200
1
201-500
1
501-1,000
3

Email recency for this list is measured worldwide rather than for United States, so it is reported there. Company counts and contact totals on this page are exact for United States, over 196 companies.

How this list was built

The recorded descriptions help you assess these company matches. Check a company’s website for its current services and locations.

Source
The RevenueBase company graph: 60 million companies and 398.9 million professional contacts resolved from primary sources, queried with RevenueBase SmartSearch, the natural-language company search available to every RevenueBase user.
What qualifies
Company records associated with the United States whose business descriptions match “disease-specific foundations” by meaning at the Exact setting. Descriptions are compiled in the RevenueBase company graph from public websites, profiles and company information where available; they are not guaranteed quotations from the company's website.
RevenueBase SmartSearch
Describe a niche company in your own words to find businesses by meaning. Exact, Similar, Related and Broad control the breadth of RevenueBase SmartSearch. This saved list uses Exact. Each row's Exact match badge shows inclusion in that search, not an individual score or a service-quality judgment.
Public preview
The public preview omits records without a verified work email. Where headquarters information is recorded, preview rows are also filtered to this page’s location. Dataset totals and geographic summaries describe the full matched records before these preview filters.
Match quality
RevenueBase's August 25, 2026 study assessed 4,198 description/company pairs across matching settings. The publisher reports 86% good or better at Exact. This evaluates the method across queries; it does not audit this individual list. Recorded company descriptions, where available, help you judge each match yourself. Read the full methodology: how the lists are built and what the study measures.
Ranking
Team size, largest first: companies are ordered by the number of professionals RevenueBase tracks at each one. Employee ranges shown are reported bands, for context.
Verification
Every displayed company carries at least one verified work email. RevenueBase tracks 350 professional contacts with verified work emails across the full matched dataset. Contacts re-verify on a rolling cadence, and each contact's own verification date is shown inside RevenueBase.
Refresh
This page's figures were pulled from the company graph on November 6, 2026. Lists refresh periodically as the graph is re-checked.
Record context
Company records and descriptions can change. Check the company's website for its current services and locations.

Frequently asked

What is RevenueBase SmartSearch?

RevenueBase SmartSearch finds niche companies by the meaning of their business descriptions in the RevenueBase company graph. Exact, Similar, Related and Broad control how closely companies must fit your description. This list uses Exact for “disease-specific foundations”; each Exact match badge shows search membership, not an individual similarity or quality score.

How many disease-specific foundations are there based in the United States?

RevenueBase identified 196 company matches for disease-specific foundations associated with the United States as of November 2026, using the meaning of business descriptions at Exact. This is the recorded matched set in the RevenueBase company graph.

What is the largest company on this list?

Patient Advocate Foundation tops the displayed preview by professional contacts tracked in RevenueBase. Recorded headquarters appear in the company rows.

Which city has the most disease-specific foundations?

New York leads with 5 company records, followed by St. Louis (5) and Atlanta (4).

How do I get contact information for these companies?

A free RevenueBase account lets you run this exact search and work limited free results with 500 credits to start. Upgrading provides access to the 350 professional contacts with verified work emails tracked across these 196 companies; direct dials are available where recorded.

How current is this list?

The list refreshes periodically as the company graph is re-checked. This page's figures were pulled on November 6, 2026.

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About this data

RevenueBase is a B2B data infrastructure company. Its company graph covers 60 million companies and 398.9 million professional contacts, with emails verified on a rolling cadence rather than scraped once and left to decay. These company lists are generated directly from that graph with RevenueBase SmartSearch, the same natural-language company search every RevenueBase user has: describe a market in plain words, get the companies that match, and add verified emails and direct dials for the people at them. It is the same data that powers RevenueBase's B2B data products, and a free account includes 500 credits to start. How these lists are built and judged.