Company lists · Data refreshed November 2026
Top 25 Disease-specific foundations based in the United States
RevenueBase identified 196 company matches for disease-specific foundations associated with the United States as of November 2026 and tracks 1,090 professional contacts across them, including 350 with verified work emails. New York is the largest hub.
This list covers company matches for disease-specific foundations associated with the United States, found by RevenueBase SmartSearch using the meaning of business descriptions in its company graph at Exact. Ranked by professionals tracked, largest first. Rows show recorded descriptions where available, Exact search membership and the snapshot date. Data refreshed November 6, 2026.
Published by RevenueBase, a B2B data infrastructure company. This list was built with RevenueBase SmartSearch, the natural-language company search RevenueBase customers use to build their own targeted lists and unlock verified emails and direct dials at the companies on them. How these lists are built and judged.
The 25 largest disease-specific foundations based in the United States
Ranked by team size| # | Company | Contacts | |||
|---|---|---|---|---|---|
| 1 | 143 contacts → | ||||
Exact match “Established in 1996, Patient Advocate Foundation has been breaking down healthcare barriers for patients diagnosed with chronic, life threatening and/or debilitating illnesses by…” Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase | |||||
| 2 | 31 contacts → | ||||
Exact match “Since 1971, the Sickle Cell Foundation of Georgia, Inc.” Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase | |||||
| 3 | 28 contacts → | ||||
Exact match Recorded description not available. Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase | |||||
| 4 | 21 contacts → | ||||
Exact match “Emily's Entourage (EE) is an innovative 501(c)3 foundation that accelerates research for new treatments and a cure for individuals in the final 10% of the cystic fibrosis (CF)…” Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase | |||||
| 5 | 21 contacts → | ||||
Exact match “CureScience Institute is a US-based 501(c)(3) nonprofit organization, accelerates the advancement of personalized medicine through translational research and the development of…” Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase | |||||
| 6 | 20 contacts → | ||||
Exact match “Indo US Organization for rare diseases (IndoUSrare) is an independent non-profit organization focused on helping patients with rare diseases of Indian origin in the USA, India, &…” Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase | |||||
| 7 | 18 contacts → | ||||
Exact match “MISSION: The International Foundation for Autoimmune & Autoinflammatory Arthritis (AiArthritis) is a leader in education, advocacy/policy, and research for those affected by…” Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase | |||||
| 8 | 17 contacts → | ||||
Exact match “The Scott Hamilton CARES Foundation, established as a national identity in 2014, is dedicated to changing the future of cancer by funding advanced, innovative research that treats…” Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase | |||||
| 9 | 16 contacts → | ||||
Exact match “The Histiocytosis Association is a global nonprofit organization dedicated to addressing the unique needs of patients and families dealing with the effects of histiocytic…” Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase | |||||
| 10 | 16 contacts → | ||||
Exact match “Founded in 1985, the John Wayne Cancer Foundation was created to honor John Wayne's wish to use his name to fight cancer.” Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase | |||||
| 11 | 15 contacts → | ||||
Exact match “Additional Ventures is a foundation working toward a cure for single ventricle heart disease, a rare and complex form of congenital heart disease.” Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase | |||||
| 12 | 15 contacts → | ||||
Exact match “The Kelsey Research Foundation (KRF) was established on December 15, 1956, by several physicians of the Kelsey-Seybold Clinic, including John R.” Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase | |||||
| 13 | 15 contacts → | ||||
Exact match “MISSION To catalyze new treatments-and ultimately a cure-for LAM by advancing research, supporting compassionate care, and amplifying the voice of women with rare diseases.” Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase | |||||
| 14 | 13 contacts → | ||||
Exact match “The Sontag Foundation, established in 2002, is a private family foundation strategically focused on advancing brain cancer research.” Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase | |||||
| 15 | 13 contacts → | ||||
Exact match “The Desmoid Tumor Research Foundation (DTRF) is a nonprofit organization responsible for sparking the desmoid tumor research movement that has now grown into a thriving global…” Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase | |||||
| 16 | 13 contacts → | ||||
Exact match “The Brian Grant Foundation empowers people impacted by Parkinson's disease to lead active and fulfilling lives.” Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase | |||||
| 17 | 12 contacts → | ||||
Exact match “The Aplastic Anemia and MDS International Foundation is an American nonprofit health and patient advocacy organization that supports, connects and educates patients, caregivers…” Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase | |||||
| 18 | 11 contacts → | ||||
Exact match “The website PFIC.org was founded in 2002 by a mom who wanted to know all she could about her daughter’s disease.” Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase | |||||
| 19 | 11 contacts → | ||||
Exact match “Open Medicine Foundation (OMF) is leading research of chronic, complex diseases and delivering hope.” Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase | |||||
| 20 | 10 contacts → | ||||
Exact match “Founded in 2004, AIM at Melanoma is a global foundation dedicated to finding more effective treatments and, ultimately, the cure for melanoma.” Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase | |||||
| 21 | 10 contacts → | ||||
Exact match “At Know Rare, we aim to connect people living with rare diseases to information about their conditions as well as to specialists, clinical studies, advocacy organizations, and…” Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase | |||||
| 22 | 10 contacts → | ||||
Exact match “The Endowment for Health is a statewide, private, nonprofit foundation dedicated to improving the health of New Hampshire's people, especially those who are vulnerable and…” Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase | |||||
| 23 | 9 contacts → | ||||
Exact match “Since 1995, the AKC Canine Health Foundation has leveraged the power of science to address the health needs of all dogs.” Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase | |||||
| 24 | 9 contacts → | ||||
Exact match “ASH Research Collaborative is a company based out of Washington, DC, United States.” Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase | |||||
| 25 | 8 contacts → | ||||
Exact match “The Siegel Rare Neuroimmune Association (SRNA) is a not-for-profit international foundation dedicated to the support of children, adolescents, and adults with a spectrum of rare…” Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase | |||||
RevenueBase SmartSearch
Describe a niche business in your own words. RevenueBase SmartSearch compares the meaning of your description with company business descriptions compiled in the RevenueBase company graph. Exact, Similar, Related and Broad control how closely companies must fit.
This list uses Exact for “disease-specific foundations”. Each Exact match badge shows membership in that saved search; it is not an individual similarity score or a service-quality rating. Recorded descriptions are shown where available.
Showing 25 of 196 disease-specific foundations based in the United States
See the full list, filter by size, metro and specialty, and access 350 tracked professional contacts with verified work emails. Direct dials are available where recorded.
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Disease-specific foundations based in the United States at a glance
As of Nov 6, 2026Companies by employee count
Email recency for this list is measured worldwide rather than for United States, so it is reported there. Company counts and contact totals on this page are exact for United States, over 196 companies.
How this list was built
The recorded descriptions help you assess these company matches. Check a company’s website for its current services and locations.
- Source
- The RevenueBase company graph: 60 million companies and 398.9 million professional contacts resolved from primary sources, queried with RevenueBase SmartSearch, the natural-language company search available to every RevenueBase user.
- What qualifies
- Company records associated with the United States whose business descriptions match “disease-specific foundations” by meaning at the Exact setting. Descriptions are compiled in the RevenueBase company graph from public websites, profiles and company information where available; they are not guaranteed quotations from the company's website.
- RevenueBase SmartSearch
- Describe a niche company in your own words to find businesses by meaning. Exact, Similar, Related and Broad control the breadth of RevenueBase SmartSearch. This saved list uses Exact. Each row's Exact match badge shows inclusion in that search, not an individual score or a service-quality judgment.
- Public preview
- The public preview omits records without a verified work email. Where headquarters information is recorded, preview rows are also filtered to this page’s location. Dataset totals and geographic summaries describe the full matched records before these preview filters.
- Match quality
- RevenueBase's August 25, 2026 study assessed 4,198 description/company pairs across matching settings. The publisher reports 86% good or better at Exact. This evaluates the method across queries; it does not audit this individual list. Recorded company descriptions, where available, help you judge each match yourself. Read the full methodology: how the lists are built and what the study measures.
- Ranking
- Team size, largest first: companies are ordered by the number of professionals RevenueBase tracks at each one. Employee ranges shown are reported bands, for context.
- Verification
- Every displayed company carries at least one verified work email. RevenueBase tracks 350 professional contacts with verified work emails across the full matched dataset. Contacts re-verify on a rolling cadence, and each contact's own verification date is shown inside RevenueBase.
- Refresh
- This page's figures were pulled from the company graph on November 6, 2026. Lists refresh periodically as the graph is re-checked.
- Record context
- Company records and descriptions can change. Check the company's website for its current services and locations.
Frequently asked
What is RevenueBase SmartSearch?
RevenueBase SmartSearch finds niche companies by the meaning of their business descriptions in the RevenueBase company graph. Exact, Similar, Related and Broad control how closely companies must fit your description. This list uses Exact for “disease-specific foundations”; each Exact match badge shows search membership, not an individual similarity or quality score.
How many disease-specific foundations are there based in the United States?
RevenueBase identified 196 company matches for disease-specific foundations associated with the United States as of November 2026, using the meaning of business descriptions at Exact. This is the recorded matched set in the RevenueBase company graph.
What is the largest company on this list?
Patient Advocate Foundation tops the displayed preview by professional contacts tracked in RevenueBase. Recorded headquarters appear in the company rows.
Which city has the most disease-specific foundations?
New York leads with 5 company records, followed by St. Louis (5) and Atlanta (4).
How do I get contact information for these companies?
A free RevenueBase account lets you run this exact search and work limited free results with 500 credits to start. Upgrading provides access to the 350 professional contacts with verified work emails tracked across these 196 companies; direct dials are available where recorded.
How current is this list?
The list refreshes periodically as the company graph is re-checked. This page's figures were pulled on November 6, 2026.
Ready to reach these companies? Verified emails and direct dials for all 196 disease-specific foundations based in the United States. Start with a free account, no credit card.
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Disease-specific foundations by geography
About this data
RevenueBase is a B2B data infrastructure company. Its company graph covers 60 million companies and 398.9 million professional contacts, with emails verified on a rolling cadence rather than scraped once and left to decay. These company lists are generated directly from that graph with RevenueBase SmartSearch, the same natural-language company search every RevenueBase user has: describe a market in plain words, get the companies that match, and add verified emails and direct dials for the people at them. It is the same data that powers RevenueBase's B2B data products, and a free account includes 500 credits to start. How these lists are built and judged.
More company lists
- All company lists
- Lists by location
- Lists A-Z
- New lists
- Disease-specific foundations based in the Netherlands
- AI companies based in the United States
- Cybersecurity companies based in the United States
- Manufacturing companies based in the United States
- Media companies based in the United States
- Oil and gas companies based in the United States
Company intelligence · public preview
Top 25 disease-specific foundations based in the United States
Find companies in any niche.
Describe the businesses you want in your own words. RevenueBase SmartSearch matches company descriptions by meaning.
RevenueBase records 196 matching company records for disease-specific foundations based in the United States, with 1,090 tracked contacts and 350 verified work emails.
This public preview shows 25 selected records ordered by tracked contacts. RevenueBase SmartSearch finds company descriptions that match by meaning at Exact. Snapshot: November 6, 2026.
RevenueBase compiles business descriptions for niche-company discovery; each row shows a recorded excerpt where available. Adapt this search to find the companies and contacts you want.
Top 25 disease-specific foundations based in the United States
The public list shows selected company records with contact and verified-email coverage. Reported employee bands provide separate company-size context.
| # | Company | Headquarters on record | Reported employees | RevenueBase SmartSearch | Tracked contacts |
|---|---|---|---|---|---|
| 1 | HQ: Hampton, VA, United StatesReported employees: 51-200 | Hampton, VA, United States | 51-200 | Exact match | 143 contacts → |
“Established in 1996, Patient Advocate Foundation has been breaking down healthcare barriers for patients diagnosed with chronic, life threatening and/or debilitating illnesses by…” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 2 | HQ: Atlanta, GA, United StatesReported employees: 11-50 | Atlanta, GA, United States | 11-50 | Exact match | 31 contacts → |
“Since 1971, the Sickle Cell Foundation of Georgia, Inc.” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 3 | HQ: Cleveland, OH, United StatesReported employees: 1-10 | Cleveland, OH, United States | 1-10 | Exact match | 28 contacts → |
No recorded description excerpt is available for this public record. | |||||
| 4 | HQ: Merion Station, PA, United StatesReported employees: 1-10 | Merion Station, PA, United States | 1-10 | Exact match | 21 contacts → |
“Emily's Entourage (EE) is an innovative 501(c)3 foundation that accelerates research for new treatments and a cure for individuals in the final 10% of the cystic fibrosis (CF)…” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 5 | HQ: San Diego, CA, United StatesReported employees: 11-50 | San Diego, CA, United States | 11-50 | Exact match | 21 contacts → |
“CureScience Institute is a US-based 501(c)(3) nonprofit organization, accelerates the advancement of personalized medicine through translational research and the development of…” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 6 | HQ: Herndon, VA, United StatesReported employees: 11-50 | Herndon, VA, United States | 11-50 | Exact match | 20 contacts → |
“Indo US Organization for rare diseases (IndoUSrare) is an independent non-profit organization focused on helping patients with rare diseases of Indian origin in the USA, India, &…” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 7 | HQ: St. Louis, MO, United StatesReported employees: 11-50 | St. Louis, MO, United States | 11-50 | Exact match | 18 contacts → |
“MISSION: The International Foundation for Autoimmune & Autoinflammatory Arthritis (AiArthritis) is a leader in education, advocacy/policy, and research for those affected by…” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 8 | HQ: Franklin, TN, United StatesReported employees: 1-10 | Franklin, TN, United States | 1-10 | Exact match | 17 contacts → |
“The Scott Hamilton CARES Foundation, established as a national identity in 2014, is dedicated to changing the future of cancer by funding advanced, innovative research that treats…” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 9 | HQ: Pitman, NJ, United StatesReported employees: 1-10 | Pitman, NJ, United States | 1-10 | Exact match | 16 contacts → |
“The Histiocytosis Association is a global nonprofit organization dedicated to addressing the unique needs of patients and families dealing with the effects of histiocytic…” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 10 | HQ: Costa Mesa, CA, United StatesReported employees: 1-10 | Costa Mesa, CA, United States | 1-10 | Exact match | 16 contacts → |
“Founded in 1985, the John Wayne Cancer Foundation was created to honor John Wayne's wish to use his name to fight cancer.” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 11 | HQ: Palo Alto, CA, United StatesReported employees: 1-10 | Palo Alto, CA, United States | 1-10 | Exact match | 15 contacts → |
“Additional Ventures is a foundation working toward a cure for single ventricle heart disease, a rare and complex form of congenital heart disease.” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 12 | HQ: Houston, TX, United StatesReported employees: 11-50 | Houston, TX, United States | 11-50 | Exact match | 15 contacts → |
“The Kelsey Research Foundation (KRF) was established on December 15, 1956, by several physicians of the Kelsey-Seybold Clinic, including John R.” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 13 | HQ: Cincinnati, OH, United StatesReported employees: 1-10 | Cincinnati, OH, United States | 1-10 | Exact match | 15 contacts → |
“MISSION To catalyze new treatments-and ultimately a cure-for LAM by advancing research, supporting compassionate care, and amplifying the voice of women with rare diseases.” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 14 | HQ: Ponte Vedra Beach, FL, United StatesReported employees: 1-10 | Ponte Vedra Beach, FL, United States | 1-10 | Exact match | 13 contacts → |
“The Sontag Foundation, established in 2002, is a private family foundation strategically focused on advancing brain cancer research.” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 15 | HQ: Philadelphia, United StatesReported employees: 1-10 | Philadelphia, United States | 1-10 | Exact match | 13 contacts → |
“The Desmoid Tumor Research Foundation (DTRF) is a nonprofit organization responsible for sparking the desmoid tumor research movement that has now grown into a thriving global…” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 16 | HQ: Portland, OR, United StatesReported employees: 1-10 | Portland, OR, United States | 1-10 | Exact match | 13 contacts → |
“The Brian Grant Foundation empowers people impacted by Parkinson's disease to lead active and fulfilling lives.” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 17 | HQ: Rockville, MD, United StatesReported employees: 11-50 | Rockville, MD, United States | 11-50 | Exact match | 12 contacts → |
“The Aplastic Anemia and MDS International Foundation is an American nonprofit health and patient advocacy organization that supports, connects and educates patients, caregivers…” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 18 | HQ: Stanton, KY, United StatesReported employees: 1-10 | Stanton, KY, United States | 1-10 | Exact match | 11 contacts → |
“The website PFIC.org was founded in 2002 by a mom who wanted to know all she could about her daughter’s disease.” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 19 | HQ: Agoura Hills, CA, United StatesReported employees: 1-10 | Agoura Hills, CA, United States | 1-10 | Exact match | 11 contacts → |
“Open Medicine Foundation (OMF) is leading research of chronic, complex diseases and delivering hope.” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 20 | HQ: Sacramento, CA, United StatesReported employees: 1-10 | Sacramento, CA, United States | 1-10 | Exact match | 10 contacts → |
“Founded in 2004, AIM at Melanoma is a global foundation dedicated to finding more effective treatments and, ultimately, the cure for melanoma.” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 21 | HQ: New York, NY, United StatesReported employees: 11-50 | New York, NY, United States | 11-50 | Exact match | 10 contacts → |
“At Know Rare, we aim to connect people living with rare diseases to information about their conditions as well as to specialists, clinical studies, advocacy organizations, and…” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 22 | HQ: Concord, NH, United StatesReported employees: 1-10 | Concord, NH, United States | 1-10 | Exact match | 10 contacts → |
“The Endowment for Health is a statewide, private, nonprofit foundation dedicated to improving the health of New Hampshire's people, especially those who are vulnerable and…” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 23 | HQ: Raleigh, NC, United StatesReported employees: 1-10 | Raleigh, NC, United States | 1-10 | Exact match | 9 contacts → |
“Since 1995, the AKC Canine Health Foundation has leveraged the power of science to address the health needs of all dogs.” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 24 | ASH Research Collaborativeashresearchcollaborative.org HQ: Washington, DC, United StatesReported employees: 1-10 | Washington, DC, United States | 1-10 | Exact match | 9 contacts → |
“ASH Research Collaborative is a company based out of Washington, DC, United States.” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 25 | HQ: Philadelphia, PA, United StatesReported employees: 1-10 | Philadelphia, PA, United States | 1-10 | Exact match | 8 contacts → |
“The Siegel Rare Neuroimmune Association (SRNA) is a not-for-profit international foundation dedicated to the support of children, adolescents, and adults with a spectrum of rare…” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
Showing 25 of 196 company matches
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Disease-specific foundations: dataset insights
November 6, 2026These summaries describe recorded coverage in this saved dataset. This page is derived from saved source records; per-contact mobile coverage and email-recency results are not established by this snapshot.
Reported company sizes
194 records in the displayed employee bands.
2 matching records are outside the displayed bands or do not have a displayed size. Bars show shares of the displayed bands.
Email recency for this list is measured worldwide rather than for United States, so it is reported there. Company counts and contact totals on this page are exact for United States, over 196 companies.
How this company list was built
Describe a niche in your own words: companies installing commercial solar, or manufacturers of sustainable packaging. RevenueBase SmartSearch finds companies whose compiled business descriptions match by meaning. This list is one saved example to adapt.
Where the company descriptions come from
RevenueBase compiles company information from public sources, including company websites and public professional profiles such as LinkedIn, alongside information supplied by companies. The short recorded excerpt shown here is separate from the complete business description used for matching; individual source URLs and collection dates are not provided in this public snapshot.
RevenueBase SmartSearch matching settings
- Exact
- Closest fits to the business described.
- Similar
- Similar businesses with a wider range of fits.
- Related
- Related businesses in and around the category.
- Broad
- A broader set of businesses connected to the description.
RevenueBase SmartSearch · Exact match identifies inclusion in this search's closest semantic matching setting. It is not a per-company confidence score, a literal keyword match, or a quality endorsement.
Selection, ordering and scope
The public list shows selected company records with contact and verified-email coverage. Reported employee bands provide separate company-size context.
This page is derived from saved source records; per-contact mobile coverage and email-recency results are not established by this snapshot.
Recorded company descriptions support research; check company websites for current services. The selected preview is ordered by tracked contacts and is not a list of the best service providers.
Snapshot: November 6, 2026.
RevenueBase is a B2B data infrastructure company. Its September 3, 2026 published methodology describes a graph of 60 million companies and 398.9 million professional contacts; these platform figures differ from this page's totals. Published methodology ↗
Questions about this company list
What does Exact match mean for disease-specific foundations?
The separate RevenueBase SmartSearch column identifies inclusion at the closest semantic matching preset. It is not a literal keyword match, a per-company confidence score or a quality endorsement. Changing the search form opens a new search in RevenueBase; it does not reclassify these saved rows.
How many disease-specific foundations did RevenueBase find based in the United States?
The saved snapshot records 196 matching company records, 1,090 tracked contacts and 350 verified emails. The public preview displays 25 selected records.
Where do the company descriptions come from?
RevenueBase compiles company information from public sources, including company websites and public professional profiles such as LinkedIn, alongside information supplied by companies. The short recorded excerpt shown here is separate from the complete business description used for matching; individual source URLs and collection dates are not provided in this public snapshot.
How are the public companies ordered?
The selected public records are ordered by contacts tracked in RevenueBase, highest first. Contact coverage is a prospecting measure, not an assessment of the company's services or quality.
How can I get contact information?
Select a company's contact count to open its filtered contacts in RevenueBase. Free signup is required and includes 500 credits and limited free results. Verified emails, direct dials and mobile numbers depend on available coverage.
How current is this list?
Snapshot: November 6, 2026. Review each company's website for current services and locations. A recorded business description does not establish that every company offers every service named in the search.
What do headquarters and employee bands mean?
These are recorded company-level fields, rather than a map of every branch or a count of specialists. Missing headquarters or employee bands are labeled; older records may show a location separately from recorded headquarters.
Build your next target company list
Adapt this niche search and work with available contacts in RevenueBase.
Related lists
Disease-specific foundations by geography
Cite this list
RevenueBase Data Team. Top 25 disease-specific foundations based in the United States. Snapshot: November 6, 2026. https://revenuebase.ai/companies/disease-specific-foundations/united-states.
This is a selected public preview of saved company records, rather than an independently verified census. Open the source page ↗
More company lists
- All company lists
- Lists by location
- Lists A-Z
- New lists
- Disease-specific foundations based in the Netherlands
- AI companies based in the United States
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- Manufacturing companies based in the United States
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- Oil and gas companies based in the United States
Company intelligence · public preview
Top 25 disease-specific foundations based in the United States
RevenueBase records 196 matching company records for disease-specific foundations based in the United States, with 1,090 tracked contacts and 350 verified work emails.
This public preview shows 25 selected records ordered by tracked contacts. RevenueBase SmartSearch finds company descriptions that match by meaning at Exact. Snapshot: November 6, 2026.
RevenueBase compiles business descriptions for niche-company discovery; each row shows a recorded excerpt where available. Adapt this search to find the companies and contacts you want.
Top 25 disease-specific foundations based in the United States
The public list shows selected company records with contact and verified-email coverage. Reported employee bands provide separate company-size context.
| # | Company | Headquarters on record | Reported employees | RevenueBase SmartSearch | Tracked contacts |
|---|---|---|---|---|---|
| 1 | HQ: Hampton, VA, United StatesReported employees: 51-200 | Hampton, VA, United States | 51-200 | Exact match | 143 contacts → |
“Established in 1996, Patient Advocate Foundation has been breaking down healthcare barriers for patients diagnosed with chronic, life threatening and/or debilitating illnesses by…” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 2 | HQ: Atlanta, GA, United StatesReported employees: 11-50 | Atlanta, GA, United States | 11-50 | Exact match | 31 contacts → |
“Since 1971, the Sickle Cell Foundation of Georgia, Inc.” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 3 | HQ: Cleveland, OH, United StatesReported employees: 1-10 | Cleveland, OH, United States | 1-10 | Exact match | 28 contacts → |
No recorded description excerpt is available for this public record. | |||||
| 4 | HQ: Merion Station, PA, United StatesReported employees: 1-10 | Merion Station, PA, United States | 1-10 | Exact match | 21 contacts → |
“Emily's Entourage (EE) is an innovative 501(c)3 foundation that accelerates research for new treatments and a cure for individuals in the final 10% of the cystic fibrosis (CF)…” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 5 | HQ: San Diego, CA, United StatesReported employees: 11-50 | San Diego, CA, United States | 11-50 | Exact match | 21 contacts → |
“CureScience Institute is a US-based 501(c)(3) nonprofit organization, accelerates the advancement of personalized medicine through translational research and the development of…” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 6 | HQ: Herndon, VA, United StatesReported employees: 11-50 | Herndon, VA, United States | 11-50 | Exact match | 20 contacts → |
“Indo US Organization for rare diseases (IndoUSrare) is an independent non-profit organization focused on helping patients with rare diseases of Indian origin in the USA, India, &…” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 7 | HQ: St. Louis, MO, United StatesReported employees: 11-50 | St. Louis, MO, United States | 11-50 | Exact match | 18 contacts → |
“MISSION: The International Foundation for Autoimmune & Autoinflammatory Arthritis (AiArthritis) is a leader in education, advocacy/policy, and research for those affected by…” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 8 | HQ: Franklin, TN, United StatesReported employees: 1-10 | Franklin, TN, United States | 1-10 | Exact match | 17 contacts → |
“The Scott Hamilton CARES Foundation, established as a national identity in 2014, is dedicated to changing the future of cancer by funding advanced, innovative research that treats…” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 9 | HQ: Pitman, NJ, United StatesReported employees: 1-10 | Pitman, NJ, United States | 1-10 | Exact match | 16 contacts → |
“The Histiocytosis Association is a global nonprofit organization dedicated to addressing the unique needs of patients and families dealing with the effects of histiocytic…” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 10 | HQ: Costa Mesa, CA, United StatesReported employees: 1-10 | Costa Mesa, CA, United States | 1-10 | Exact match | 16 contacts → |
“Founded in 1985, the John Wayne Cancer Foundation was created to honor John Wayne's wish to use his name to fight cancer.” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 11 | HQ: Palo Alto, CA, United StatesReported employees: 1-10 | Palo Alto, CA, United States | 1-10 | Exact match | 15 contacts → |
“Additional Ventures is a foundation working toward a cure for single ventricle heart disease, a rare and complex form of congenital heart disease.” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 12 | HQ: Houston, TX, United StatesReported employees: 11-50 | Houston, TX, United States | 11-50 | Exact match | 15 contacts → |
“The Kelsey Research Foundation (KRF) was established on December 15, 1956, by several physicians of the Kelsey-Seybold Clinic, including John R.” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 13 | HQ: Cincinnati, OH, United StatesReported employees: 1-10 | Cincinnati, OH, United States | 1-10 | Exact match | 15 contacts → |
“MISSION To catalyze new treatments-and ultimately a cure-for LAM by advancing research, supporting compassionate care, and amplifying the voice of women with rare diseases.” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 14 | HQ: Ponte Vedra Beach, FL, United StatesReported employees: 1-10 | Ponte Vedra Beach, FL, United States | 1-10 | Exact match | 13 contacts → |
“The Sontag Foundation, established in 2002, is a private family foundation strategically focused on advancing brain cancer research.” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 15 | HQ: Philadelphia, United StatesReported employees: 1-10 | Philadelphia, United States | 1-10 | Exact match | 13 contacts → |
“The Desmoid Tumor Research Foundation (DTRF) is a nonprofit organization responsible for sparking the desmoid tumor research movement that has now grown into a thriving global…” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 16 | HQ: Portland, OR, United StatesReported employees: 1-10 | Portland, OR, United States | 1-10 | Exact match | 13 contacts → |
“The Brian Grant Foundation empowers people impacted by Parkinson's disease to lead active and fulfilling lives.” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 17 | HQ: Rockville, MD, United StatesReported employees: 11-50 | Rockville, MD, United States | 11-50 | Exact match | 12 contacts → |
“The Aplastic Anemia and MDS International Foundation is an American nonprofit health and patient advocacy organization that supports, connects and educates patients, caregivers…” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 18 | HQ: Stanton, KY, United StatesReported employees: 1-10 | Stanton, KY, United States | 1-10 | Exact match | 11 contacts → |
“The website PFIC.org was founded in 2002 by a mom who wanted to know all she could about her daughter’s disease.” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 19 | HQ: Agoura Hills, CA, United StatesReported employees: 1-10 | Agoura Hills, CA, United States | 1-10 | Exact match | 11 contacts → |
“Open Medicine Foundation (OMF) is leading research of chronic, complex diseases and delivering hope.” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 20 | HQ: Sacramento, CA, United StatesReported employees: 1-10 | Sacramento, CA, United States | 1-10 | Exact match | 10 contacts → |
“Founded in 2004, AIM at Melanoma is a global foundation dedicated to finding more effective treatments and, ultimately, the cure for melanoma.” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 21 | HQ: New York, NY, United StatesReported employees: 11-50 | New York, NY, United States | 11-50 | Exact match | 10 contacts → |
“At Know Rare, we aim to connect people living with rare diseases to information about their conditions as well as to specialists, clinical studies, advocacy organizations, and…” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 22 | HQ: Concord, NH, United StatesReported employees: 1-10 | Concord, NH, United States | 1-10 | Exact match | 10 contacts → |
“The Endowment for Health is a statewide, private, nonprofit foundation dedicated to improving the health of New Hampshire's people, especially those who are vulnerable and…” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 23 | HQ: Raleigh, NC, United StatesReported employees: 1-10 | Raleigh, NC, United States | 1-10 | Exact match | 9 contacts → |
“Since 1995, the AKC Canine Health Foundation has leveraged the power of science to address the health needs of all dogs.” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 24 | ASH Research Collaborativeashresearchcollaborative.org HQ: Washington, DC, United StatesReported employees: 1-10 | Washington, DC, United States | 1-10 | Exact match | 9 contacts → |
“ASH Research Collaborative is a company based out of Washington, DC, United States.” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 25 | HQ: Philadelphia, PA, United StatesReported employees: 1-10 | Philadelphia, PA, United States | 1-10 | Exact match | 8 contacts → |
“The Siegel Rare Neuroimmune Association (SRNA) is a not-for-profit international foundation dedicated to the support of children, adolescents, and adults with a spectrum of rare…” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
Showing 25 of 196 company matches
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Disease-specific foundations: dataset insights
November 6, 2026These summaries describe recorded coverage in this saved dataset. This page is derived from saved source records; per-contact mobile coverage and email-recency results are not established by this snapshot.
Reported company sizes
194 records in the displayed employee bands.
2 matching records are outside the displayed bands or do not have a displayed size. Bars show shares of the displayed bands.
Email recency for this list is measured worldwide rather than for United States, so it is reported there. Company counts and contact totals on this page are exact for United States, over 196 companies.
How this company list was built
Describe a niche in your own words: companies installing commercial solar, or manufacturers of sustainable packaging. RevenueBase SmartSearch finds companies whose compiled business descriptions match by meaning. This list is one saved example to adapt.
Where the company descriptions come from
RevenueBase compiles company information from public sources, including company websites and public professional profiles such as LinkedIn, alongside information supplied by companies. The short recorded excerpt shown here is separate from the complete business description used for matching; individual source URLs and collection dates are not provided in this public snapshot.
RevenueBase SmartSearch matching settings
- Exact
- Closest fits to the business described.
- Similar
- Similar businesses with a wider range of fits.
- Related
- Related businesses in and around the category.
- Broad
- A broader set of businesses connected to the description.
RevenueBase SmartSearch · Exact match identifies inclusion in this search's closest semantic matching setting. It is not a per-company confidence score, a literal keyword match, or a quality endorsement.
Selection, ordering and scope
The public list shows selected company records with contact and verified-email coverage. Reported employee bands provide separate company-size context.
This page is derived from saved source records; per-contact mobile coverage and email-recency results are not established by this snapshot.
Recorded company descriptions support research; check company websites for current services. The selected preview is ordered by tracked contacts and is not a list of the best service providers.
Snapshot: November 6, 2026.
Publisher-reported method study
The published RevenueBase SmartSearch benchmark
86% good or better at Exact
RevenueBase's August 25, 2026 study assessed 4,198 description/company pairs across matching settings. It reports 86% of Exact matches judged good or better, and 77% for a 240-pair sample of one- or two-word categories. This evaluates the method across study queries rather than auditing this individual list.
Read the study and full methodology ↗RevenueBase is a B2B data infrastructure company. Its September 3, 2026 published methodology describes a graph of 60 million companies and 398.9 million professional contacts; these platform figures differ from this page's totals. Published methodology ↗
Questions about this company list
What does Exact match mean for disease-specific foundations?
The separate RevenueBase SmartSearch column identifies inclusion at the closest semantic matching preset. It is not a literal keyword match, a per-company confidence score or a quality endorsement. Changing the search form opens a new search in RevenueBase; it does not reclassify these saved rows.
How many disease-specific foundations did RevenueBase find based in the United States?
The saved snapshot records 196 matching company records, 1,090 tracked contacts and 350 verified emails. The public preview displays 25 selected records.
Where do the company descriptions come from?
RevenueBase compiles company information from public sources, including company websites and public professional profiles such as LinkedIn, alongside information supplied by companies. The short recorded excerpt shown here is separate from the complete business description used for matching; individual source URLs and collection dates are not provided in this public snapshot.
How are the public companies ordered?
The selected public records are ordered by contacts tracked in RevenueBase, highest first. Contact coverage is a prospecting measure, not an assessment of the company's services or quality.
How can I get contact information?
Select a company's contact count to open its filtered contacts in RevenueBase. Free signup is required and includes 500 credits and limited free results. Verified emails, direct dials and mobile numbers depend on available coverage.
How current is this list?
Snapshot: November 6, 2026. Review each company's website for current services and locations. A recorded business description does not establish that every company offers every service named in the search.
What do headquarters and employee bands mean?
These are recorded company-level fields, rather than a map of every branch or a count of specialists. Missing headquarters or employee bands are labeled; older records may show a location separately from recorded headquarters.
Build your next target company list
Adapt this niche search and work with available contacts in RevenueBase.
Related lists
Disease-specific foundations by geography
Cite this list
RevenueBase Data Team. Top 25 disease-specific foundations based in the United States. Snapshot: November 6, 2026. https://revenuebase.ai/companies/disease-specific-foundations/united-states.
This is a selected public preview of saved company records, rather than an independently verified census. Open the source page ↗
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