Company lists · Data refreshed September 2026

Top 19 Cystic fibrosis organizations based in the United States

RevenueBase identified 77 cystic fibrosis organizations headquartered in the United States as of September 2026 and tracks 1,317 professional contacts across them, including 669 with verified work emails. Bethesda is the largest hub.

This list covers cystic fibrosis organizations headquartered in the United States, matched on what each company actually does as described in its own words. Ranked by team size, largest first. Every row shows the company's own description, its RevenueBase Smart Search rating, and when it was last checked. Data refreshed September 19, 2026.

Published by RevenueBase, a B2B data infrastructure company. This list was built with RevenueBase Smart Search, the natural-language company search RevenueBase customers use to build their own targeted lists and unlock verified emails and direct dials at the companies on them. How these lists are built and judged.

How to read this list HQ checked on every row RevenueBase Smart Search rating on every row Refreshed Sep 19, 2026 86% judged on-target in blind review
77Companies
1,317Contacts tracked
669Verified emails
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The 19 largest cystic fibrosis organizations based in the United States

Ranked by team size
Top 19 of 77 cystic fibrosis organizations based in the United States, ranked by team size, largest first. Data refreshed Sep 19, 2026. RevenueBase Smart Search rates how each company's information relates to cystic fibrosis organizations: strong evidence (its own description names it), partial (names part of it), indirect (matched on the rest of its profile rather than the description shown). Click a contact count to view that company's people.
#CompanyRevenueBase Smart SearchHeadquartersEmployeesContacts
1Strong evidenceBethesda, MD, United StatesHQ checked Sep 19, 2026501-1,0001,062 contacts →

Strong evidence

“The Cystic Fibrosis Foundation is a leading health care nonprofit and driving force in the search for a cure for cystic fibrosis.”

Source: RevenueBase Database · checked Sep 19, 2026
2Indirect evidenceBethesda, MD, United StatesHQ checked Sep 19, 20261-1020 contacts →

Indirect evidence

“The National Pancreas Foundation provides hope for those suffering from pancreatitis, pancreatic cancer, and FCS through funding cutting-edge research, advocating for new and…”

Source: RevenueBase Database · checked Sep 19, 2026
3Strong evidenceMerion Station, PA, United StatesHQ checked Sep 19, 20261-1018 contacts →

Strong evidence

“Emily's Entourage (EE) is an innovative 501(c)3 foundation that accelerates research for new treatments and a cure for individuals in the final 10% of the cystic fibrosis (CF)…”

Source: RevenueBase Database · checked Sep 19, 2026
4Strong evidenceGarden City Park, United StatesHQ checked Sep 19, 202611-5018 contacts →

Strong evidence

“The Boomer Esiason Foundation supports the cystic fibrosis community in the here and now by providing financial assistance, educational resources, and more.”

Source: RevenueBase Database · checked Sep 19, 2026
5Indirect evidenceAtlanta, United StatesHQ checked Sep 19, 20261-1015 contacts →

Indirect evidence

“BreatheStrong CF is a 501(c)(3) based out of Atlanta.”

Source: RevenueBase Database · checked Sep 19, 2026
6Strong evidencePalo Alto, CA, United StatesHQ checked Sep 19, 20261-1013 contacts →

Strong evidence

Cystic Fibrosis Research Institute (CFRI) is a 501(c)(3) charitable organization founded in 1975, that funds innovative cystic fibrosis (CF) research and offers education…”

Source: RevenueBase Database · checked Sep 19, 2026
7Indirect evidenceStanton, KY, United StatesHQ checked Sep 19, 20261-1011 contacts →

Indirect evidence

“The website PFIC.org was founded in 2002 by a mom who wanted to know all she could about her daughter’s disease.”

Source: RevenueBase Database · checked Sep 19, 2026
8Strong evidencePalm Beach Gardens, FL, United StatesHQ checked Sep 19, 20261-107 contacts →

Strong evidence

“Our mission is to support and improve the lives of families in the Cystic Fibrosis (CF) Community through grassroots advocacy and socially innovative programs, raising awareness…”

Source: RevenueBase Database · checked Sep 19, 2026
9Strong evidenceRedondo Beach, CA, United StatesHQ checked Sep 19, 20261-106 contacts →

Strong evidence

“Claire’s Place Foundation, Inc.(CPF) is a 501c3 non-profit organization providing support to children and families affected by cystic fibrosis (CF).”

Source: RevenueBase Database · checked Sep 19, 2026
10Strong evidenceCharlestown, MA, United StatesHQ checked Sep 19, 202611-505 contacts →

Strong evidence

“Flatley Discovery Lab is an independent not-for-profit laboratory for Cystic Fibrosis drug discovery research and development.”

Source: RevenueBase Database · checked Sep 19, 2026
11Indirect evidenceLargo, FL, United StatesHQ checked Sep 19, 20261-105 contacts →

Indirect evidence

“CFC International is a registered 501(c)(3) charitable nonprofit organization dedicated to improving the quality of life for individuals with CFC Syndrome and their families.”

Source: RevenueBase Database · checked Sep 19, 2026
12Strong evidenceBeaverton, OR, United StatesHQ checked Sep 19, 202611-504 contacts →

Strong evidence

“CF Roundtable publishes a national, quarterly magazine called “CF Roundtable” and provides a communication network for adults who have cystic fibrosis, caregivers and…”

Source: RevenueBase Database · checked Sep 19, 2026
13Strong evidenceBozeman, MT, United StatesHQ checked Sep 19, 20261-104 contacts →

Strong evidence

“The Cody Dieruf Benefit Foundation for Cystic Fibrosis is uniting communities and families living with Cystic Fibrosis by raising awareness, providing emotional and financial…”

Source: RevenueBase Database · checked Sep 19, 2026
14Partial evidenceSeattle, WA, United StatesHQ checked Sep 19, 20261-104 contacts →

Partial evidence

“The Valhalla Fund's mission is to provide hope and support to individuals and families affected by Pulmonary Fibrosis while promoting awareness and advancing research toward…”

Source: RevenueBase Database · checked Sep 19, 2026
15Strong evidenceChestnut Hill, MA, United StatesHQ checked Sep 19, 20261-103 contacts →

Strong evidence

“MECFA The Middle East CF Association is a community of clinical professionals committed to improving the survival and quality of life for people born with cystic fibrosis in the…”

Source: RevenueBase Database · checked Sep 19, 2026
16Strong evidenceBismarck, ND, United StatesHQ checked Sep 19, 20261-102 contacts →

Strong evidence

“The Cystic Fibrosis Association of North Dakota exists to assist people with CF to breathe easier, physically, emotionally, and financially.”

Source: RevenueBase Database · checked Sep 19, 2026
17Indirect evidenceFayetteville, NC, United StatesHQ checked Sep 19, 20261-102 contacts →

Indirect evidence

“The Salty Life Foundation partners with the CF community at various levels to develop, support, and foster programs that empower patients in the CF community to live better todays.”

Source: RevenueBase Database · checked Sep 19, 2026
18Strong evidenceMacomb, MI, United StatesHQ checked Sep 19, 20261-101 contacts →

Strong evidence

“Our mission is to empower individuals with Cystic Fibrosis by providing resources, support, and community connection that inspiring hope to live a fulfilling life.”

Source: RevenueBase Database · checked Sep 19, 2026
19Strong evidenceMckinney, TX, United StatesHQ checked Sep 19, 20261-101 contacts →

Strong evidence

“Blue Caboose is a non-profit organization with a mission to ease the financial burden of having a child living with Cystic Fibrosis while providing emotional support to the…”

Source: RevenueBase Database · checked Sep 19, 2026

Showing 19 of 77 cystic fibrosis organizations based in the United States

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Cystic fibrosis organizations based in the United States at a glance

As of Sep 19, 2026
50.8%Verified-email coverage
17.1Average contacts per company
1-10Median size (employees)
5.2%Largest-city concentration · Bethesda
Sep 19, 2026Page data refreshed

Companies by employee count

1-10
56
11-50
12
51-200
1
501-1,000
6
1,001-5,000
2

Email recency for this list is measured worldwide rather than for United States, so it is reported there. Company counts and contact totals on this page are exact for United States, over 77 companies.

How this list was built

Company categories are rarely black and white. RevenueBase reads each company's own description of its business to decide whether it belongs among cystic fibrosis organizations, so some rows will be adjacent to the category rather than pure plays. The description and RevenueBase Smart Search rating on every row are there so you can check each match yourself.

Source
The RevenueBase company graph: 60 million companies and 398.9 million professional contacts resolved from primary sources, queried with RevenueBase Smart Search, the natural-language company search available to every RevenueBase user.
What qualifies
Companies headquartered in the United States whose own description of what they do matches “cystic fibrosis organizations”. Matching reads each company's description, not its industry code or its name.
RevenueBase Smart Search
RevenueBase Smart Search is how this list is assembled and how each row is rated. RevenueBase's data engine and AI assess a company's LinkedIn profile, information supplied directly by the company, its website and other publicly available information, then relate it to a category defined in a user's own words. Each row is rated strong evidence (its own description names cystic fibrosis organizations), partial evidence (it names part of the category) or indirect evidence (the description shown names none of it and the match rests on the rest of the company's profile). The description supporting each rating is quoted on the row.
What we exclude
Companies whose own description does not clearly place them among cystic fibrosis organizations, and records with no verified work email. Companies headquartered outside United States are excluded even when they keep an office there.
Match quality
In blind human judging of this matching method, 86% of matched companies were on target. Expect roughly 1 in 7 rows to be adjacent to the category rather than a pure play. Every row shows the company's own description and its RevenueBase Smart Search rating so you can judge each match yourself. Read the full methodology: how the lists are built, how the judging worked, and what the figure means.
Ranking
Team size, largest first: companies are ordered by the number of professionals RevenueBase tracks at each one. Employee ranges shown are reported bands, for context.
Verification
Every listed company carries at least one verified work email, 669 across the full list. Contacts re-verify on a rolling cadence, and each contact's own verification date is shown inside RevenueBase.
Refresh
This page's figures were pulled from the company graph on September 19, 2026. Lists refresh periodically as the graph is re-checked.
Corrections
Wrong category, wrong headquarters, or a company that has closed? Use “Report an issue” on any row. Reports go to the RevenueBase Data Team and feed back into the company graph.

Frequently asked

What is RevenueBase Smart Search?

RevenueBase Smart Search is how RevenueBase decides which companies belong on this list and how strongly each one fits. Its data engine and AI assess a company's LinkedIn profile, information supplied directly by the company, its website and other publicly available information, then relate it to the category the list is about. Each row is rated strong evidence when the company's own description names cystic fibrosis organizations, partial evidence when it names part of the category, and indirect evidence when the description shown names none of it and the match rests on the rest of the company's profile.

How many cystic fibrosis organizations are there based in the United States?

RevenueBase identified 77 cystic fibrosis organizations headquartered in the United States as of September 2026, matched on each company's own description of what it does rather than its industry code.

What is the largest company on this list?

Cystic Fibrosis Foundation, headquartered in N Bethesda, tops this list with the largest team on record.

Which city has the most cystic fibrosis organizations?

Bethesda leads with 4 headquartered companies, followed by Atlanta (3) and Seattle (3).

How do I get contact information for these companies?

A free RevenueBase account lets you run this exact search and work the top results, verified emails and direct dials included. Upgrading unlocks all 669 verified decision-maker contacts tracked across these 77 companies.

How current is this list?

The list refreshes periodically as the company graph is re-checked. This page's figures were pulled on September 19, 2026.

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About this data

RevenueBase is a B2B data infrastructure company. Its company graph covers 60 million companies and 398.9 million professional contacts, with emails verified on a rolling cadence rather than scraped once and left to decay. These company lists are generated directly from that graph with RevenueBase Smart Search, the same natural-language company search every RevenueBase user has: describe a market in plain words, get the companies that match, and add verified emails and direct dials for the people at them. It is the same data that powers RevenueBase's B2B data products, and a free account includes 500 credits to start. How these lists are built and judged.