Company lists · Data refreshed November 2026
Top 25 Rare disease research centers worldwide
RevenueBase identified 186 company matches for rare disease research centers worldwide as of November 2026 and tracks 4,577 professional contacts across them, including 1,798 with verified work emails. The United States is the largest market and Paris the largest hub.
This list covers company matches for rare disease research centers worldwide, found by RevenueBase SmartSearch using the meaning of business descriptions in its company graph at Exact. Ranked by professionals tracked, largest first. Rows show recorded descriptions where available, Exact search membership and the snapshot date. Data refreshed November 6, 2026. Country and city lists for rare disease research centers follow the table.
Published by RevenueBase, a B2B data infrastructure company. This list was built with RevenueBase SmartSearch, the natural-language company search RevenueBase customers use to build their own targeted lists and unlock verified emails and direct dials at the companies on them. How these lists are built and judged.
The 25 largest rare disease research centers worldwide
Ranked by team size| # | Company | Contacts | |||
|---|---|---|---|---|---|
| 1 | 1,137 contacts → | ||||
Exact match “CTI Clinical Trial and Consulting Services is a global, privately held, research service organization, delivering a complete spectrum of clinical trial and consulting services…” Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase | |||||
| 2 | 437 contacts → | ||||
Exact match “LifeArc® is a self-funded medical research organisation with one clear purpose – transforming the lives of people living with rare diseases and drug-resistant infections.” Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase | |||||
| 3 | 288 contacts → | ||||
Exact match “TIGEM is a leading research institute dedicated to uncovering the molecular mechanisms of rare genetic diseases and translating these discoveries into innovative therapies, with a…” Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase | |||||
| 4 | 164 contacts → | ||||
Exact match “The National Organization for Rare Disorders (NORD), a 501(c)(3) organization, is an independent patient advocacy organization dedicated to helping individuals with rare diseases…” Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase | |||||
| 5 | 72 contacts → | ||||
Exact match “The EveryLife Foundation for Rare Diseases is powered by the rare disease community to improve health outcomes by driving change through evidence-based policy, leading…” Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase | |||||
| 6 | 57 contacts → | ||||
Exact match “As an independent clinical research site, we are 100% dedicated to conducting clinical research, accelerating the development of safe and effective treatments and providing rare…” Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase | |||||
| 7 | 53 contacts → | ||||
Exact match “Frambu is a national resource centre for people with rare disorders in Norway.” Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase | |||||
| 8 | 47 contacts → | ||||
Exact match “The CIBERER is a cooperative network structure, with 60 research groups located in the main research centres all over Spain.” Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase | |||||
| 9 | 40 contacts → | ||||
Exact match “A Raríssimas – Associação Nacional de Deficiências Mentais e Raras é uma IPSS, fundada em Abril de 2002, que desenvolve a sua acção junto de doentes e familiares que convivem de…” Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase | |||||
| 10 | 38 contacts → | ||||
Exact match “Fundación SPINE es una asociación sin fines de lucro que realiza investigación y tratamiento de pacientes con enfermedades raras o poco frecuentes, con el objetivo de mejorar su…” Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase | |||||
| 11 | 35 contacts → | ||||
Exact match “TPIRC is a non-profit clinical care and research center that focuses on the development of cutting-edge, individualized treatment protocols for rare and orphan diseases utilizing…” Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase | |||||
| 12 | 34 contacts → | ||||
Exact match “Sua participação pode ajudar a encontrar tratamento para várias doenças.” Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase | |||||
| 13 | 32 contacts → | ||||
Exact match “Seja bem-vindo(a) a página da Casa Hunter.” Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase | |||||
| 14 | 29 contacts → | ||||
Exact match “Rare Genomics Institute (RG) was founded in 2011 to fill the health care gap for undiagnosed rare disease patients and supporting research in rare diseases.” Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase | |||||
| 15 | 26 contacts → | ||||
Exact match “Casa dos Raros - Centro de Atenção Integral e Treinamento em Doenças Raras é uma iniciativa inédita na América Latina totalmente focada no Atendimento, Ensino e Pesquisa em…” Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase | |||||
| 16 | 23 contacts → | ||||
Exact match “Kansas City Research Institute conducts clinical trials yielding results that empower medical professionals and patients to make informed health care decisions by advancing…” Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase | |||||
| 17 | 20 contacts → | ||||
Exact match “At Visionary Investigators Network (VIN), our mission is to advance medical science and improve patient care by conducting high-quality clinical research.” Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase | |||||
| 18 | 19 contacts → | ||||
Exact match “Cedar Crosse Research Center connects patients with personalized health supervision through comprehensive clinical research studies.” Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase | |||||
| 19 | 19 contacts → | ||||
Exact match “To leave no one behind, 180 organisations from 36 countries championed by the European Union and members states are working hand in hand to make Europe a world leader in rare…” Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase | |||||
| 20 | 16 contacts → | ||||
Exact match “Aqualane Clinical Research is a comprehensive clinical research group focusing on advancing medical therapies in a wide array of human disease states.” Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase | |||||
| 21 | 16 contacts → | ||||
Exact match “Prolato Clinical Research Center is dedicated to advancing medical innovation through high-quality clinical trials and patient-centered care.” Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase | |||||
| 22 | 14 contacts → | ||||
Exact match “CheckRare is a learning platform for health care professionals and patients.” Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase | |||||
| 23 | 11 contacts → | ||||
Exact match “Maladies Rares Info Services est le service national d'écoute, d'information et d'orientation des personnes atteintes d'une maladie rare ou en errance diagnostique, de leurs…” Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase | |||||
| 24 | 11 contacts → | ||||
Exact match “Our Objectives Rare Diseases Patients Helpline and Helpdesk: ORDI runs a national rare disease hotline (+91 8892 to hear the needs of rare disease patients.” Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase | |||||
| 25 | 10 contacts → | ||||
Exact match “At Know Rare, we aim to connect people living with rare diseases to information about their conditions as well as to specialists, clinical studies, advocacy organizations, and…” Recorded in the RevenueBase company graph · Nov 6, 2026 · View company records in RevenueBase | |||||
RevenueBase SmartSearch
Describe a niche business in your own words. RevenueBase SmartSearch compares the meaning of your description with company business descriptions compiled in the RevenueBase company graph. Exact, Similar, Related and Broad control how closely companies must fit.
This list uses Exact for “rare disease research centers”. Each Exact match badge shows membership in that saved search; it is not an individual similarity score or a service-quality rating. Recorded descriptions are shown where available.
Showing 25 of 186 rare disease research centers worldwide
See the full list, filter by size, metro and specialty, and access 1,798 tracked professional contacts with verified work emails. Direct dials are available where recorded.
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Rare disease research centers worldwide at a glance
As of Nov 6, 2026Companies by employee count
Email recency is reported on each country list linked below.
How this list was built
The recorded descriptions help you assess these company matches. Check a company’s website for its current services and locations.
- Source
- The RevenueBase company graph: 60 million companies and 398.9 million professional contacts resolved from primary sources, queried with RevenueBase SmartSearch, the natural-language company search available to every RevenueBase user.
- Coverage
- Every country. Country and city lists for rare disease research centers are linked below.
- What qualifies
- Company records worldwide whose business descriptions match “rare disease research centers” by meaning at the Exact setting. Descriptions are compiled in the RevenueBase company graph from public websites, profiles and company information where available; they are not guaranteed quotations from the company's website.
- RevenueBase SmartSearch
- Describe a niche company in your own words to find businesses by meaning. Exact, Similar, Related and Broad control the breadth of RevenueBase SmartSearch. This saved list uses Exact. Each row's Exact match badge shows inclusion in that search, not an individual score or a service-quality judgment.
- Public preview
- The public preview omits records without a verified work email. Dataset totals and geographic summaries describe the full matched records before these preview filters.
- Match quality
- RevenueBase's August 25, 2026 study assessed 4,198 description/company pairs across matching settings. The publisher reports 86% good or better at Exact. This evaluates the method across queries; it does not audit this individual list. Recorded company descriptions, where available, help you judge each match yourself. Read the full methodology: how the lists are built and what the study measures.
- Ranking
- Team size, largest first: companies are ordered by the number of professionals RevenueBase tracks at each one. Employee ranges shown are reported bands, for context.
- Verification
- Every displayed company carries at least one verified work email. RevenueBase tracks 1,798 professional contacts with verified work emails across the full matched dataset. Contacts re-verify on a rolling cadence, and each contact's own verification date is shown inside RevenueBase.
- Refresh
- This page's figures were pulled from the company graph on November 6, 2026. Lists refresh periodically as the graph is re-checked.
- Record context
- Company records and descriptions can change. Check the company's website for its current services and locations.
Rare disease research centers by location
1 lists · largest firstEvery Rare disease research centers list RevenueBase publishes, by country and city. Counts are matching companies in each list as of its own refresh date.
Countries
Frequently asked
What is RevenueBase SmartSearch?
RevenueBase SmartSearch finds niche companies by the meaning of their business descriptions in the RevenueBase company graph. Exact, Similar, Related and Broad control how closely companies must fit your description. This list uses Exact for “rare disease research centers”; each Exact match badge shows search membership, not an individual similarity or quality score.
How many rare disease research centers are there worldwide?
RevenueBase identified 186 company matches for rare disease research centers worldwide as of November 2026, using the meaning of business descriptions at Exact. This is the recorded matched set in the RevenueBase company graph.
What is the largest company on this list?
CTI Clinical Trial And Consulting Services tops the displayed preview by professional contacts tracked in RevenueBase. Recorded headquarters appear in the company rows.
Which country has the most rare disease research centers?
The United States leads with 56 companies. Every rare disease research centers list by country and city is linked on this page.
Which city has the most rare disease research centers?
Paris leads with 7 company records, followed by Washington (4) and New York (3).
How do I get contact information for these companies?
A free RevenueBase account lets you run this exact search and work limited free results with 500 credits to start. Upgrading provides access to the 1,798 professional contacts with verified work emails tracked across these 186 companies; direct dials are available where recorded.
How current is this list?
The list refreshes periodically as the company graph is re-checked. This page's figures were pulled on November 6, 2026.
Ready to reach these companies? Verified emails and direct dials for all 186 rare disease research centers worldwide. Start with a free account, no credit card.
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About this data
RevenueBase is a B2B data infrastructure company. Its company graph covers 60 million companies and 398.9 million professional contacts, with emails verified on a rolling cadence rather than scraped once and left to decay. These company lists are generated directly from that graph with RevenueBase SmartSearch, the same natural-language company search every RevenueBase user has: describe a market in plain words, get the companies that match, and add verified emails and direct dials for the people at them. It is the same data that powers RevenueBase's B2B data products, and a free account includes 500 credits to start. How these lists are built and judged.
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Company intelligence · public preview
Top 25 rare disease research centers worldwide
Find companies in any niche.
Describe the businesses you want in your own words. RevenueBase SmartSearch matches company descriptions by meaning.
RevenueBase records 186 matching company records for rare disease research centers worldwide, with 4,577 tracked contacts and 1,798 verified work emails.
This public preview shows 25 selected records ordered by tracked contacts. RevenueBase SmartSearch finds company descriptions that match by meaning at Exact. Snapshot: November 6, 2026.
RevenueBase compiles business descriptions for niche-company discovery; each row shows a recorded excerpt where available. Adapt this search to find the companies and contacts you want.
Top 25 rare disease research centers worldwide
The public list shows selected company records with contact and verified-email coverage. Reported employee bands provide separate company-size context.
| # | Company | Headquarters on record | Reported employees | RevenueBase SmartSearch | Tracked contacts |
|---|---|---|---|---|---|
| 1 |  CTI Clinical Trial And Consulting Servicesctifacts.comHQ: Covington, United StatesReported employees: 1,001-5,000 | Covington, United States | 1,001-5,000 | Exact match | 1,137 contacts → |
“CTI Clinical Trial and Consulting Services is a global, privately held, research service organization, delivering a complete spectrum of clinical trial and consulting services…” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 2 |  Lifearclifearc.orgHQ: London, United KingdomReported employees: 201-500 | London, United Kingdom | 201-500 | Exact match | 437 contacts → |
“LifeArc® is a self-funded medical research organisation with one clear purpose – transforming the lives of people living with rare diseases and drug-resistant infections.” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 3 | HQ: Pozzuoli, ItalyReported employees: 201-500 | Pozzuoli, Italy | 201-500 | Exact match | 288 contacts → |
“TIGEM is a leading research institute dedicated to uncovering the molecular mechanisms of rare genetic diseases and translating these discoveries into innovative therapies, with a…” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 4 |  National Organization For Rare Disordersrarediseases.orgHQ: Danbury, DC, United StatesReported employees: 51-200 | Danbury, DC, United States | 51-200 | Exact match | 164 contacts → |
“The National Organization for Rare Disorders (NORD), a 501(c)(3) organization, is an independent patient advocacy organization dedicated to helping individuals with rare diseases…” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 5 |  Everylife Foundation For Rare Diseaseseverylifefoundation.orgHQ: Washington, DC, United StatesReported employees: 11-50 | Washington, DC, United States | 11-50 | Exact match | 72 contacts → |
“The EveryLife Foundation for Rare Diseases is powered by the rare disease community to improve health outcomes by driving change through evidence-based policy, leading…” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 6 |  Rare Disease Research, LLCrarediseaseresearch.comHQ: Atlanta, GA, United StatesReported employees: 11-50 | Atlanta, GA, United States | 11-50 | Exact match | 57 contacts → |
“As an independent clinical research site, we are 100% dedicated to conducting clinical research, accelerating the development of safe and effective treatments and providing rare…” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 7 | HQ: Ski Kommune, NorwayReported employees: 51-200 | Ski Kommune, Norway | 51-200 | Exact match | 53 contacts → |
“Frambu is a national resource centre for people with rare disorders in Norway.” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 8 |  Ciber Enfermedades Rarasciberer.esHQ: Madrid, SpainReported employees: 51-200 | Madrid, Spain | 51-200 | Exact match | 47 contacts → |
“The CIBERER is a cooperative network structure, with 60 research groups located in the main research centres all over Spain.” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 9 |  Raríssimasrarissimas.ptHQ: Lisbon, PortugalReported employees: 51-200 | Lisbon, Portugal | 51-200 | Exact match | 40 contacts → |
“A Raríssimas – Associação Nacional de Deficiências Mentais e Raras é uma IPSS, fundada em Abril de 2002, que desenvolve a sua acção junto de doentes e familiares que convivem de…” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 10 |  Fundación Spinespine.org.arHQ: Buenos Aires, ArgentinaReported employees: 11-50 | Buenos Aires, Argentina | 11-50 | Exact match | 38 contacts → |
“Fundación SPINE es una asociación sin fines de lucro que realiza investigación y tratamiento de pacientes con enfermedades raras o poco frecuentes, con el objetivo de mejorar su…” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 11 | HQ: Long Beach, CA, United StatesReported employees: 51-200 | Long Beach, CA, United States | 51-200 | Exact match | 35 contacts → |
“TPIRC is a non-profit clinical care and research center that focuses on the development of cutting-edge, individualized treatment protocols for rare and orphan diseases utilizing…” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 12 | HQ: Campinas, BrazilReported employees: 11-50 | Campinas, Brazil | 11-50 | Exact match | 34 contacts → |
“Sua participação pode ajudar a encontrar tratamento para várias doenças.” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 13 |  Casa Huntercasahunter.org.brHQ: Sao Paulo, BrazilReported employees: 11-50 | Sao Paulo, Brazil | 11-50 | Exact match | 32 contacts → |
“Seja bem-vindo(a) a página da Casa Hunter.” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 14 |  Rare Genomics Instituteraregenomics.orgHQ: Downey, CA, United StatesReported employees: 51-200 | Downey, CA, United States | 51-200 | Exact match | 29 contacts → |
“Rare Genomics Institute (RG) was founded in 2011 to fill the health care gap for undiagnosed rare disease patients and supporting research in rare diseases.” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 15 |  Casa DOS Raroscdr.org.brHQ: Porto Alegre, BrazilReported employees: 11-50 | Porto Alegre, Brazil | 11-50 | Exact match | 26 contacts → |
“Casa dos Raros - Centro de Atenção Integral e Treinamento em Doenças Raras é uma iniciativa inédita na América Latina totalmente focada no Atendimento, Ensino e Pesquisa em…” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 16 |  Kansas City Research Institutekcresearchinstitute.comHQ: Kansas City, MO, United StatesReported employees: 1-10 | Kansas City, MO, United States | 1-10 | Exact match | 23 contacts → |
“Kansas City Research Institute conducts clinical trials yielding results that empower medical professionals and patients to make informed health care decisions by advancing…” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 17 |  Visionary Investigators Networkvintrials.comHQ: Aventura, FL, United StatesReported employees: 11-50 | Aventura, FL, United States | 11-50 | Exact match | 20 contacts → |
“At Visionary Investigators Network (VIN), our mission is to advance medical science and improve patient care by conducting high-quality clinical research.” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 18 |  Cedar Crosse Research Centercedarcrosse.comHQ: Chicago, IL, United StatesReported employees: 11-50 | Chicago, IL, United States | 11-50 | Exact match | 19 contacts → |
“Cedar Crosse Research Center connects patients with personalized health supervision through comprehensive clinical research studies.” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 19 |  Erderaerdera.orgHQ: United StatesReported employees: 51-200 | United States | 51-200 | Exact match | 19 contacts → |
“To leave no one behind, 180 organisations from 36 countries championed by the European Union and members states are working hand in hand to make Europe a world leader in rare…” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 20 |  Aqualane Clinical Researchaqualaneresearch.comHQ: Naples, FL, United StatesReported employees: 11-50 | Naples, FL, United States | 11-50 | Exact match | 16 contacts → |
“Aqualane Clinical Research is a comprehensive clinical research group focusing on advancing medical therapies in a wide array of human disease states.” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 21 |  Prolato Clinical Research Centerprolato.orgHQ: Houston, TX, United StatesReported employees: 11-50 | Houston, TX, United States | 11-50 | Exact match | 16 contacts → |
“Prolato Clinical Research Center is dedicated to advancing medical innovation through high-quality clinical trials and patient-centered care.” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 22 |  Checkrarecheckrare.comHQ: Hastings-on-hudson, NY, United StatesReported employees: 1-10 | Hastings-on-hudson, NY, United States | 1-10 | Exact match | 14 contacts → |
“CheckRare is a learning platform for health care professionals and patients.” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 23 |  Maladies Rares Info Servicesmaladiesraresinfo.orgHQ: Paris, FranceReported employees: 1-10 | Paris, France | 1-10 | Exact match | 11 contacts → |
“Maladies Rares Info Services est le service national d'écoute, d'information et d'orientation des personnes atteintes d'une maladie rare ou en errance diagnostique, de leurs…” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 24 |  ORDIordindia.inHQ: Banglore, IndiaReported employees: 201-500 | Banglore, India | 201-500 | Exact match | 11 contacts → |
“Our Objectives Rare Diseases Patients Helpline and Helpdesk: ORDI runs a national rare disease hotline (+91 8892 to hear the needs of rare disease patients.” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 25 |  Know Rareknowrare.comHQ: New York, NY, United StatesReported employees: 11-50 | New York, NY, United States | 11-50 | Exact match | 10 contacts → |
“At Know Rare, we aim to connect people living with rare diseases to information about their conditions as well as to specialists, clinical studies, advocacy organizations, and…” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
Showing 25 of 186 company matches
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Rare disease research centers: dataset insights
November 6, 2026These summaries describe recorded coverage in this saved dataset. This page is derived from saved source records; per-contact mobile coverage and email-recency results are not established by this snapshot.
Reported company sizes
185 records in the displayed employee bands.
1 matching records are outside the displayed bands or do not have a displayed size. Bars show shares of the displayed bands.
Email recency for this list is measured across the whole country list rather than for Worldwide, so it is reported there. Company counts and contact totals on this page are exact for Worldwide, over 186 companies.
How this company list was built
Describe a niche in your own words: companies installing commercial solar, or manufacturers of sustainable packaging. RevenueBase SmartSearch finds companies whose compiled business descriptions match by meaning. This list is one saved example to adapt.
Where the company descriptions come from
RevenueBase compiles company information from public sources, including company websites and public professional profiles such as LinkedIn, alongside information supplied by companies. The short recorded excerpt shown here is separate from the complete business description used for matching; individual source URLs and collection dates are not provided in this public snapshot.
RevenueBase SmartSearch matching settings
- Exact
- Closest fits to the business described.
- Similar
- Similar businesses with a wider range of fits.
- Related
- Related businesses in and around the category.
- Broad
- A broader set of businesses connected to the description.
RevenueBase SmartSearch · Exact match identifies inclusion in this search's closest semantic matching setting. It is not a per-company confidence score, a literal keyword match, or a quality endorsement.
Selection, ordering and scope
The public list shows selected company records with contact and verified-email coverage. Reported employee bands provide separate company-size context.
This page is derived from saved source records; per-contact mobile coverage and email-recency results are not established by this snapshot.
Recorded company descriptions support research; check company websites for current services. The selected preview is ordered by tracked contacts and is not a list of the best service providers.
Snapshot: November 6, 2026.
RevenueBase is a B2B data infrastructure company. Its September 3, 2026 published methodology describes a graph of 60 million companies and 398.9 million professional contacts; these platform figures differ from this page's totals. Published methodology ↗
Rare disease research centers by location
1 lists · largest firstEvery Rare disease research centers list RevenueBase publishes, by country and city. Counts are matching companies in each list as of its own refresh date.
Countries
Questions about this company list
What does Exact match mean for rare disease research centers?
The separate RevenueBase SmartSearch column identifies inclusion at the closest semantic matching preset. It is not a literal keyword match, a per-company confidence score or a quality endorsement. Changing the search form opens a new search in RevenueBase; it does not reclassify these saved rows.
How many rare disease research centers did RevenueBase find worldwide?
The saved snapshot records 186 matching company records, 4,577 tracked contacts and 1,798 verified emails. The public preview displays 25 selected records.
Where do the company descriptions come from?
RevenueBase compiles company information from public sources, including company websites and public professional profiles such as LinkedIn, alongside information supplied by companies. The short recorded excerpt shown here is separate from the complete business description used for matching; individual source URLs and collection dates are not provided in this public snapshot.
How are the public companies ordered?
The selected public records are ordered by contacts tracked in RevenueBase, highest first. Contact coverage is a prospecting measure, not an assessment of the company's services or quality.
How can I get contact information?
Select a company's contact count to open its filtered contacts in RevenueBase. Free signup is required and includes 500 credits and limited free results. Verified emails, direct dials and mobile numbers depend on available coverage.
How current is this list?
Snapshot: November 6, 2026. Review each company's website for current services and locations. A recorded business description does not establish that every company offers every service named in the search.
What do headquarters and employee bands mean?
These are recorded company-level fields, rather than a map of every branch or a count of specialists. Missing headquarters or employee bands are labeled; older records may show a location separately from recorded headquarters.
Build your next target company list
Adapt this niche search and work with available contacts in RevenueBase.
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Cite this list
RevenueBase Data Team. Top 25 rare disease research centers worldwide. Snapshot: November 6, 2026. https://revenuebase.ai/companies/browse/rare-disease-research-centers.
This is a selected public preview of saved company records, rather than an independently verified census. Open the source page ↗
More company lists
Company intelligence · public preview
Top 25 rare disease research centers worldwide
RevenueBase records 186 matching company records for rare disease research centers worldwide, with 4,577 tracked contacts and 1,798 verified work emails.
This public preview shows 25 selected records ordered by tracked contacts. RevenueBase SmartSearch finds company descriptions that match by meaning at Exact. Snapshot: November 6, 2026.
RevenueBase compiles business descriptions for niche-company discovery; each row shows a recorded excerpt where available. Adapt this search to find the companies and contacts you want.
Top 25 rare disease research centers worldwide
The public list shows selected company records with contact and verified-email coverage. Reported employee bands provide separate company-size context.
| # | Company | Headquarters on record | Reported employees | RevenueBase SmartSearch | Tracked contacts |
|---|---|---|---|---|---|
| 1 | CTI Clinical Trial And Consulting Servicesctifacts.com HQ: Covington, United StatesReported employees: 1,001-5,000 | Covington, United States | 1,001-5,000 | Exact match | 1,137 contacts → |
“CTI Clinical Trial and Consulting Services is a global, privately held, research service organization, delivering a complete spectrum of clinical trial and consulting services…” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 2 | Lifearclifearc.org HQ: London, United KingdomReported employees: 201-500 | London, United Kingdom | 201-500 | Exact match | 437 contacts → |
“LifeArc® is a self-funded medical research organisation with one clear purpose – transforming the lives of people living with rare diseases and drug-resistant infections.” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 3 | HQ: Pozzuoli, ItalyReported employees: 201-500 | Pozzuoli, Italy | 201-500 | Exact match | 288 contacts → |
“TIGEM is a leading research institute dedicated to uncovering the molecular mechanisms of rare genetic diseases and translating these discoveries into innovative therapies, with a…” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 4 | National Organization For Rare Disordersrarediseases.org HQ: Danbury, DC, United StatesReported employees: 51-200 | Danbury, DC, United States | 51-200 | Exact match | 164 contacts → |
“The National Organization for Rare Disorders (NORD), a 501(c)(3) organization, is an independent patient advocacy organization dedicated to helping individuals with rare diseases…” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 5 | Everylife Foundation For Rare Diseaseseverylifefoundation.org HQ: Washington, DC, United StatesReported employees: 11-50 | Washington, DC, United States | 11-50 | Exact match | 72 contacts → |
“The EveryLife Foundation for Rare Diseases is powered by the rare disease community to improve health outcomes by driving change through evidence-based policy, leading…” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 6 | Rare Disease Research, LLCrarediseaseresearch.com HQ: Atlanta, GA, United StatesReported employees: 11-50 | Atlanta, GA, United States | 11-50 | Exact match | 57 contacts → |
“As an independent clinical research site, we are 100% dedicated to conducting clinical research, accelerating the development of safe and effective treatments and providing rare…” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 7 | HQ: Ski Kommune, NorwayReported employees: 51-200 | Ski Kommune, Norway | 51-200 | Exact match | 53 contacts → |
“Frambu is a national resource centre for people with rare disorders in Norway.” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 8 | Ciber Enfermedades Rarasciberer.es HQ: Madrid, SpainReported employees: 51-200 | Madrid, Spain | 51-200 | Exact match | 47 contacts → |
“The CIBERER is a cooperative network structure, with 60 research groups located in the main research centres all over Spain.” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 9 | Raríssimasrarissimas.pt HQ: Lisbon, PortugalReported employees: 51-200 | Lisbon, Portugal | 51-200 | Exact match | 40 contacts → |
“A Raríssimas – Associação Nacional de Deficiências Mentais e Raras é uma IPSS, fundada em Abril de 2002, que desenvolve a sua acção junto de doentes e familiares que convivem de…” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 10 | Fundación Spinespine.org.ar HQ: Buenos Aires, ArgentinaReported employees: 11-50 | Buenos Aires, Argentina | 11-50 | Exact match | 38 contacts → |
“Fundación SPINE es una asociación sin fines de lucro que realiza investigación y tratamiento de pacientes con enfermedades raras o poco frecuentes, con el objetivo de mejorar su…” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 11 | HQ: Long Beach, CA, United StatesReported employees: 51-200 | Long Beach, CA, United States | 51-200 | Exact match | 35 contacts → |
“TPIRC is a non-profit clinical care and research center that focuses on the development of cutting-edge, individualized treatment protocols for rare and orphan diseases utilizing…” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 12 | HQ: Campinas, BrazilReported employees: 11-50 | Campinas, Brazil | 11-50 | Exact match | 34 contacts → |
“Sua participação pode ajudar a encontrar tratamento para várias doenças.” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 13 | Casa Huntercasahunter.org.br HQ: Sao Paulo, BrazilReported employees: 11-50 | Sao Paulo, Brazil | 11-50 | Exact match | 32 contacts → |
“Seja bem-vindo(a) a página da Casa Hunter.” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 14 | Rare Genomics Instituteraregenomics.org HQ: Downey, CA, United StatesReported employees: 51-200 | Downey, CA, United States | 51-200 | Exact match | 29 contacts → |
“Rare Genomics Institute (RG) was founded in 2011 to fill the health care gap for undiagnosed rare disease patients and supporting research in rare diseases.” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 15 | Casa DOS Raroscdr.org.br HQ: Porto Alegre, BrazilReported employees: 11-50 | Porto Alegre, Brazil | 11-50 | Exact match | 26 contacts → |
“Casa dos Raros - Centro de Atenção Integral e Treinamento em Doenças Raras é uma iniciativa inédita na América Latina totalmente focada no Atendimento, Ensino e Pesquisa em…” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 16 | Kansas City Research Institutekcresearchinstitute.com HQ: Kansas City, MO, United StatesReported employees: 1-10 | Kansas City, MO, United States | 1-10 | Exact match | 23 contacts → |
“Kansas City Research Institute conducts clinical trials yielding results that empower medical professionals and patients to make informed health care decisions by advancing…” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 17 | Visionary Investigators Networkvintrials.com HQ: Aventura, FL, United StatesReported employees: 11-50 | Aventura, FL, United States | 11-50 | Exact match | 20 contacts → |
“At Visionary Investigators Network (VIN), our mission is to advance medical science and improve patient care by conducting high-quality clinical research.” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 18 | Cedar Crosse Research Centercedarcrosse.com HQ: Chicago, IL, United StatesReported employees: 11-50 | Chicago, IL, United States | 11-50 | Exact match | 19 contacts → |
“Cedar Crosse Research Center connects patients with personalized health supervision through comprehensive clinical research studies.” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 19 | Erderaerdera.org HQ: United StatesReported employees: 51-200 | United States | 51-200 | Exact match | 19 contacts → |
“To leave no one behind, 180 organisations from 36 countries championed by the European Union and members states are working hand in hand to make Europe a world leader in rare…” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 20 | Aqualane Clinical Researchaqualaneresearch.com HQ: Naples, FL, United StatesReported employees: 11-50 | Naples, FL, United States | 11-50 | Exact match | 16 contacts → |
“Aqualane Clinical Research is a comprehensive clinical research group focusing on advancing medical therapies in a wide array of human disease states.” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 21 | Prolato Clinical Research Centerprolato.org HQ: Houston, TX, United StatesReported employees: 11-50 | Houston, TX, United States | 11-50 | Exact match | 16 contacts → |
“Prolato Clinical Research Center is dedicated to advancing medical innovation through high-quality clinical trials and patient-centered care.” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 22 | Checkrarecheckrare.com HQ: Hastings-on-hudson, NY, United StatesReported employees: 1-10 | Hastings-on-hudson, NY, United States | 1-10 | Exact match | 14 contacts → |
“CheckRare is a learning platform for health care professionals and patients.” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 23 | Maladies Rares Info Servicesmaladiesraresinfo.org HQ: Paris, FranceReported employees: 1-10 | Paris, France | 1-10 | Exact match | 11 contacts → |
“Maladies Rares Info Services est le service national d'écoute, d'information et d'orientation des personnes atteintes d'une maladie rare ou en errance diagnostique, de leurs…” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 24 | ORDIordindia.in HQ: Banglore, IndiaReported employees: 201-500 | Banglore, India | 201-500 | Exact match | 11 contacts → |
“Our Objectives Rare Diseases Patients Helpline and Helpdesk: ORDI runs a national rare disease hotline (+91 8892 to hear the needs of rare disease patients.” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 25 | Know Rareknowrare.com HQ: New York, NY, United StatesReported employees: 11-50 | New York, NY, United States | 11-50 | Exact match | 10 contacts → |
“At Know Rare, we aim to connect people living with rare diseases to information about their conditions as well as to specialists, clinical studies, advocacy organizations, and…” Recorded description excerpt · November 6, 2026Open company data in RevenueBase ↗Free signup required. | |||||
Showing 25 of 186 company matches
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Rare disease research centers: dataset insights
November 6, 2026These summaries describe recorded coverage in this saved dataset. This page is derived from saved source records; per-contact mobile coverage and email-recency results are not established by this snapshot.
Reported company sizes
185 records in the displayed employee bands.
1 matching records are outside the displayed bands or do not have a displayed size. Bars show shares of the displayed bands.
Email recency for this list is measured across the whole country list rather than for Worldwide, so it is reported there. Company counts and contact totals on this page are exact for Worldwide, over 186 companies.
How this company list was built
Describe a niche in your own words: companies installing commercial solar, or manufacturers of sustainable packaging. RevenueBase SmartSearch finds companies whose compiled business descriptions match by meaning. This list is one saved example to adapt.
Where the company descriptions come from
RevenueBase compiles company information from public sources, including company websites and public professional profiles such as LinkedIn, alongside information supplied by companies. The short recorded excerpt shown here is separate from the complete business description used for matching; individual source URLs and collection dates are not provided in this public snapshot.
RevenueBase SmartSearch matching settings
- Exact
- Closest fits to the business described.
- Similar
- Similar businesses with a wider range of fits.
- Related
- Related businesses in and around the category.
- Broad
- A broader set of businesses connected to the description.
RevenueBase SmartSearch · Exact match identifies inclusion in this search's closest semantic matching setting. It is not a per-company confidence score, a literal keyword match, or a quality endorsement.
Selection, ordering and scope
The public list shows selected company records with contact and verified-email coverage. Reported employee bands provide separate company-size context.
This page is derived from saved source records; per-contact mobile coverage and email-recency results are not established by this snapshot.
Recorded company descriptions support research; check company websites for current services. The selected preview is ordered by tracked contacts and is not a list of the best service providers.
Snapshot: November 6, 2026.
RevenueBase is a B2B data infrastructure company. Its September 3, 2026 published methodology describes a graph of 60 million companies and 398.9 million professional contacts; these platform figures differ from this page's totals. Published methodology ↗
Rare disease research centers by location
1 lists · largest firstEvery Rare disease research centers list RevenueBase publishes, by country and city. Counts are matching companies in each list as of its own refresh date.
Countries
Questions about this company list
What does Exact match mean for rare disease research centers?
The separate RevenueBase SmartSearch column identifies inclusion at the closest semantic matching preset. It is not a literal keyword match, a per-company confidence score or a quality endorsement. Changing the search form opens a new search in RevenueBase; it does not reclassify these saved rows.
How many rare disease research centers did RevenueBase find worldwide?
The saved snapshot records 186 matching company records, 4,577 tracked contacts and 1,798 verified emails. The public preview displays 25 selected records.
Where do the company descriptions come from?
RevenueBase compiles company information from public sources, including company websites and public professional profiles such as LinkedIn, alongside information supplied by companies. The short recorded excerpt shown here is separate from the complete business description used for matching; individual source URLs and collection dates are not provided in this public snapshot.
How are the public companies ordered?
The selected public records are ordered by contacts tracked in RevenueBase, highest first. Contact coverage is a prospecting measure, not an assessment of the company's services or quality.
How can I get contact information?
Select a company's contact count to open its filtered contacts in RevenueBase. Free signup is required and includes 500 credits and limited free results. Verified emails, direct dials and mobile numbers depend on available coverage.
How current is this list?
Snapshot: November 6, 2026. Review each company's website for current services and locations. A recorded business description does not establish that every company offers every service named in the search.
What do headquarters and employee bands mean?
These are recorded company-level fields, rather than a map of every branch or a count of specialists. Missing headquarters or employee bands are labeled; older records may show a location separately from recorded headquarters.
Build your next target company list
Adapt this niche search and work with available contacts in RevenueBase.
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Cite this list
RevenueBase Data Team. Top 25 rare disease research centers worldwide. Snapshot: November 6, 2026. https://revenuebase.ai/companies/browse/rare-disease-research-centers.
This is a selected public preview of saved company records, rather than an independently verified census. Open the source page ↗