Company lists · Data refreshed September 2026
Top 25 Patient advocacy organizations worldwide
RevenueBase identified 911 patient advocacy organizations worldwide as of September 2026 and tracks 7,580 professional contacts across them, including 2,541 with verified work emails. The United States is the largest market and Washington the largest hub.
This list covers patient advocacy organizations worldwide, matched on what each company actually does as described in its own words. Ranked by team size, largest first. Every row shows the company's own description, its RevenueBase Smart Search rating, and when it was last checked. Data refreshed September 20, 2026. Country and city lists for patient advocacy organizations follow the table.
Published by RevenueBase, a B2B data infrastructure company. This list was built with RevenueBase Smart Search, the natural-language company search RevenueBase customers use to build their own targeted lists and unlock verified emails and direct dials at the companies on them. How these lists are built and judged.
The 25 largest patient advocacy organizations worldwide
Ranked by team size| # | Company | Contacts | |||
|---|---|---|---|---|---|
| 1 | 572 contacts → | ||||
Indirect evidence “Healthcare is impossibly complex, and most people are left to navigate it alone.” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 2 | 351 contacts → | ||||
Indirect evidence “Solidaris Brabant jouit de la confiance de plus de affiliés, et milite pour l’accès aux soins de santé de qualité pour tous, rendu possible grâce au principe de solidarité.” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 3 | 253 contacts → | ||||
Partial evidence “BeneLynk is a national social care advocate for managed care companies.” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 4 | 156 contacts → | ||||
Strong evidence “The National Organization for Rare Disorders (NORD), a 501(c)(3) organization, is an independent patient advocacy organization dedicated to helping individuals with rare diseases…” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 5 | 105 contacts → | ||||
Indirect evidence “Patiëntenfederatie Nederland zet zich in voor het 'Realiseren van vraaggestuurde zorg voor patiënten en consumenten vanuit het patiëntenperspectief, uitgaande van solidariteit…” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 6 | 88 contacts → | ||||
Indirect evidence “LOC Zeggenschap in zorg is er voor cliëntenraden in de geestelijke gezondheidszorg, maatschappelijke opvang, thuiszorg, verpleging & verzorging, verslavingszorg en welzijn.” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 7 | 87 contacts → | ||||
Indirect evidence “Cliëntenbelang Amsterdam is een onafhankelijke belangenbehartiger met een duidelijk doel: de kwaliteit van leven verbeteren van mensen die dat hard nodig hebben.” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 8 | 83 contacts → | ||||
Indirect evidence “Mountain Pacific is a well established, nonprofit organization that connects specialized services, education, training and support to health care systems and communities that seek…” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 9 | 78 contacts → | ||||
Indirect evidence “As an independent charity, all of the services we provide are free and confidential.” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 10 | 77 contacts → | ||||
Indirect evidence “Kwaliteit van zorg verbeteren vanuit cliëntenperspectief?” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 11 | 76 contacts → | ||||
Strong evidence “At HealthFund Solutions, we are an advocate to uninsured patients and a partner to hospitals and healthcare providers.” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 12 | 76 contacts → | ||||
Indirect evidence “France Assos Santé est le nom choisi par l’Union nationale des associations agréées d’usagers du système de santé afin de faire connaître son action comme organisation de…” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 13 | 75 contacts → | ||||
Partial evidence “EURORDIS-Rare Diseases Europe is a unique, non-profit alliance of over rare disease patient organisations from more than 70 countries that work together to improve the lives of…” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 14 | 74 contacts → | ||||
Indirect evidence “We gaan verder onder de naam Zorgbelang Inclusief🤝 Samen blijven we ons inzetten om de stem van inwoners, patiënten en cliënten écht te laten tellen.” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 15 | 73 contacts → | ||||
Indirect evidence “For more than 30 years, Families USA has been the trusted voice for America’s health care consumers.” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 16 | 66 contacts → | ||||
Indirect evidence “CISCRP is a first-of-its-kind 501(c)3 nonprofit organization dedicated to educating and informing the public about clinical research participation and the role that each party…” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 17 | 58 contacts → | ||||
Indirect evidence “Treatment Action Campaign (TAC) is a membership-based organisation, founded in 1998 as a movement representing users of the public healthcare system, particularly those living…” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 18 | 53 contacts → | ||||
Partial evidence “The Alliance for Regenerative Medicine (ARM) is the leading international advocacy organization championing the benefits of engineered cell therapies and genetic medicines for…” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 19 | 48 contacts → | ||||
Partial evidence “Our charity has been delivering best practice health and social care advocacy from its Lancashire base since 1998.” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 20 | 48 contacts → | ||||
Indirect evidence “RoseUp association est une association d'intérêt général (loi 1901) qui accompagne, informe et défends les droits des malades de cancer” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 21 | 48 contacts → | ||||
Partial evidence “Ohio Citizen Action organizes and mobilizes people to advocate for public interests.” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 22 | 45 contacts → | ||||
Indirect evidence “NFK komt op voor de belangen van mensen die kanker hebben (gehad) en hun naasten.” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 23 | 44 contacts → | ||||
Indirect evidence “De patiëntenvereniging voor (ex-)borstkankerpatiënten, mensen met erfelijke/familiaire aanleg en hun naasten.” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 24 | 42 contacts → | ||||
Partial evidence “The Older Persons Advocacy Network is a national network comprised of nine state and territory organisations that have successfully delivered information, education and individual…” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 25 | 42 contacts → | ||||
Indirect evidence “O Instituto Oncoguia, uma associação sem fins lucrativos tem como missão ajudar o paciente com câncer a viver melhor por meio de informação de qualidade e do empoderamento da…” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
RevenueBase Smart Search
RevenueBase Smart Search assesses information from a company’s LinkedIn profile, information supplied directly by the company, its website, and other publicly available sources. It uses that information to rate how closely the company relates to this list’s category: patient advocacy organizations. Every row carries its rating and the description the rating was read from, so each one can be checked rather than taken on trust.
- Strong evidence
- The company's own public description of its business names patient advocacy organizations.
- Partial evidence
- Its own public description names part of patient advocacy organizations, so it works in or next to the category without describing itself that way.
- Indirect evidence
- The description shown does not name patient advocacy organizations. The match rests on the rest of the company's public profile rather than the one sentence quoted here, so this is the rating to check first.
RevenueBase Smart Search is how these lists are built: RevenueBase's data engine and AI assemble the companies that match a category defined in a user's own words, so a list can be about what companies actually do rather than about whichever industry code they were filed under.
Showing 25 of 911 patient advocacy organizations worldwide
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Patient advocacy organizations worldwide at a glance
As of Sep 20, 2026Companies by employee count
Email recency is reported on each country list linked below.
How this list was built
Company categories are rarely black and white. RevenueBase reads each company's own description of its business to decide whether it belongs among patient advocacy organizations, so some rows will be adjacent to the category rather than pure plays. The description and RevenueBase Smart Search rating on every row are there so you can check each match yourself.
- Source
- The RevenueBase company graph: 60 million companies and 398.9 million professional contacts resolved from primary sources, queried with RevenueBase Smart Search, the natural-language company search available to every RevenueBase user.
- Coverage
- Every country. Country and city lists for patient advocacy organizations are linked below.
- What qualifies
- Companies worldwide whose own description of what they do matches “patient advocacy organizations”. Matching reads each company's description, not its industry code or its name.
- RevenueBase Smart Search
- RevenueBase Smart Search is how this list is assembled and how each row is rated. RevenueBase's data engine and AI assess a company's LinkedIn profile, information supplied directly by the company, its website and other publicly available information, then relate it to a category defined in a user's own words. Each row is rated strong evidence (its own description names patient advocacy organizations), partial evidence (it names part of the category) or indirect evidence (the description shown names none of it and the match rests on the rest of the company's profile). The description supporting each rating is quoted on the row.
- What we exclude
- Companies whose own description does not clearly place them among patient advocacy organizations, and records with no verified work email.
- Match quality
- In blind human judging of this matching method, 86% of matched companies were on target. Expect roughly 1 in 7 rows to be adjacent to the category rather than a pure play. Every row shows the company's own description and its RevenueBase Smart Search rating so you can judge each match yourself. Read the full methodology: how the lists are built, how the judging worked, and what the figure means.
- Ranking
- Team size, largest first: companies are ordered by the number of professionals RevenueBase tracks at each one. Employee ranges shown are reported bands, for context.
- Verification
- Every listed company carries at least one verified work email, 2,541 across the full list. Contacts re-verify on a rolling cadence, and each contact's own verification date is shown inside RevenueBase.
- Refresh
- This page's figures were pulled from the company graph on September 20, 2026. Lists refresh periodically as the graph is re-checked.
- Corrections
- Wrong category, wrong headquarters, or a company that has closed? Use “Report an issue” on any row. Reports go to the RevenueBase Data Team and feed back into the company graph.
Patient advocacy organizations by location
5 lists · largest firstEvery Patient advocacy organizations list RevenueBase publishes, by country and city. Counts are matching companies in each list as of its own refresh date.
Countries
Frequently asked
What is RevenueBase Smart Search?
RevenueBase Smart Search is how RevenueBase decides which companies belong on this list and how strongly each one fits. Its data engine and AI assess a company's LinkedIn profile, information supplied directly by the company, its website and other publicly available information, then relate it to the category the list is about. Each row is rated strong evidence when the company's own description names patient advocacy organizations, partial evidence when it names part of the category, and indirect evidence when the description shown names none of it and the match rests on the rest of the company's profile.
How many patient advocacy organizations are there worldwide?
RevenueBase identified 911 patient advocacy organizations worldwide as of September 2026, matched on each company's own description of what it does rather than its industry code.
What is the largest company on this list?
Solace, headquartered in Redwood City, tops this list with the largest team on record.
Which country has the most patient advocacy organizations?
The United States leads with 335 companies, followed by the United Kingdom (53) and the Netherlands (38). Every patient advocacy organizations list by country and city is linked on this page.
Which city has the most patient advocacy organizations?
Washington leads with 42 headquartered companies, followed by London (10) and New York (10).
How do I get contact information for these companies?
A free RevenueBase account lets you run this exact search and work the top results, verified emails and direct dials included. Upgrading unlocks all 2,541 verified decision-maker contacts tracked across these 911 companies.
How current is this list?
The list refreshes periodically as the company graph is re-checked. This page's figures were pulled on September 20, 2026.
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About this data
RevenueBase is a B2B data infrastructure company. Its company graph covers 60 million companies and 398.9 million professional contacts, with emails verified on a rolling cadence rather than scraped once and left to decay. These company lists are generated directly from that graph with RevenueBase Smart Search, the same natural-language company search every RevenueBase user has: describe a market in plain words, get the companies that match, and add verified emails and direct dials for the people at them. It is the same data that powers RevenueBase's B2B data products, and a free account includes 500 credits to start. How these lists are built and judged.