Company lists · Data refreshed September 2026
Top 25 Patient advocacy groups worldwide
RevenueBase identified 443 patient advocacy groups worldwide as of September 2026 and tracks 3,106 professional contacts across them, including 974 with verified work emails. The United States is the largest market and Washington the largest hub.
This list covers patient advocacy groups worldwide, matched on what each company actually does as described in its own words. Ranked by team size, largest first. Every row shows the company's own description, its RevenueBase Smart Search rating, and when it was last checked. Data refreshed September 20, 2026. Country and city lists for patient advocacy groups follow the table.
Published by RevenueBase, a B2B data infrastructure company. This list was built with RevenueBase Smart Search, the natural-language company search RevenueBase customers use to build their own targeted lists and unlock verified emails and direct dials at the companies on them. How these lists are built and judged.
The 25 largest patient advocacy groups worldwide
Ranked by team size| # | Company | Contacts | |||
|---|---|---|---|---|---|
| 1 | 229 contacts → | ||||
Indirect evidence “DDBH aims to create a world where the best treatment is possible for every person.” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 2 | 156 contacts → | ||||
Strong evidence “The National Organization for Rare Disorders (NORD), a 501(c)(3) organization, is an independent patient advocacy organization dedicated to helping individuals with rare diseases…” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 3 | 105 contacts → | ||||
Indirect evidence “Patiëntenfederatie Nederland zet zich in voor het 'Realiseren van vraaggestuurde zorg voor patiënten en consumenten vanuit het patiëntenperspectief, uitgaande van solidariteit…” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 4 | 76 contacts → | ||||
Strong evidence “At HealthFund Solutions, we are an advocate to uninsured patients and a partner to hospitals and healthcare providers.” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 5 | 74 contacts → | ||||
Indirect evidence “We gaan verder onder de naam Zorgbelang Inclusief🤝 Samen blijven we ons inzetten om de stem van inwoners, patiënten en cliënten écht te laten tellen.” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 6 | 66 contacts → | ||||
Indirect evidence “CISCRP is a first-of-its-kind 501(c)3 nonprofit organization dedicated to educating and informing the public about clinical research participation and the role that each party…” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 7 | 58 contacts → | ||||
Indirect evidence “Treatment Action Campaign (TAC) is a membership-based organisation, founded in 1998 as a movement representing users of the public healthcare system, particularly those living…” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 8 | 56 contacts → | ||||
Partial evidence “Patienten stärken.” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 9 | 53 contacts → | ||||
Partial evidence “The Alliance for Regenerative Medicine (ARM) is the leading international advocacy organization championing the benefits of engineered cell therapies and genetic medicines for…” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 10 | 48 contacts → | ||||
Indirect evidence “RoseUp association est une association d'intérêt général (loi 1901) qui accompagne, informe et défends les droits des malades de cancer” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 11 | 48 contacts → | ||||
Partial evidence “Ohio Citizen Action organizes and mobilizes people to advocate for public interests.” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 12 | 45 contacts → | ||||
Indirect evidence “VPIRG’s mission is to promote and protect the health of Vermont’s people, environment and locally-based economy by informing and mobilizing individuals and communities across the…” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 13 | 45 contacts → | ||||
Indirect evidence “NFK komt op voor de belangen van mensen die kanker hebben (gehad) en hun naasten.” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 14 | 42 contacts → | ||||
Partial evidence “Discovery is a Publicis Health agency focused on identifying and implementing key collaborative advocacy strategies.” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 15 | 33 contacts → | ||||
Indirect evidence “Founded in 1995, VOZ Advisors.” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 16 | 31 contacts → | ||||
Partial evidence “Disability Advocacy Network Australia (DANA) Ltd supports and strengthens independent disability advocacy agencies in their work of advocating for and with people with…” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 17 | 30 contacts → | ||||
Indirect evidence “Zorgbelang Groningen wil voor alle inwoners van de provincie Groningen toegankelijke, betaalbare en kwalitatief goede zorg en ondersteuning die aansluit bij hun wensen, behoeften…” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 18 | 29 contacts → | ||||
Partial evidence “We are the patient's voice in cancer!” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 19 | 28 contacts → | ||||
Partial evidence “Doctors for America (DFA) mobilizes doctors and medical students to be leaders in putting patients over politics to improve the health of our patients, communities, and nation.” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 20 | 23 contacts → | ||||
Partial evidence “The mission of Patients Rising is to empower patients and caregivers to navigate healthcare challenges, share their stories, and influence the policies that impact their lives.” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 21 | 22 contacts → | ||||
Indirect evidence “Samen met onze leden (meer dan 125 patiëntenverenigingen) werken we aan de levenskwaliteit van personen met een chronische aandoening en hun omgeving.” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 22 | 22 contacts → | ||||
Indirect evidence “We are leading the fight to protect and strengthen health care for millions of Americans.” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 23 | 22 contacts → | ||||
Partial evidence “One of Sweden's largest patient organizations, with nearly members and 170 associations across the country.” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 24 | 21 contacts → | ||||
Indirect evidence “Campaigning for Cancer was established in 2008 with a vision of being a strong, sympathetic, and responsible voice for people affected by cancer.” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
| 25 | 21 contacts → | ||||
Partial evidence “The Patients Association is a national independent health and social care charity who believes that everyone has the right to receive the very best care when they need it most.” Source: RevenueBase Database · checked Sep 20, 2026Thanks. The Data Team will review it. | |||||
RevenueBase Smart Search
RevenueBase Smart Search assesses information from a company’s LinkedIn profile, information supplied directly by the company, its website, and other publicly available sources. It uses that information to rate how closely the company relates to this list’s category: patient advocacy groups. Every row carries its rating and the description the rating was read from, so each one can be checked rather than taken on trust.
- Strong evidence
- The company's own public description of its business names patient advocacy groups.
- Partial evidence
- Its own public description names part of patient advocacy groups, so it works in or next to the category without describing itself that way.
- Indirect evidence
- The description shown does not name patient advocacy groups. The match rests on the rest of the company's public profile rather than the one sentence quoted here, so this is the rating to check first.
RevenueBase Smart Search is how these lists are built: RevenueBase's data engine and AI assemble the companies that match a category defined in a user's own words, so a list can be about what companies actually do rather than about whichever industry code they were filed under.
Showing 25 of 443 patient advocacy groups worldwide
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Patient advocacy groups worldwide at a glance
As of Sep 20, 2026Companies by employee count
Email recency is reported on each country list linked below.
How this list was built
Company categories are rarely black and white. RevenueBase reads each company's own description of its business to decide whether it belongs among patient advocacy groups, so some rows will be adjacent to the category rather than pure plays. The description and RevenueBase Smart Search rating on every row are there so you can check each match yourself.
- Source
- The RevenueBase company graph: 60 million companies and 398.9 million professional contacts resolved from primary sources, queried with RevenueBase Smart Search, the natural-language company search available to every RevenueBase user.
- Coverage
- Every country. Country and city lists for patient advocacy groups are linked below.
- What qualifies
- Companies worldwide whose own description of what they do matches “patient advocacy groups”. Matching reads each company's description, not its industry code or its name.
- RevenueBase Smart Search
- RevenueBase Smart Search is how this list is assembled and how each row is rated. RevenueBase's data engine and AI assess a company's LinkedIn profile, information supplied directly by the company, its website and other publicly available information, then relate it to a category defined in a user's own words. Each row is rated strong evidence (its own description names patient advocacy groups), partial evidence (it names part of the category) or indirect evidence (the description shown names none of it and the match rests on the rest of the company's profile). The description supporting each rating is quoted on the row.
- What we exclude
- Companies whose own description does not clearly place them among patient advocacy groups, and records with no verified work email.
- Match quality
- In blind human judging of this matching method, 86% of matched companies were on target. Expect roughly 1 in 7 rows to be adjacent to the category rather than a pure play. Every row shows the company's own description and its RevenueBase Smart Search rating so you can judge each match yourself. Read the full methodology: how the lists are built, how the judging worked, and what the figure means.
- Ranking
- Team size, largest first: companies are ordered by the number of professionals RevenueBase tracks at each one. Employee ranges shown are reported bands, for context.
- Verification
- Every listed company carries at least one verified work email, 974 across the full list. Contacts re-verify on a rolling cadence, and each contact's own verification date is shown inside RevenueBase.
- Refresh
- This page's figures were pulled from the company graph on September 20, 2026. Lists refresh periodically as the graph is re-checked.
- Corrections
- Wrong category, wrong headquarters, or a company that has closed? Use “Report an issue” on any row. Reports go to the RevenueBase Data Team and feed back into the company graph.
Patient advocacy groups by location
1 lists · largest firstEvery Patient advocacy groups list RevenueBase publishes, by country and city. Counts are matching companies in each list as of its own refresh date.
Countries
Frequently asked
What is RevenueBase Smart Search?
RevenueBase Smart Search is how RevenueBase decides which companies belong on this list and how strongly each one fits. Its data engine and AI assess a company's LinkedIn profile, information supplied directly by the company, its website and other publicly available information, then relate it to the category the list is about. Each row is rated strong evidence when the company's own description names patient advocacy groups, partial evidence when it names part of the category, and indirect evidence when the description shown names none of it and the match rests on the rest of the company's profile.
How many patient advocacy groups are there worldwide?
RevenueBase identified 443 patient advocacy groups worldwide as of September 2026, matched on each company's own description of what it does rather than its industry code.
What is the largest company on this list?
DDB Health NEW York, headquartered in New York, tops this list with the largest team on record.
Which country has the most patient advocacy groups?
The United States leads with 181 companies. Every patient advocacy groups list by country and city is linked on this page.
Which city has the most patient advocacy groups?
Washington leads with 24 headquartered companies, followed by Cleveland (6) and London (5).
How do I get contact information for these companies?
A free RevenueBase account lets you run this exact search and work the top results, verified emails and direct dials included. Upgrading unlocks all 974 verified decision-maker contacts tracked across these 443 companies.
How current is this list?
The list refreshes periodically as the company graph is re-checked. This page's figures were pulled on September 20, 2026.
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About this data
RevenueBase is a B2B data infrastructure company. Its company graph covers 60 million companies and 398.9 million professional contacts, with emails verified on a rolling cadence rather than scraped once and left to decay. These company lists are generated directly from that graph with RevenueBase Smart Search, the same natural-language company search every RevenueBase user has: describe a market in plain words, get the companies that match, and add verified emails and direct dials for the people at them. It is the same data that powers RevenueBase's B2B data products, and a free account includes 500 credits to start. How these lists are built and judged.