Company lists · Data refreshed September 2026
Top 25 Genetic disease support groups worldwide
RevenueBase identified 98 company matches for genetic disease support groups worldwide as of September 2026 and tracks 1,365 professional contacts across them, including 652 with verified work emails. The United States is the largest market and Dubai the largest hub.
This list covers company matches for genetic disease support groups worldwide, found by RevenueBase SmartSearch using the meaning of business descriptions in its company graph at Exact. Ranked by professionals tracked, largest first. Rows show recorded descriptions where available, Exact search membership and the snapshot date. Data refreshed September 20, 2026. Country and city lists for genetic disease support groups follow the table.
Published by RevenueBase, a B2B data infrastructure company. This list was built with RevenueBase SmartSearch, the natural-language company search RevenueBase customers use to build their own targeted lists and unlock verified emails and direct dials at the companies on them. How these lists are built and judged.
The 25 largest genetic disease support groups worldwide
Ranked by team size| # | Company | Contacts | |||
|---|---|---|---|---|---|
| 1 | 571 contacts → | ||||
Exact match “L’AFM-Téléthon est une association de parents et de malades qui mène un combat sans relâche contre des maladies génétiques, rares et lourdement invalidantes.” Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase | |||||
| 2 | 177 contacts → | ||||
Exact match “For 50 years, the Greenwood Genetic Center has provided clinical genetic services, diagnostic laboratory testing, educational programs and resources, and medical genetics research…” Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase | |||||
| 3 | 156 contacts → | ||||
Exact match “The National Organization for Rare Disorders (NORD), a 501(c)(3) organization, is an independent patient advocacy organization dedicated to helping individuals with rare diseases…” Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase | |||||
| 4 | 84 contacts → | ||||
Exact match “Our mission is to bridge critical gaps in access, ensuring that individuals and families affected by rare conditions receive the expert guidance they need.” Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase | |||||
| 5 | 31 contacts → | ||||
Exact match “Rare Genomics Institute (RG) was founded in 2011 to fill the health care gap for undiagnosed rare disease patients and supporting research in rare diseases.” Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase | |||||
| 6 | 30 contacts → | ||||
Exact match “Genetic Alliance is the world’s leading nonprofit health advocacy organization committed to transforming health through genetics and promoting an environment of openness centered…” Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase | |||||
| 7 | 19 contacts → | ||||
Exact match “Genetic Alliance UK is the largest alliance of organisations supporting people with genetic, rare and undiagnosed conditions in the UK.” Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase | |||||
| 8 | 19 contacts → | ||||
Exact match “Jnetics was established to raise awareness of Jewish genetic disorders and to help anyone affected and at risk to access the best information, services and support available.” Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase | |||||
| 9 | 15 contacts → | ||||
Exact match “De VSOP is belangenbehartiger voor alle mensen met een zeldzame of genetische aandoening.” Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase | |||||
| 10 | 11 contacts → | ||||
Exact match “Raregivers™ is a global network that delivers emotional support to caregivers, patients and professionals in rare, chronic and complex disease communities.” Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase | |||||
| 11 | 10 contacts → | ||||
Exact match “At Know Rare, we aim to connect people living with rare diseases to information about their conditions as well as to specialists, clinical studies, advocacy organizations, and…” Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase | |||||
| 12 | 9 contacts → | ||||
Exact match “Accelerating Genetic Disease Diagnosis via Education and Testing.” Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase | |||||
| 13 | 8 contacts → | ||||
Exact match “LeadPath Healthcare Innovations – Navigating the Path Less Taken in Rare Disease Care LeadPath Healthcare Innovations is a purpose-driven organization on a mission to transform…” Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase | |||||
| 14 | 8 contacts → | ||||
Exact match “SWAN is a not for profit charity and incorporated association.” Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase | |||||
| 15 | 8 contacts → | ||||
Exact match “The Genesis Foundation for Children provides funding for the diagnosis and compassionate, coordinated care of children born with genetic disorders, rare diseases, and disabilities.” Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase | |||||
| 16 | 7 contacts → | ||||
Exact match “BensFriends.org is a network of safe and supportive patient communities for anyone affected by a rare disease.” Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase | |||||
| 17 | 5 contacts → | ||||
Exact match “There are so many patients in advocacy groups worldwide who are full of energy, commitment and will to improve other people’s lives.” Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase | |||||
| 18 | 5 contacts → | ||||
Exact match “The ACMG Foundation for Genetic and Genomic Medicine, a 501(c)(3) nonprofit organization, is a community of supporters and contributors who understand the importance of medical…” Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase | |||||
| 19 | 5 contacts → | ||||
Exact match “We are a health-focused nonprofit organization that helps individuals and families with hereditary disease, such as cancer risk, in their early detection and prevention efforts.” Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase | |||||
| 20 | 5 contacts → | ||||
Exact match “Welcome to Genetic Alliance Australia, a tax-deductible registered charity passionately dedicated to providing support, resources, and a strong community for individuals and…” Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase | |||||
| 21 | 4 contacts → | ||||
Exact match “Gene People is a charity here to support anyone with a genetic condition and their loved ones, and the patient organisations and support groups that work with them.” Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase | |||||
| 22 | 4 contacts → | ||||
Exact match “Nonprofit association for people with rare diseases and their famlies” Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase | |||||
| 23 | 3 contacts → | ||||
Exact match “Gaucher Community Alliance (GCA) is a 501(c)(3) non-profit organization for the patient community by the patient community.” Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase | |||||
| 24 | 3 contacts → | ||||
Exact match “The Genetic Diseases Association (GDA) in the United Arab Emirates is a non-profit organization that provides support, education, and advocacy for individuals and families…” Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase | |||||
| 25 | 3 contacts → | ||||
Exact match “Hereditary Disease Circle is an effort to bring out genetic treatments and cures faster.” Recorded in the RevenueBase company graph · Sep 20, 2026 · View company records in RevenueBase | |||||
RevenueBase SmartSearch
Describe a niche business in your own words. RevenueBase SmartSearch compares the meaning of your description with company business descriptions compiled in the RevenueBase company graph. Exact, Similar, Related and Broad control how closely companies must fit.
This list uses Exact for “genetic disease support groups”. Each Exact match badge shows membership in that saved search; it is not an individual similarity score or a service-quality rating. Recorded descriptions are shown where available.
Showing 25 of 98 genetic disease support groups worldwide
See the full list, filter by size, metro and specialty, and access 652 tracked professional contacts with verified work emails. Direct dials are available where recorded.
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Genetic disease support groups worldwide at a glance
As of Sep 20, 2026Companies by employee count
Email recency is reported on each country list linked below.
How this list was built
The recorded descriptions help you assess these company matches. Check a company’s website for its current services and locations.
- Source
- The RevenueBase company graph: 60 million companies and 398.9 million professional contacts resolved from primary sources, queried with RevenueBase SmartSearch, the natural-language company search available to every RevenueBase user.
- Coverage
- Every country. Country and city lists for genetic disease support groups are linked below.
- What qualifies
- Company records worldwide whose business descriptions match “genetic disease support groups” by meaning at the Exact setting. Descriptions are compiled in the RevenueBase company graph from public websites, profiles and company information where available; they are not guaranteed quotations from the company's website.
- RevenueBase SmartSearch
- Describe a niche company in your own words to find businesses by meaning. Exact, Similar, Related and Broad control the breadth of RevenueBase SmartSearch. This saved list uses Exact. Each row's Exact match badge shows inclusion in that search, not an individual score or a service-quality judgment.
- Public preview
- The public preview omits records without a verified work email. Dataset totals and geographic summaries describe the full matched records before these preview filters.
- Match quality
- RevenueBase's August 25, 2026 study assessed 4,198 description/company pairs across matching settings. The publisher reports 86% good or better at Exact. This evaluates the method across queries; it does not audit this individual list. Recorded company descriptions, where available, help you judge each match yourself. Read the full methodology: how the lists are built and what the study measures.
- Ranking
- Team size, largest first: companies are ordered by the number of professionals RevenueBase tracks at each one. Employee ranges shown are reported bands, for context.
- Verification
- Every displayed company carries at least one verified work email. RevenueBase tracks 652 professional contacts with verified work emails across the full matched dataset. Contacts re-verify on a rolling cadence, and each contact's own verification date is shown inside RevenueBase.
- Refresh
- This page's figures were pulled from the company graph on September 20, 2026. Lists refresh periodically as the graph is re-checked.
- Record context
- Company records and descriptions can change. Check the company's website for its current services and locations.
Genetic disease support groups by location
1 lists · largest firstEvery Genetic disease support groups list RevenueBase publishes, by country and city. Counts are matching companies in each list as of its own refresh date.
Countries
Frequently asked
What is RevenueBase SmartSearch?
RevenueBase SmartSearch finds niche companies by the meaning of their business descriptions in the RevenueBase company graph. Exact, Similar, Related and Broad control how closely companies must fit your description. This list uses Exact for “genetic disease support groups”; each Exact match badge shows search membership, not an individual similarity or quality score.
How many genetic disease support groups are there worldwide?
RevenueBase identified 98 company matches for genetic disease support groups worldwide as of September 2026, using the meaning of business descriptions at Exact. This is the recorded matched set in the RevenueBase company graph.
What is the largest company on this list?
Afm-Téléthon tops the displayed preview by professional contacts tracked in RevenueBase. Recorded headquarters appear in the company rows.
Which country has the most genetic disease support groups?
The United States leads with 27 companies. Every genetic disease support groups list by country and city is linked on this page.
Which city has the most genetic disease support groups?
Dubai leads with 3 company records, followed by London (2) and New York (2).
How do I get contact information for these companies?
A free RevenueBase account lets you run this exact search and work limited free results with 500 credits to start. Upgrading provides access to the 652 professional contacts with verified work emails tracked across these 98 companies; direct dials are available where recorded.
How current is this list?
The list refreshes periodically as the company graph is re-checked. This page's figures were pulled on September 20, 2026.
Ready to reach these companies? Verified emails and direct dials for all 98 genetic disease support groups worldwide. Start with a free account, no credit card.
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About this data
RevenueBase is a B2B data infrastructure company. Its company graph covers 60 million companies and 398.9 million professional contacts, with emails verified on a rolling cadence rather than scraped once and left to decay. These company lists are generated directly from that graph with RevenueBase SmartSearch, the same natural-language company search every RevenueBase user has: describe a market in plain words, get the companies that match, and add verified emails and direct dials for the people at them. It is the same data that powers RevenueBase's B2B data products, and a free account includes 500 credits to start. How these lists are built and judged.
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Company intelligence · public preview
Top 25 genetic disease support groups worldwide
Find companies in any niche.
Describe the businesses you want in your own words. RevenueBase SmartSearch matches company descriptions by meaning.
RevenueBase records 98 matching company records for genetic disease support groups worldwide, with 1,365 tracked contacts and 652 verified work emails.
This public preview shows 25 selected records ordered by tracked contacts. RevenueBase SmartSearch finds company descriptions that match by meaning at Exact. Snapshot: September 20, 2026.
RevenueBase compiles business descriptions for niche-company discovery; each row shows a recorded excerpt where available. Adapt this search to find the companies and contacts you want.
Top 25 genetic disease support groups worldwide
The public list shows selected company records with contact and verified-email coverage. Reported employee bands provide separate company-size context.
| # | Company | Headquarters on record | Reported employees | RevenueBase SmartSearch | Tracked contacts |
|---|---|---|---|---|---|
| 1 |  Afm-Téléthonafm-telethon.frHQ: Evry, FranceReported employees: 201-500 | Evry, France | 201-500 | Exact match | 571 contacts → |
“L’AFM-Téléthon est une association de parents et de malades qui mène un combat sans relâche contre des maladies génétiques, rares et lourdement invalidantes.” Recorded description excerpt · September 20, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 2 |  Greenwood Genetic Centerggc.orgHQ: Greenwood, SC, United StatesReported employees: 51-200 | Greenwood, SC, United States | 51-200 | Exact match | 177 contacts → |
“For 50 years, the Greenwood Genetic Center has provided clinical genetic services, diagnostic laboratory testing, educational programs and resources, and medical genetics research…” Recorded description excerpt · September 20, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 3 | National Organization For Rare Disordersrarediseases.org HQ: Danbury, CT, United StatesReported employees: 51-200 | Danbury, CT, United States | 51-200 | Exact match | 156 contacts → |
“The National Organization for Rare Disorders (NORD), a 501(c)(3) organization, is an independent patient advocacy organization dedicated to helping individuals with rare diseases…” Recorded description excerpt · September 20, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 4 | Genome Medicalgenomemedical.com HQ: South San Francisco, CA, United StatesReported employees: 51-200 | South San Francisco, CA, United States | 51-200 | Exact match | 84 contacts → |
“Our mission is to bridge critical gaps in access, ensuring that individuals and families affected by rare conditions receive the expert guidance they need.” Recorded description excerpt · September 20, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 5 | Rare Genomics Instituteraregenomics.org HQ: Downey, CA, United StatesReported employees: 51-200 | Downey, CA, United States | 51-200 | Exact match | 31 contacts → |
“Rare Genomics Institute (RG) was founded in 2011 to fill the health care gap for undiagnosed rare disease patients and supporting research in rare diseases.” Recorded description excerpt · September 20, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 6 | Genetic Alliancegeneticalliance.org HQ: Washington, DC, United StatesReported employees: 11-50 | Washington, DC, United States | 11-50 | Exact match | 30 contacts → |
“Genetic Alliance is the world’s leading nonprofit health advocacy organization committed to transforming health through genetics and promoting an environment of openness centered…” Recorded description excerpt · September 20, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 7 | Genetic Alliance UKgeneticalliance.org.uk HQ: Bristol, United KingdomReported employees: 11-50 | Bristol, United Kingdom | 11-50 | Exact match | 19 contacts → |
“Genetic Alliance UK is the largest alliance of organisations supporting people with genetic, rare and undiagnosed conditions in the UK.” Recorded description excerpt · September 20, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 8 | Jneticsjnetics.org HQ: Elstree, United KingdomReported employees: 1-10 | Elstree, United Kingdom | 1-10 | Exact match | 19 contacts → |
“Jnetics was established to raise awareness of Jewish genetic disorders and to help anyone affected and at risk to access the best information, services and support available.” Recorded description excerpt · September 20, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 9 | VSOPvsop.nl HQ: Utrecht, NetherlandsReported employees: 1-10 | Utrecht, Netherlands | 1-10 | Exact match | 15 contacts → |
“De VSOP is belangenbehartiger voor alle mensen met een zeldzame of genetische aandoening.” Recorded description excerpt · September 20, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 10 | Raregivers INCraregivers.global HQ: Orange, CA, United StatesReported employees: 1-10 | Orange, CA, United States | 1-10 | Exact match | 11 contacts → |
“Raregivers™ is a global network that delivers emotional support to caregivers, patients and professionals in rare, chronic and complex disease communities.” Recorded description excerpt · September 20, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 11 | Know Rareknowrare.com HQ: New York, NY, United StatesReported employees: 11-50 | New York, NY, United States | 11-50 | Exact match | 10 contacts → |
“At Know Rare, we aim to connect people living with rare diseases to information about their conditions as well as to specialists, clinical studies, advocacy organizations, and…” Recorded description excerpt · September 20, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 12 |  3xgenetics3xgenetics.comHQ: Worcester, MA, United StatesReported employees: 1-10 | Worcester, MA, United States | 1-10 | Exact match | 9 contacts → |
“Accelerating Genetic Disease Diagnosis via Education and Testing.” Recorded description excerpt · September 20, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 13 | Leadpath Healthcare Innovationsleadpath.net HQ: Dubai, United Arab EmiratesReported employees: 11-50 | Dubai, United Arab Emirates | 11-50 | Exact match | 8 contacts → |
“LeadPath Healthcare Innovations – Navigating the Path Less Taken in Rare Disease Care LeadPath Healthcare Innovations is a purpose-driven organization on a mission to transform…” Recorded description excerpt · September 20, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 14 | Syndromes Without A Name Swan Australiaswanaus.org.au HQ: Fairfield, AustraliaReported employees: 1-10 | Fairfield, Australia | 1-10 | Exact match | 8 contacts → |
“SWAN is a not for profit charity and incorporated association.” Recorded description excerpt · September 20, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 15 | The Genesis Foundation For Childrenthegenesisfoundation.org HQ: Boston, MA, United StatesReported employees: 1-10 | Boston, MA, United States | 1-10 | Exact match | 8 contacts → |
“The Genesis Foundation for Children provides funding for the diagnosis and compassionate, coordinated care of children born with genetic disorders, rare diseases, and disabilities.” Recorded description excerpt · September 20, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 16 | Ben's Friendsbensfriends.org HQ: Austin, United StatesReported employees: 1-10 | Austin, United States | 1-10 | Exact match | 7 contacts → |
“BensFriends.org is a network of safe and supportive patient communities for anyone affected by a rare disease.” Recorded description excerpt · September 20, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 17 | Healthcare Education Institute Foundationeduinstitute.org HQ: Katowice, PolandReported employees: 1-10 | Katowice, Poland | 1-10 | Exact match | 5 contacts → |
“There are so many patients in advocacy groups worldwide who are full of energy, commitment and will to improve other people’s lives.” Recorded description excerpt · September 20, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 18 | American College Of Medical Genetics Foundationacmgfoundation.org HQ: Bethesda, MD, United StatesReported employees: 11-50 | Bethesda, MD, United States | 11-50 | Exact match | 5 contacts → |
“The ACMG Foundation for Genetic and Genomic Medicine, a 501(c)(3) nonprofit organization, is a community of supporters and contributors who understand the importance of medical…” Recorded description excerpt · September 20, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 19 | connectmyvariant.orgconnectmyvariant.org HQ: United StatesReported employees: 1-10 | United States | 1-10 | Exact match | 5 contacts → |
“We are a health-focused nonprofit organization that helps individuals and families with hereditary disease, such as cancer risk, in their early detection and prevention efforts.” Recorded description excerpt · September 20, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 20 | Genetic Alliance Australiageneticalliance.org.au HQ: United StatesReported employees: 1-10 | United States | 1-10 | Exact match | 5 contacts → |
“Welcome to Genetic Alliance Australia, a tax-deductible registered charity passionately dedicated to providing support, resources, and a strong community for individuals and…” Recorded description excerpt · September 20, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 21 | Gene Peoplegenepeople.org.uk HQ: London, United KingdomReported employees: 1-10 | London, United Kingdom | 1-10 | Exact match | 4 contacts → |
“Gene People is a charity here to support anyone with a genetic condition and their loved ones, and the patient organisations and support groups that work with them.” Recorded description excerpt · September 20, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 22 | HQ: Totana, SpainReported employees: 11-50 | Totana, Spain | 11-50 | Exact match | 4 contacts → |
“Nonprofit association for people with rare diseases and their famlies” Recorded description excerpt · September 20, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 23 | Gaucher Community Alliancegauchercommunity.org HQ: Pittsburgh, PA, United StatesReported employees: 1-10 | Pittsburgh, PA, United States | 1-10 | Exact match | 3 contacts → |
“Gaucher Community Alliance (GCA) is a 501(c)(3) non-profit organization for the patient community by the patient community.” Recorded description excerpt · September 20, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 24 | UAE Genetic Diseases Associationuaegda.ae HQ: Dubai, United Arab EmiratesReported employees: 51-200 | Dubai, United Arab Emirates | 51-200 | Exact match | 3 contacts → |
“The Genetic Diseases Association (GDA) in the United Arab Emirates is a non-profit organization that provides support, education, and advocacy for individuals and families…” Recorded description excerpt · September 20, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 25 | Hereditary Disease Circlehdcircle.org HQ: Newtown Square, PA, United StatesReported employees: 1-10 | Newtown Square, PA, United States | 1-10 | Exact match | 3 contacts → |
“Hereditary Disease Circle is an effort to bring out genetic treatments and cures faster.” Recorded description excerpt · September 20, 2026Open company data in RevenueBase ↗Free signup required. | |||||
Showing 25 of 98 company matches
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Genetic disease support groups: dataset insights
September 20, 2026These summaries describe recorded coverage in this saved dataset. This page is derived from saved source records; per-contact mobile coverage and email-recency results are not established by this snapshot.
Reported company sizes
98 records in the displayed employee bands.
0 matching records are outside the displayed bands or do not have a displayed size. Bars show shares of the displayed bands.
Email recency for this list is measured across the whole country list rather than for Worldwide, so it is reported there. Company counts and contact totals on this page are exact for Worldwide, over 98 companies.
How this company list was built
Describe a niche in your own words: companies installing commercial solar, or manufacturers of sustainable packaging. RevenueBase SmartSearch finds companies whose compiled business descriptions match by meaning. This list is one saved example to adapt.
Where the company descriptions come from
RevenueBase compiles company information from public sources, including company websites and public professional profiles such as LinkedIn, alongside information supplied by companies. The short recorded excerpt shown here is separate from the complete business description used for matching; individual source URLs and collection dates are not provided in this public snapshot.
RevenueBase SmartSearch matching settings
- Exact
- Closest fits to the business described.
- Similar
- Similar businesses with a wider range of fits.
- Related
- Related businesses in and around the category.
- Broad
- A broader set of businesses connected to the description.
RevenueBase SmartSearch · Exact match identifies inclusion in this search's closest semantic matching setting. It is not a per-company confidence score, a literal keyword match, or a quality endorsement.
Selection, ordering and scope
The public list shows selected company records with contact and verified-email coverage. Reported employee bands provide separate company-size context.
This page is derived from saved source records; per-contact mobile coverage and email-recency results are not established by this snapshot.
Recorded company descriptions support research; check company websites for current services. The selected preview is ordered by tracked contacts and is not a list of the best service providers.
Snapshot: September 20, 2026.
RevenueBase is a B2B data infrastructure company. Its September 3, 2026 published methodology describes a graph of 60 million companies and 398.9 million professional contacts; these platform figures differ from this page's totals. Published methodology ↗
Genetic disease support groups by location
1 lists · largest firstEvery Genetic disease support groups list RevenueBase publishes, by country and city. Counts are matching companies in each list as of its own refresh date.
Countries
Questions about this company list
What does Exact match mean for genetic disease support groups?
The separate RevenueBase SmartSearch column identifies inclusion at the closest semantic matching preset. It is not a literal keyword match, a per-company confidence score or a quality endorsement. Changing the search form opens a new search in RevenueBase; it does not reclassify these saved rows.
How many genetic disease support groups did RevenueBase find worldwide?
The saved snapshot records 98 matching company records, 1,365 tracked contacts and 652 verified emails. The public preview displays 25 selected records.
Where do the company descriptions come from?
RevenueBase compiles company information from public sources, including company websites and public professional profiles such as LinkedIn, alongside information supplied by companies. The short recorded excerpt shown here is separate from the complete business description used for matching; individual source URLs and collection dates are not provided in this public snapshot.
How are the public companies ordered?
The selected public records are ordered by contacts tracked in RevenueBase, highest first. Contact coverage is a prospecting measure, not an assessment of the company's services or quality.
How can I get contact information?
Select a company's contact count to open its filtered contacts in RevenueBase. Free signup is required and includes 500 credits and limited free results. Verified emails, direct dials and mobile numbers depend on available coverage.
How current is this list?
Snapshot: September 20, 2026. Review each company's website for current services and locations. A recorded business description does not establish that every company offers every service named in the search.
What do headquarters and employee bands mean?
These are recorded company-level fields, rather than a map of every branch or a count of specialists. Missing headquarters or employee bands are labeled; older records may show a location separately from recorded headquarters.
Build your next target company list
Adapt this niche search and work with available contacts in RevenueBase.
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Cite this list
RevenueBase Data Team. Top 25 genetic disease support groups worldwide. Snapshot: September 20, 2026. https://revenuebase.ai/companies/browse/genetic-disease-support-groups.
This is a selected public preview of saved company records, rather than an independently verified census. Open the source page ↗
More company lists
Company intelligence · public preview
Top 25 genetic disease support groups worldwide
RevenueBase records 98 matching company records for genetic disease support groups worldwide, with 1,365 tracked contacts and 652 verified work emails.
This public preview shows 25 selected records ordered by tracked contacts. RevenueBase SmartSearch finds company descriptions that match by meaning at Exact. Snapshot: September 20, 2026.
RevenueBase compiles business descriptions for niche-company discovery; each row shows a recorded excerpt where available. Adapt this search to find the companies and contacts you want.
Top 25 genetic disease support groups worldwide
The public list shows selected company records with contact and verified-email coverage. Reported employee bands provide separate company-size context.
| # | Company | Headquarters on record | Reported employees | RevenueBase SmartSearch | Tracked contacts |
|---|---|---|---|---|---|
| 1 | Afm-Téléthonafm-telethon.fr HQ: Evry, FranceReported employees: 201-500 | Evry, France | 201-500 | Exact match | 571 contacts → |
“L’AFM-Téléthon est une association de parents et de malades qui mène un combat sans relâche contre des maladies génétiques, rares et lourdement invalidantes.” Recorded description excerpt · September 20, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 2 | Greenwood Genetic Centerggc.org HQ: Greenwood, SC, United StatesReported employees: 51-200 | Greenwood, SC, United States | 51-200 | Exact match | 177 contacts → |
“For 50 years, the Greenwood Genetic Center has provided clinical genetic services, diagnostic laboratory testing, educational programs and resources, and medical genetics research…” Recorded description excerpt · September 20, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 3 | National Organization For Rare Disordersrarediseases.org HQ: Danbury, CT, United StatesReported employees: 51-200 | Danbury, CT, United States | 51-200 | Exact match | 156 contacts → |
“The National Organization for Rare Disorders (NORD), a 501(c)(3) organization, is an independent patient advocacy organization dedicated to helping individuals with rare diseases…” Recorded description excerpt · September 20, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 4 | Genome Medicalgenomemedical.com HQ: South San Francisco, CA, United StatesReported employees: 51-200 | South San Francisco, CA, United States | 51-200 | Exact match | 84 contacts → |
“Our mission is to bridge critical gaps in access, ensuring that individuals and families affected by rare conditions receive the expert guidance they need.” Recorded description excerpt · September 20, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 5 | Rare Genomics Instituteraregenomics.org HQ: Downey, CA, United StatesReported employees: 51-200 | Downey, CA, United States | 51-200 | Exact match | 31 contacts → |
“Rare Genomics Institute (RG) was founded in 2011 to fill the health care gap for undiagnosed rare disease patients and supporting research in rare diseases.” Recorded description excerpt · September 20, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 6 | Genetic Alliancegeneticalliance.org HQ: Washington, DC, United StatesReported employees: 11-50 | Washington, DC, United States | 11-50 | Exact match | 30 contacts → |
“Genetic Alliance is the world’s leading nonprofit health advocacy organization committed to transforming health through genetics and promoting an environment of openness centered…” Recorded description excerpt · September 20, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 7 | Genetic Alliance UKgeneticalliance.org.uk HQ: Bristol, United KingdomReported employees: 11-50 | Bristol, United Kingdom | 11-50 | Exact match | 19 contacts → |
“Genetic Alliance UK is the largest alliance of organisations supporting people with genetic, rare and undiagnosed conditions in the UK.” Recorded description excerpt · September 20, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 8 | Jneticsjnetics.org HQ: Elstree, United KingdomReported employees: 1-10 | Elstree, United Kingdom | 1-10 | Exact match | 19 contacts → |
“Jnetics was established to raise awareness of Jewish genetic disorders and to help anyone affected and at risk to access the best information, services and support available.” Recorded description excerpt · September 20, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 9 | VSOPvsop.nl HQ: Utrecht, NetherlandsReported employees: 1-10 | Utrecht, Netherlands | 1-10 | Exact match | 15 contacts → |
“De VSOP is belangenbehartiger voor alle mensen met een zeldzame of genetische aandoening.” Recorded description excerpt · September 20, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 10 | Raregivers INCraregivers.global HQ: Orange, CA, United StatesReported employees: 1-10 | Orange, CA, United States | 1-10 | Exact match | 11 contacts → |
“Raregivers™ is a global network that delivers emotional support to caregivers, patients and professionals in rare, chronic and complex disease communities.” Recorded description excerpt · September 20, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 11 | Know Rareknowrare.com HQ: New York, NY, United StatesReported employees: 11-50 | New York, NY, United States | 11-50 | Exact match | 10 contacts → |
“At Know Rare, we aim to connect people living with rare diseases to information about their conditions as well as to specialists, clinical studies, advocacy organizations, and…” Recorded description excerpt · September 20, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 12 | 3xgenetics3xgenetics.com HQ: Worcester, MA, United StatesReported employees: 1-10 | Worcester, MA, United States | 1-10 | Exact match | 9 contacts → |
“Accelerating Genetic Disease Diagnosis via Education and Testing.” Recorded description excerpt · September 20, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 13 | Leadpath Healthcare Innovationsleadpath.net HQ: Dubai, United Arab EmiratesReported employees: 11-50 | Dubai, United Arab Emirates | 11-50 | Exact match | 8 contacts → |
“LeadPath Healthcare Innovations – Navigating the Path Less Taken in Rare Disease Care LeadPath Healthcare Innovations is a purpose-driven organization on a mission to transform…” Recorded description excerpt · September 20, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 14 | Syndromes Without A Name Swan Australiaswanaus.org.au HQ: Fairfield, AustraliaReported employees: 1-10 | Fairfield, Australia | 1-10 | Exact match | 8 contacts → |
“SWAN is a not for profit charity and incorporated association.” Recorded description excerpt · September 20, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 15 | The Genesis Foundation For Childrenthegenesisfoundation.org HQ: Boston, MA, United StatesReported employees: 1-10 | Boston, MA, United States | 1-10 | Exact match | 8 contacts → |
“The Genesis Foundation for Children provides funding for the diagnosis and compassionate, coordinated care of children born with genetic disorders, rare diseases, and disabilities.” Recorded description excerpt · September 20, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 16 | Ben's Friendsbensfriends.org HQ: Austin, United StatesReported employees: 1-10 | Austin, United States | 1-10 | Exact match | 7 contacts → |
“BensFriends.org is a network of safe and supportive patient communities for anyone affected by a rare disease.” Recorded description excerpt · September 20, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 17 | Healthcare Education Institute Foundationeduinstitute.org HQ: Katowice, PolandReported employees: 1-10 | Katowice, Poland | 1-10 | Exact match | 5 contacts → |
“There are so many patients in advocacy groups worldwide who are full of energy, commitment and will to improve other people’s lives.” Recorded description excerpt · September 20, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 18 | American College Of Medical Genetics Foundationacmgfoundation.org HQ: Bethesda, MD, United StatesReported employees: 11-50 | Bethesda, MD, United States | 11-50 | Exact match | 5 contacts → |
“The ACMG Foundation for Genetic and Genomic Medicine, a 501(c)(3) nonprofit organization, is a community of supporters and contributors who understand the importance of medical…” Recorded description excerpt · September 20, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 19 | connectmyvariant.orgconnectmyvariant.org HQ: United StatesReported employees: 1-10 | United States | 1-10 | Exact match | 5 contacts → |
“We are a health-focused nonprofit organization that helps individuals and families with hereditary disease, such as cancer risk, in their early detection and prevention efforts.” Recorded description excerpt · September 20, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 20 | Genetic Alliance Australiageneticalliance.org.au HQ: United StatesReported employees: 1-10 | United States | 1-10 | Exact match | 5 contacts → |
“Welcome to Genetic Alliance Australia, a tax-deductible registered charity passionately dedicated to providing support, resources, and a strong community for individuals and…” Recorded description excerpt · September 20, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 21 | Gene Peoplegenepeople.org.uk HQ: London, United KingdomReported employees: 1-10 | London, United Kingdom | 1-10 | Exact match | 4 contacts → |
“Gene People is a charity here to support anyone with a genetic condition and their loved ones, and the patient organisations and support groups that work with them.” Recorded description excerpt · September 20, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 22 | HQ: Totana, SpainReported employees: 11-50 | Totana, Spain | 11-50 | Exact match | 4 contacts → |
“Nonprofit association for people with rare diseases and their famlies” Recorded description excerpt · September 20, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 23 | Gaucher Community Alliancegauchercommunity.org HQ: Pittsburgh, PA, United StatesReported employees: 1-10 | Pittsburgh, PA, United States | 1-10 | Exact match | 3 contacts → |
“Gaucher Community Alliance (GCA) is a 501(c)(3) non-profit organization for the patient community by the patient community.” Recorded description excerpt · September 20, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 24 | UAE Genetic Diseases Associationuaegda.ae HQ: Dubai, United Arab EmiratesReported employees: 51-200 | Dubai, United Arab Emirates | 51-200 | Exact match | 3 contacts → |
“The Genetic Diseases Association (GDA) in the United Arab Emirates is a non-profit organization that provides support, education, and advocacy for individuals and families…” Recorded description excerpt · September 20, 2026Open company data in RevenueBase ↗Free signup required. | |||||
| 25 | Hereditary Disease Circlehdcircle.org HQ: Newtown Square, PA, United StatesReported employees: 1-10 | Newtown Square, PA, United States | 1-10 | Exact match | 3 contacts → |
“Hereditary Disease Circle is an effort to bring out genetic treatments and cures faster.” Recorded description excerpt · September 20, 2026Open company data in RevenueBase ↗Free signup required. | |||||
Showing 25 of 98 company matches
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Genetic disease support groups: dataset insights
September 20, 2026These summaries describe recorded coverage in this saved dataset. This page is derived from saved source records; per-contact mobile coverage and email-recency results are not established by this snapshot.
Reported company sizes
98 records in the displayed employee bands.
0 matching records are outside the displayed bands or do not have a displayed size. Bars show shares of the displayed bands.
Email recency for this list is measured across the whole country list rather than for Worldwide, so it is reported there. Company counts and contact totals on this page are exact for Worldwide, over 98 companies.
How this company list was built
Describe a niche in your own words: companies installing commercial solar, or manufacturers of sustainable packaging. RevenueBase SmartSearch finds companies whose compiled business descriptions match by meaning. This list is one saved example to adapt.
Where the company descriptions come from
RevenueBase compiles company information from public sources, including company websites and public professional profiles such as LinkedIn, alongside information supplied by companies. The short recorded excerpt shown here is separate from the complete business description used for matching; individual source URLs and collection dates are not provided in this public snapshot.
RevenueBase SmartSearch matching settings
- Exact
- Closest fits to the business described.
- Similar
- Similar businesses with a wider range of fits.
- Related
- Related businesses in and around the category.
- Broad
- A broader set of businesses connected to the description.
RevenueBase SmartSearch · Exact match identifies inclusion in this search's closest semantic matching setting. It is not a per-company confidence score, a literal keyword match, or a quality endorsement.
Selection, ordering and scope
The public list shows selected company records with contact and verified-email coverage. Reported employee bands provide separate company-size context.
This page is derived from saved source records; per-contact mobile coverage and email-recency results are not established by this snapshot.
Recorded company descriptions support research; check company websites for current services. The selected preview is ordered by tracked contacts and is not a list of the best service providers.
Snapshot: September 20, 2026.
RevenueBase is a B2B data infrastructure company. Its September 3, 2026 published methodology describes a graph of 60 million companies and 398.9 million professional contacts; these platform figures differ from this page's totals. Published methodology ↗
Genetic disease support groups by location
1 lists · largest firstEvery Genetic disease support groups list RevenueBase publishes, by country and city. Counts are matching companies in each list as of its own refresh date.
Countries
Questions about this company list
What does Exact match mean for genetic disease support groups?
The separate RevenueBase SmartSearch column identifies inclusion at the closest semantic matching preset. It is not a literal keyword match, a per-company confidence score or a quality endorsement. Changing the search form opens a new search in RevenueBase; it does not reclassify these saved rows.
How many genetic disease support groups did RevenueBase find worldwide?
The saved snapshot records 98 matching company records, 1,365 tracked contacts and 652 verified emails. The public preview displays 25 selected records.
Where do the company descriptions come from?
RevenueBase compiles company information from public sources, including company websites and public professional profiles such as LinkedIn, alongside information supplied by companies. The short recorded excerpt shown here is separate from the complete business description used for matching; individual source URLs and collection dates are not provided in this public snapshot.
How are the public companies ordered?
The selected public records are ordered by contacts tracked in RevenueBase, highest first. Contact coverage is a prospecting measure, not an assessment of the company's services or quality.
How can I get contact information?
Select a company's contact count to open its filtered contacts in RevenueBase. Free signup is required and includes 500 credits and limited free results. Verified emails, direct dials and mobile numbers depend on available coverage.
How current is this list?
Snapshot: September 20, 2026. Review each company's website for current services and locations. A recorded business description does not establish that every company offers every service named in the search.
What do headquarters and employee bands mean?
These are recorded company-level fields, rather than a map of every branch or a count of specialists. Missing headquarters or employee bands are labeled; older records may show a location separately from recorded headquarters.
Build your next target company list
Adapt this niche search and work with available contacts in RevenueBase.
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Cite this list
RevenueBase Data Team. Top 25 genetic disease support groups worldwide. Snapshot: September 20, 2026. https://revenuebase.ai/companies/browse/genetic-disease-support-groups.
This is a selected public preview of saved company records, rather than an independently verified census. Open the source page ↗