Top 25 Disease specific nonprofits worldwide

Exact match

“Established in 1996, Patient Advocate Foundation has been breaking down healthcare barriers for patients diagnosed with chronic, life threatening and/or debilitating illnesses by…”

Exact match

“The EveryLife Foundation for Rare Diseases is powered by the rare disease community to improve health outcomes by driving change through evidence-based policy, leading…”

Exact match

“A Raríssimas – Associação Nacional de Deficiências Mentais e Raras é uma IPSS, fundada em Abril de 2002, que desenvolve a sua acção junto de doentes e familiares que convivem de…”

Exact match

“Seja bem-vindo(a) a página da Casa Hunter.”

Exact match

“Indo US Organization for rare diseases (IndoUSrare) is an independent non-profit organization focused on helping patients with rare diseases of Indian origin in the USA, India, &…”

Exact match

“When you hear hoofbeats, think of horses, not zebras.” These are the words of Theodore Woodward - an American physician - and the reason we exist.”

Exact match

“Our Objectives Rare Diseases Patients Helpline and Helpdesk: ORDI runs a national rare disease hotline (+91 8892 to hear the needs of rare disease patients.”

Exact match

“ALAN – Maladies Rares Luxembourg est une association sans but lucratif (a.s.b.l.) fondée en 1998 et reconnue d’utilité publique depuis La mission d’ALAN consiste à améliorer la…”

Exact match

“At Know Rare, we aim to connect people living with rare diseases to information about their conditions as well as to specialists, clinical studies, advocacy organizations, and…”

Exact match

“Le Regroupement Québécois des Maladies Orphelines (RQMO) a comme mission: 1.”

Exact match

“LeadPath Healthcare Innovations – Navigating the Path Less Taken in Rare Disease Care LeadPath Healthcare Innovations is a purpose-driven organization on a mission to transform…”

Exact match

“The Genesis Foundation for Children provides funding for the diagnosis and compassionate, coordinated care of children born with genetic disorders, rare diseases, and disabilities.”

Exact match

“Jaasiel S.A.S es una entidad dedicada a la atención integral de las personas que viven y conviven con enfermedades de alto costo y alto impacto social.”

Exact match

“The Spanish Patient Forum defends the interests of those affected by the disease, through training, prevention, research and associative promotion.”

Exact match

“Headquartered in Pittsburgh, the Community Liver Alliance has grown to have a national presence while still holding true to a mission to invest in local communities and give voice…”

Exact match

“We are a not for profit organisation (recognised by HMRC as a charity), working to support anyone living with or caring for someone with a rare condition.”

Exact match

“Founded in 2017, Jack’s Butterflies is an Australia Charity registered with the ACNC and endorsed by the ATO; thereby offering tax deductible donations to our supporters.”

Exact match

“The Avalon Foundation is BY KIDS- FOR KIDS!”

Exact match

“There are so many patients in advocacy groups worldwide who are full of energy, commitment and will to improve other people’s lives.”

Exact match

“Patient Worthy® provides current and continuous coverage of rare disease patient experiences, news, and events, through an online platform and broad social media presence.”

Exact match

“Somos una Asociación de Pacientes sin fines de lucro, independiente de cualquier institución pública o privada que compartimos el mismo camino con el objetivo de FORMAR UNA…”

Exact match

“Heal Canada is a registered not-for-profit organization dedicated to patient advocacy, education and collaboration among patient advocacy groups and other healthcare stakeholders.”